Arrhythmia

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BOUNDARIES? sacredsavage/iameveryoneeverywhere

Since the beginning of this year I‘ve faced so many challenges, non-stop, I just cannot deal with any more. I’ve reached my mental, emotional, and physical limit, and tomorrow I’m going to postpone a scheduled procedure for a few more months (colonoscopy) because I just need a break! It will be the 3rd test for cancer I’m having since January and I still am waiting on results from the first 2 separate ones!
I just had 3 mammograms and a 6-punch biopsy. A vein was inadvertently hit, and I am entirely deeply black & blue, and in pain. 2 weeks for results. Long story of misdiagnosis, but I’m finally seeing the correct doctor to determine whether lesions on both sides of my head are cancer as my GP diagnosed. I saw a prominent movement neurologist who said I did NOT have Parkinson’s, (Yay!! Yay!!) but severe Essential Tremor which only focused ultrasound treatments to my brain or microchip implants might help diminish the tremor. (I am not independently wealthy or so inclined.)
But in addition to all the physical stuff is the termination of my relationship with my eldest daughter-she’ll be 45 soon. I just absolutely cannot “reach” her anymore.
My first daughter who I have always cherished & enjoyed began having problems in her teens, especially following my divorce in an acute domestic violence situation where I was forced to take my children & pets and give up their only home because my ex- refused to leave, and he was hurting us all. I found a great fixer-upper right across from the high school, transformed it, always had a houseful of kids, worked hard and had a happy life. Both kids were honor students and active in clubs & sports. Until my eldest dropped her good stand-by friends and began hanging out with troubled kids from other schools, and acting out. Their father’s abuse never ended, but he targeted our eldest and adamantly refused the counseling for her she so desperately needed & deserved. She turned from a sweet, bright, funny talented youngster into a rage filled, viscous, self-sabotaging bully exactly like her father. And has maintained that personality toward all her family since, blaming each of us for her unhappiness and health problems, and being unrelenting, escalating abusive, continually speaking outrageous lies and manipulative accusations that leaves her sibling and I aghast as she’s got increasingly worse over the past 10 years.
Her sibling got married, has a beautiful family, and always tried to include her sister, even’tho she was always abused & shunned. Her sister got counseling, and no longer allows the eldest into her life, although they have met several times at relatives for the children’s sake.
My eldest lives 3-4 hours drive from me. I would do look forward to her coming to visit years ago until she became very belligerent over absolutely nothing, began deliberately provoking “fights” I NEVER wanted to have any part in, objected to anything I said or asked, and got herself so angry & worked-up that she’d leave yelling, screaming, & cursing me at the top of her lungs! I live in a very quiet senior building and I did everything I knew to de-escalate the situation, each time, to no avail. The final visit, a few years ago at Thanksgiving, she suddenly lunged at me from across the living room fists raised, teeth clenched, maniacal eyes…got right up in my face, then backed off. I can never feel safe with her again. I did have a few sessions with the counselors at the local Domestic Violence Center.
So she’s continued this degrading abuse via phone calls over the past several years, blaming me for everything her father did to her, and it’s just broken my heart to hear all her bizarre, hateful, untrue name-calling and bullying. She is “in therapy” with someone online whose credentials are clearly from Walmarts 101, and who has no philosophy whatsoever other than “everything is your parents fault & there’s nothing you can do about it, so rage away making yourself sick, suffering, & staying stuck!” I can’t take any more of her endless incredible hatred. I loved that child and woman with my entire heart her whole life through thick and thin, protected her, encouraged & cheered her on, looked after her when other parents might not have bothered, had fun together…never laid a hand on her. I am gentle and reasonable with discipline that teaches consequences.
But the stress of her calls, constant demeaning without cause, is too much stress for way too long. My glucose levels skyrocket for days from the cortisol and totally mess up my diabetes & blood pressure. I just had a major Arrhythmia episode. I’m having to deal with depression & anxiety & ptsd whereas I’d reached a level of contentment and peace and pain management. She’s slammed the phone down on me once too often. I finally agreed with one of her many threats and while I said I always have and always will love her with my whole heart and soul, I will no longer tolerate her abuse in any form. No more calls or texts…until or unless she can find it in her heart to relate to me with some respect and civility. She then texted me a photo of her and a bunch of friends smiling, laughing, and said “See mom! I’m HAPPY without you! I’m having a great life without you in it!” I had a stillborn baby birth in between these two kids who I mourned over for a long time. I’m going through a great mourning now for my beloved firstborn- we’ve been thru so much together. But I feel a great sense of relief and calm is returning just these past 2 weeks and I know we’re both going to be ok. I’ve prayed for her every day and I’ll never stop. I miss who she was. A huge part of my heart and life is missing.
I’m hopeful about all my test outcomes, too. I threw my own theory into the mix. Instead of 4 or 5 specialists sending me for endless invasive tests, I’ve proposed that all my symptoms are attributable to an allergic reaction to a specific medication I started 10 years ago. I got 2 doctors to agree, so I stopped it last week and now we wait and see! Who knows? Meanwhile, should I just get the d€¥m colonoscopy over with now? Or give myself a couple months break?😵‍💫

