Fainting

Well, Doctors have always been a challenge for me. Not only do I feel like my past continues to haunt and challenge me when it comes to living my life but I have been having dizzy spells and some chest pain.. sometimes sharp chest pain when I am overly stressed. My doctor is either just tired of me coming in or this could actually be a diagnosis that makes sense? She is going to get me to do a ecg. I have had one in the past but no results came back. I struggle with serverr depression and have some cptsd symptoms so having to do anything medical related can make me spiral a bit and feel guilty of not getting this dealt with sooner. When I researched dysautonomia I was surprised to find that the dizziness, irregular heart beat and blood pressure makes sense. Even the fainting makes sense as when I go to give blood I have to lay down after a fainting incident year ago. I also got horrible heat stroke as a child and would end up vomiting very easily if I could not cool myself down in time. I am hopeful that there is more research and understanding of this coming out there. I mean in the world of ai. I really think that the future of health will get better now that we can track symptoms and see what matches from data. Take care lovely people of the Mighty community.

Hi everyone, I'm new here and really grateful this space exists.
I'm a 19-year-old college student dealing with a combination of chronic illness symptoms that have been getting worse since late 2021. I’ve been diagnosed with POTS and hypermobile EDS, but there are still a lot of unresolved issues and symptoms that make daily life really difficult. I’m hoping to connect with others who might relate or just get what it’s like to be young, chronically ill, and feeling kind of lost in the system.
Some of the hardest symptoms I deal with include:
* Daily nausea and vomiting (including multi-hour episodes that feel like cyclical vomiting syndrome)
* Severe fatigue and brain fog that impacts my memory and orientation
* Full-body tremors, myoclonic jerks, and some involuntary vocal tics
* Frequent fainting and dizziness, especially after standing
* Joint instability, pain, and mobility issues (I often use a cane)
* GI issues: constipation, diarrhea, acid reflux, and unexplained severe weight loss
* Temperature regulation issues, flushing, and random bruising
* Cognitive issues like word mix-ups, disorientation, and confusion
I’m currently being referred to more specialists to keep searching for answers (possibly neuro, GI, and immunology), and I’m also starting therapy soon because this whole process has been really emotionally exhausting.
If any of this sounds familiar to you, I’d love to hear from you. Even just knowing I’m not the only one experiencing this would mean a lot.

ALONE

FAINTING

HEAL YOURSELF

GAIN STRENGTH IN BEING ALONE

NOURISH

BODY AND SOUL

HOW DO YOU STOP PRAYING FOR DEATH

ITS JUST LONELINESS OR ABUSE

GRATITUDE

BLESS THE DAY

THANK FOR WHAT WE HAVE

THANK FOR WHAT WE HAD

HOLD ON TO IT

BE SAFE

GAIN STRENGTH

REMEMBER THE WISDOM OF THOSE BEFORE YOU

EVEN IF THEY WERE KILLED

THEY LIVED

THEY LOVED

WELL

SO DO SO

AND THANK

EVEN WHEN YOU'RE BEING ABUSED

IT MAKES YOU STRONGER

YOU HAVE SHELTER

YOU HAVE PEOPLE

YOU JUST LOST SOME

STRENGTH

LOVE

ALONE

IN ONE PLACE

FOREVER

YOUR TOMB

YOUR GRAVE

THEY VISIT

THEY SEE WITHOUT SEEING

ITS WARM WHEN THEY RETURN

SOMETIMES IT NOURISHES

SOMETIMES IT SUFFOCATES

YOU LIVE ON

TO LOSE OR GAIN

WHAT'S THE DEFINITION OF PAIN

A CHEATING HUSBAND

A DEAD MOTHER

A FAMILY MEMBER DISABLED

HURTING SOMEONE

A FAMILY MEMBER ALONE

LOSS OF COMMUNITY

MISTRUST LIES BLAME

TRUST

OPENNESS

VULNERABILITY

INNOCENCE IN DEATH

EVEN WHEN LIFE IS LIVED

AND ITS WISDOM EARNED

I DON'T KNOW

JUST GIVE TIL YOU CAN'T

ITS NEVER TOO HARD IS IT

SHELTER

BE WARM

THOUGH COLD NUMBS THE PAIN

AND LONLINESS

OF A SLEEPING BAG ON THE LAWN

SOMETIMES

JUST WHEN HE RESCUES OTHERS

OR MORE PROPERLY

A WALK IN THE STORM

SO YOU GET HOME

N APPRECIATE THE 4 WALLS THAT HOLD YOU IN

THANK YOU

Ive had panic attacks on and off for 15 years. But this past year, they have been unbareable. Ive had hypnotherapy which helped initially, spoken to my gp and now im waiting for an appointment with the mental health team.
These panic attacks are genuinely ruining my life. They started when I had a fainting episode in the car last october and now the car is a massive trigger for me. Im away for a few days with family and the entire 3 hour car journey was me fighting off a panic attack and it was exhausting. The only way I managed the trip was deep breathing the entire time, listening to taylor swift and holding a handheld fan in front of my face (I wasnt driving, dont worry). They’ve even started waking me up in the middle of the night and thats terrible.
Does anyone else have the same problem and what helps you? Its coming to a point where I dont even want to leave the house anymore. Im at my breaking point.

Ok, so this will be a bit long, but if you have a "button" feeding tube please read and chime in, I really need the advice.

