13 months 4 days
At this point I've been waiting 13 months and 4 days for a proper wheelchair. It's been 2+ years since I've had physical therapy. My insurance covers exactly 7 sessions PER YEAR. When you've been diagnosed with Guillain-Barre syndrome and polyneuropathy (multiple nerve issues), that equals a drop in the bucket for the amount of therapy needed to get better. I've had multiple Dr's try to get me more but insurance has denied it. I'm coming up on 4 years of being bedridden, 4 years of being dependant on others for not only my needs but my son's. 4 years of passing the buck. 4 years of 'we cover transportation costs but now thar the pandemic is over you don't matter" so I can't get to appointments. In the last 18 mos I've been canceled on a lot. I finally have a case manager but I've not been able to see Dr s for over a year so certain meds haven't refilled. I understand yet wish they'd take into consideration I DON'T HAVE A WHEELCHAIR And HAVE BEEN TRYING TO GET IT SINCE JULY 2022! I've had 5 primary care providers too. Not by my own doing but because they've quit the Medi-Cal system. I'm at the mercy of Medi- cal. I can't afford to pay for private insurance. I'm not well enough to work but I'm too well to be considered disabled. WTF?!? I just want to get better for my 5yo and myself! So unhappy & very frustrated!!!