#ChronicFatigue I #ChronicPain

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My PTSD story.

The symptoms I experienced along my 50 year PTSD journey (so far):

- Childhood bed wetting

- Heart palpitations and arrhythmia

- Constant anxiety and fear

- Inability to connect

- Visual flashbacks (3 distinct images)

- Panic attacks

- Dizzyness and fainting spells

- Vision migraines

- Light sensitivity

- Sound sensitivity

- Emotional dis-regulation

- Dissociation

- Sleep paralysis

- Sleep walking

- Nightmares and violent dreams

- Night terrors and animated sleep

- Obstructive sleep apnea (10 years)

- Vagal freezes/shutdowns while driving

- Nighttime body spasms

- 10 to 30 daily neurogenic tremors - Been shaking for 18 months now...

- Leg Length Discrepancy and right hip pain caused by Psoas constriction

- Chronic upper back and neck pain due to Leg Length Discrepancy

- Temporary loss of function in right arm

- Every IBS symptom in the book

- A sudden loss of 25KG (55lb) over 3 months

- Sudden hair loss

- A loss of confidence in my ability to perform simple tasks

When you write it all down it looks pretty obvious right?

But when it's all you have ever known then you adapt and get on with life... Until your body decides it has had enough of compensating.

Just posting this in the hope it helps someone else identify this insidious condition.#PTSD

(edited)
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I'm new here!

Hi, my name is TRistHeart. I'm here because I am interested in information about inappropriate sinus tachycardia.

#MightyTogether #Arrhythmia

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The Invisible Illness Trap

I often think about the things doctors say to us, and how different their response would be if they could see our ailments. The caption to this self portrait of Van Gogh, is something a doctor said to me when I was so unwell from medication induced hyperthyroidism that it caused me to develop a near fatal cardiac condition. I was so nauseous, losing weight and struggling to keep any food down, that I begged him to help me even after he gave me this dressing down.

I can’t help but wonder what the doctor would have said if I’d walked into my appointment, with clear indicators of being physically unwell. And I don’t mean things like needing a walking stick or a wheelchair, because those were later used against me as “evidence” to prove that I was using my symptoms to get attention.

Van Gogh cutting parts of his ear off… might raise some mental illness questions to this day. But I think it’s unlikely that any doctor would ignore the state of his ear, tell he’d brought it upon himself, and that he needed to go away and “live with the consequences” of his decision in quite the same way.

#ChronicIllness #Hyperthyroidism #HashimotosThyroiditis #MyCondition #ChronicFatigue #MyalgicEncephalomyelitis #Fibromyalgia #EhlersDanlosSyndrome #Endometriosis #Arrhythmia #Dysautonomia #PeripheralNeuropathy #Migraine #PosturalOrthostaticTachycardiaSyndrome

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Shine A Light

To quote the band Banners, “Light will lead the way, will set you free.”

Today I just got a bit of light back in my life ✨

I met with my doctor and she has agreed to be primary care physician and to continue monitoring my condition. She was the same doctor who looked at my ECG that the practice manager I saw previously scoffed at, and said “you need to go to hospital—today”.