So I just got a PEG tube installed back in the spring of this year (2024). I was sadly not given any information prior to my procedure, and very little after, about anything that was going to happen to me. I was certainly not told that there were different types of feeding tubes or given a choice between them. I knew I needed a feeding tube (I was desperate I had been suffering for so long), I knew I was going to have something placed in my body and that it would be hanging out of my body.
I only found out exactly what it would be like, AFTER it had happened. My doctor left over a foot of tubing hanging out of me and very little instructions on how to care for it. The mental toll it took on me was terrible. I had mental breakdowns nearly every night for a week straight, they were so bad I could feel my sanity threatening to break. At a point I figured out that if the tube were shorter it could help some with the mental and physical problems. As I have a fainting disorder and sometimes have to be carried (while completely limp), and the danger of me pulling on the cord was great, and can't tape the tube to myself because I'm allergic to adhesives. (I tried a "belt" but it caused massive discomfort)
Through my own research I found out about a "button". I made a list of all the reasons why getting that instead of the massive tube would help me, not least of all being my sanity.
However, when I asked my doctor he gave me three reasons why he didn't want to do it.
1: they're expensive
2: they're hard to get a hold of
3: because of my size (110lbs) he claimed that even a pound change in my weight would cause the button to be too loose and fall out or too tight.
So I caved to what he said and settled for getting the tube shortened significantly. But there is still a good 6" of tube hanging out of my body.
Months after, I'm still seeing the problems with the tube. It's more to clean and maintain. The threat of tugging on it is still present, though reduced, due to handling small children daily and again my fainting disorder, and just plain sleeping. And it significantly impacts my self confidence. Though most people don't notice, I still have to see it everyday, I still have to adjust it everytime I get changed or use the restroom and do my best to tuck it away in my pants. I'm doing much better mentally than I was but I got a temporary heart monitor for a few days and all the panic and problems from before immediately flooded back, I felt more machine than woman.

All of this to ask, is the "button" worth it? I understand that everything will have it's pros and cons, but are the "buttons" more trouble than they're worth? Or do the benefits outweighs the problems? Given my situation, does it sound like it would be better? I really hope I can get it, mainly for my self confidence, but I want to do my research before demanding it of my doctor or finding another doctor that will do it. Thank you so much for your help!

Good evening, I’m curious to know if anyone on this site suffers from chronic autoimmune disease of multiple sclerosis if so has anyone ever experienced prolonged fainting spells they come on as clustered episodes and last for anywhere from a couple days to a week or longer sometimes and they have become longer and duration of time…

Looking for answers
🙏 prayers hope and new friends

Thank you all
Jessica ❤️

The DR’s ,
Neurologists, cardiologist,
Ect..

We are all so confused
#MultipleSclerosis

The past few showers have all been the same irritating experience;

• Nausea
• Dizziness
• Faintness
• Shaking
• Tremors
• Difficulty breathing / Winded
• Fast heartbeat rate
• Exhaustion

I have to sit down so much, which I hate because not only do I not want to have to sit down every minute, I have to sit on the shower floor as there is nowhere to sit which makes me feel uncomfortable.

After a shower I desperately need to rest as I can’t stand for even for a minute when I finish, it’s like a workout for my chronically ill body.

I can’t really stand for long in general and the shower makes it so much worse.

I did try to change the temperature of the water to something cooler but it didn’t change much.

For all of you that suggested a shower stool, I am looking into it now and I can see why it would help me significantly as I wouldn’t dread showering as much.

I know some people were mentioning PoTS, I have been looking into that as well, I’m not diagnosed though I do have all the symptoms except for fainting. But I do get really close to fainting.

I did finally talk to a doctor about it, I didn’t mention PoTS as a possibility because I’m just too shy to be that direct.

But I will see a doctor soon.🦋

#ChronicIllness #Undiagnosed

Firstly I’m very thankful for all the comments and suggestions and want to reply to them but I just don’t have any energy at the moment which I apologize for.

But I need some advice.

I took a shower and everything fell apart;

I got so lightheaded and dizzy I almost passed out as I felt so winded I was breathing heavily, shakily, and quickly because I felt like I couldn’t get any air.

I had to sit down in the shower to avoid fainting.

My heartbeat was likely high as it felt so while in the shower, when I got to my room it was over 113bpm.

I was shaking so much and still am as my hands are trembling a lot.

I was so nauseous I felt like throwing up and am still nauseous and experiencing the same thing.

I’m also exhausted feeling weak as I had to get right back on my bed,

I admit that I do feel like crying at the moment from how miserable I feel and how I’m going to keep experiencing this after I shower.

I don’t know how to tell people about this, I’m afraid of being seen as dramatic or not being believed.

My hands are still shaking like a leaf.

Any advice is much appreciated.

#CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #ChronicPain #MentalHealth #MajorDepressiveDisorder #GeneralizedAnxietyDisorder

The symptoms I experienced along my 50 year PTSD journey (so far):

- Childhood bed wetting

- Heart palpitations and arrhythmia

- Constant anxiety and fear

- Inability to connect

- Visual flashbacks (3 distinct images)

- Panic attacks

- Dizzyness and fainting spells

- Vision migraines

- Light sensitivity

- Sound sensitivity

- Emotional dis-regulation

- Dissociation

- Sleep paralysis

- Sleep walking

- Nightmares and violent dreams

- Night terrors and animated sleep

- Obstructive sleep apnea (10 years)

- Vagal freezes/shutdowns while driving

- Nighttime body spasms

- 10 to 30 daily neurogenic tremors - Been shaking for 18 months now...

- Leg Length Discrepancy and right hip pain caused by Psoas constriction

- Chronic upper back and neck pain due to Leg Length Discrepancy

- Temporary loss of function in right arm

- Every IBS symptom in the book

- A sudden loss of 25KG (55lb) over 3 months

- Sudden hair loss

- A loss of confidence in my ability to perform simple tasks

When you write it all down it looks pretty obvious right?

But when it's all you have ever known then you adapt and get on with life... Until your body decides it has had enough of compensating.

Just posting this in the hope it helps someone else identify this insidious condition.#PTSD