Fainting

I’ve been struggling for years with chronic pain, dizziness and fainting spells. I got Covid 2 months ago and ever since then I’ve had worse pain and pots episodes. I’ve become unable to do my groceries without almost fainting and can’t do the things I enjoy anymore. I don’t feel like myself anymore and I’m wondering if it’s time to get a mobility aid and how to approach the subject with my GP.

I read here that there are 10 kinds of migraine. So far , I have 9. I have had migraines since I was 12,over 50 years. They started with menstrual triggers, Since then I've had a histerectomy and been through menopause. That's when things got strange. It started with uncontrolled movements in half my body, then fainting and finally 6 to 12 hours of vomiting. I just started with a new neurologist, he ran every scan and test and hasn't found answers yet. I get Botox and try to take meds, but often can't keep them down. I have no social life. My dogs and horse are my companions, but I have been married for 45 years. I consider myself blessed just for that.I was a fanatic athlete, mountain climbing, running, riding and gardening. I was actually paid well for gardening. Now , if I actually sleep all night I am stoked. I found this site a long time ago, but it is hard for me to talk about all this. I was so strong, born of Vikings, educated in a medical family and actually paid to sing. All of our parents finally died. I lost some incredible dogs and a horse, went through depression and rarely do anything fun anymore. Well , all that to say, I still feel blessed.I live in Hawaii near the beach. It truly is beautiful. I have experienced a strength and connection with God, the universe and 2 awesome grown children and their kids. My husband still stands by me. I have found so many people here and in snatches of encounters that do not have much hope. Hope is knowing that there is so much more than my pain. heck we have seen the furtherest star in the universe!. Life is facinanating. They named the star Earendel, after a Tolkien character.it is from the old Norse. I look into the heavens and I see my home. I am very small in this vast heaven, I find all of these troubles a passing comet, until I learn to fly. ( oh and I fully expect to see all my lost pets in heaven).

After getting diagnosed with POTS last year, I thought that was going to be the end of the mystery of why I feel so sick. But, just as life happens to unfold, this was indeed not the end.

Once I started treatment, things got a bit better. I could work again and I was only fainting a few times a week, if that.

However, recently, things have gotten worst than ever. I'm back to fainting multiple times a day, except this time it has left me almost completely bed bound. I lost my job, my hobbies, my ability to even shower without someone close by.

It's been hard.

But even worst is I am having bad abdominal pain, constipation, vomiting episodes, and more GI tract symptoms which I've never had before.

I heard that POTS has many comobilities, and I fear that this might be one developing.

I am trying to hold out and change my lifestyle but as the days get worst I fear I may have to go seek urgent help.

What is everyone else's experience with POTS' comobilities, if any? And how long did they take to manifest?#POTS

Relationships are a trigger for My anxiety. So when I start to like someone and they start to like me back, and the possibility of a relationship becomes a reality, my anxiety shoots through the roof. i’m in a constant state of fight or flight so my body doesn’t wanna eat and I end up losing anywhere from 10 to 15 pounds. I’m already a fairly slim person so losing that much weight means I get lightheaded and I’m prone to fainting. what’s worse is when guys see my body this way and think it’s attractive when on the inside I feel sick and weak. When we break up the anxiety disappears and it’s a relief and I start to gain the weight back. I’m not really sure how to control this. I’ve seen therapists but breathing exercises and journaling can only helo so much in this case. Anybody else go through this? #Anxiety #relationship #WeightLoss

I wrote this as a way to cope with chronic illness at a young age

To my disabilities,
You are the worst thing thats ever happened to me. You make me life a living hell from the moment I wake up to the moment I fall asleep. You don’t give me a break from the pain and it feels like you’re trying to attack whenever you can. You have shaped me into a better me to deal with you and I’m willing to fight you. I dont know why you came to me or what I did to have you around. The medications I’m on feel endless and even with them, you still control everything I do, how I get up from a seat, how I’m constantly shifting to keep from fainting, and constantly putting my body back together. You make me fall apart every day. Most days I’m not willing to put up a fight anymore and want to give up with trying because it feels like you still overpower me daily. It doesn’t seem worth it to try anymore. Sometimes you let me enjoy myself for a couple days but then you make me pay for it worse than normal. It has only gotten harder with you, a simple infection leads to hospital visits. The weakness and fatigue are endless. I just want to feel normal but you’ll never let me. I don’t know a life without pain anymore, I dont know a life without multiple injections and more pills than anyone should be taking just to live somewhat normally. You have made me who I am today and I’m trying to get motivation to fight you and not let you win. You could win easily and make me wheelchair bound at any point, I don’t know what your plans are for the future but I don’t think it’s good, #MastCellActivationDisorder #EhlersDanlosSociety #PosturalOrthostaticTachycardiaSyndrome

I see a lot of people on the Internet who make out that #DissociativeIdentityDisorder is just an alter syndrome, where your brain makes these different characters and you become them at random intervals. I’m here to tell you that that’s not even the half of it.

1) Switching headaches

You can get absolutely the worst headaches you’ve ever experienced when you switch from alter-to-alter. These can be mistaken for your average #Headache , a #Migraine , or even a cluster #Headache . They can be that bad.

2) Amnesia

You have amnesia barriers between alters. Generally speaking, unless your communication is on point, if you switch with another alter, you will lose time, that alter will be confused and have no idea what, when, where, how…

3) Depersonalisation/Derealisation

You know that feeling where you think that everyone around you is a robot, you aren’t real and the world around you is a made-up simulation and everything in it is non-existent? No? Look up DPDR and you’ll understand how scary that is.

4) Identity Confusion

You forget who you are. You have periods where you don’t even know who you are. Imagine having a constant identity crisis. In fact, as I write this, I have no idea whether I’m Alex or Sapphire right now.

5) #Depression

Ah yes, the big #Depression . Considering that DID is a #Trauma -based disorder, you’re bound to feel a little down about life. I’m down-playing it a lot here. A huge percentage of people with DID have attempted suicide, self-harm etc in their lives.

6) cPTSD

Again, DID is a #Trauma -based disorder. PTSD is common, cPTSD, or complex PTSD, is a little less common. cPTSD forms after repeated or prolonged #Trauma . Think regular PTSD and amplify every symptom by 100, then you might be close to cPTSD.

7) Lightheadedness

What causes this? I don’t actually know. But I do know that when I’m feeling like I’m about to switch out, I get lightheaded. I don’t lose consciousness in the traditional way of #Fainting , but I lose control of my body, and when I come back, the lightheadedness returns until I can ground myself into real life once again.

8) Seizures/Jerks

I’ll be honest, I don’t know a great deal about this. Look up non-epileptic seizures and you’ll see what I mean.

9) Dissociation

Yes, even though it’s literally in the name of the disorder, you rarely see dissociation portrayed in the media, on social media etc. Imagine you’ve been on autopilot and gone from one place to another and gone “whoa, how did I end up here?” Once again, amplify that, you may have a dissociative disorder.

10) Disordered attachments

Bear in mind that different alters may have different feelings towards different people. For example, in my system, one of my alters sees a man we know as very attractive, while the majority of the system is asexual and many are aromantic. This same man is an abuser to some alters.

Hi y’all! Im new to this group and this app, but I was wondering if any of y’all know how to safely exercise with chronic migraine? I was diagnosed two weeks ago. I am a collegiate athlete and currently am unable to even jog or bike a short distance without making the migraine so bad I feel nauseated. I also have POTS so fainting also very much aggravates my headache. Any tips are welcome!