She won my heart just a little more when I told her the hospital was struggling to get me booked in for a CT scan so one of the doctors started suggesting my problems might be mental… she gave the biggest eye roll, they almost did a 360.

So, Doctor Sarah, this light is for you from this grateful patient, whose shook faith in humanity you have helped to begin restore.

May there be many more like you—our community sorely needs it ❤️‍🩹

#Hope #WhereHopeGrows #HeartConditions #HeartCondition #Arrhythmia #PatientAndDoctorExperiences #MightyMoment #MyalgicEncephalomyelitis #ChronicFatigue

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Day 6 from the hospital #Depression #Anxiety #PTSD #Relationships #MentalHealth #Hope #OpenHeartSurgery

Day 5 of post surgery.

I want to try and discern ideas and tips share them with you. I can’t focus solely on being detached from the recovery journey but I don’t want to waste any opportunities to share.

I was warned that around day 5 that the “cardiac blues” would arrive. And they have. I am pretty teary today. I am in a lot of pain but fortunately the heart arrhythmia is starting to settle down. I was surprised to hear concern about my weight. I am 2 kilos heavier than pre-surgery. It certainly nothing to do with my eating as I am eating only 5 spoonfuls of food at meal time. It seems fluid retention is the issue.

What I have learnt on this journey so fa?

1. Ask for help. Doctors and nurses are great at knowing what the typical symptoms and recovery is but if we don’t speak up they are somewhat flying bad.

2. Ask questions. I have been scheduled so many new and additional drugs. Knowing what I am taking and why I need it helps me understand the process much more.

3. Don’t judge the journey on an hourly basis. The change and healing can be subtle but when you compare the days you realise that progress is happening, just not as quick or seamless as I would like.

4. Don’t discount the link between our psychology and physiology. The two are so intertwined. Both need to be cared for and demand equal attention.

I am holding my heart pillow. The pillow is essential for holding against your chest when standing up or sitting down. I have been getting the nurses, doctors, porters and cleaners to sign their names. I want to have a permanent record of the names of these people who have cared for me and ensured the surgery succeeds.

The encouragement and support from the Mighty has been incredibly comforting and appreciated.

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I'm new here!

Hi, my name is Notsafeanymore. I'm here because panic attacks have took control of my life since I've had covid and with the grief of losing my father to leukaemia. Chest discomfort everyday and night, constant thinking there is somtwrong with my heart because I got arrhythmia after covid and the loss of my father. Got beta blockers, stopped the arrhythmia but now I'm stuck in limbo with weird chest pain that has brought on terrible stomach throwing up, arm tingling, teeth numbing, muscle spasm, sore head, weird sensations that have me disconnected from reality that I don't feel safe anywhere anymore with these panic attacks. Started to plan for my funeral just incase there is something wrong. Doctors appointment in the morning. Wish me luck. David.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #Grief

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I'm new here!

Hi, my name is Pheonix8. I’m new to The Mighty and look forward to sharing my story.

I am a 60 year old woman. I am in a domestic relationship. I have 2 grown children, 2 grandchildren and 3 fur grand children.

I have always been a perfectionists...so change I very difficult for me.

Now my higher power (God), has a different road he wants me to travel.

In 1998, I was diagnosed with multiple Sclerosis.

In 2001, I finally left a 15 year abusive marriage.

In 2011, I survived throat cancer.

In 2013 was terminated from a 22 year medical manufacturing career, because I extinguished 22 weeks of STD.

In 2017 I left my children to "help" my 80 year old mother and her 2nd husband to be thrown out of their house in the dead of winter 1 week before Thanksgiving. We left everything because everything they had we were supposed to inherit. So at 55 years of age, we are starting over.

In March of 2020 I survived a widow makers heart attack.

In June, 2020 I had a double bypass with complications.

In December 2020 was hospitalized with arrhythmia.

In January 2022, I tested positive for COVID, can't imagine what it would have been like without the vaccinations.

I know I have more to give I am still searching for what that might be.

Then I met a wonderful lady who is very much into living in the NOW, and has found and embraces her inner child

She keeps telling me it is I side me but I have no idea on how to even begin searching. She is truly amazing and I need what she has found.

#MightyTogether

#MultipleSclerosis

#Anxiety

#Depression

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