HIV/AIDS

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    Community Voices

    Moving forward can mean leaving the past behind. We’ve come so far and yet we still have so much to learn. What is something helpful you’ve learned?

    <p>Moving forward can mean leaving the past behind. We’ve come so far and yet we still have so much to learn. What is something helpful you’ve learned?<br></p>
    8 people are talking about this
    Community Voices

    Let life surprise you…what’s an obstacle you have that is holding you back from happiness?

    <p>Let life surprise you…what’s an obstacle you have that is holding you back from happiness?<br></p>
    1 person is talking about this
    Community Voices

    This gem shares so much wisdom. I grew up w/ the rhythmic, lyrical words in Dr Seuss books & enjoyed the beautiful pictures but there was so much more

    <p>This gem shares so much wisdom. I grew up w/ the rhythmic, lyrical words in Dr Seuss books & enjoyed the beautiful pictures but there was so much more</p>
    6 people are talking about this
    Community Voices

    This gem shares so much wisdom. I grew up w/ the rhythmic, lyrical words in Dr Seuss books & enjoyed the beautiful pictures but there was so much more

    <p>This gem shares so much wisdom. I grew up w/ the rhythmic, lyrical words in Dr Seuss books & enjoyed the beautiful pictures but there was so much more</p>
    6 people are talking about this
    Community Voices

    Another day, another trip to the hospital, another procedure…the fun never ends. Being what I call a “professional patient” helps but it’s still scary

    <p>Another day, another trip to the hospital, another procedure…the fun never ends. Being what I call a “professional patient” helps but it’s still scary</p>
    16 people are talking about this
    Community Voices

    What was the last health scare you had and how did it make you feel?

    <p>What was the last health scare you had and how did it make you feel?</p>
    22 people are talking about this
    Community Voices

    Dying is NOT a Pissing Match

    When reaching out to a cousin about my life-threatening illness, I was met with her text response, “Bigger problems. I have HIV”. I responded in a kindly manner offering moral support and received no further response. It's more than a week later. I know she is probably scared. So am I. However, I was quite annoyed with the one-up-manship; especially, because I know she is misinformed. Dying has never been a competition, as far as I know. Let's look at the most current scientific facts:

    With the right treatment and care, people with HIV can live a normal lifespan.

    www.aidsmap.com/about-hiv/life-expectancy-people-living-hiv

    VS

    Analyzing prognostic factors in 84 hematologic patients with invasive fusariosis, the 90-day probability of survival was 0% if patients had persistent neutropenia

    www.ncbi.nlm.nih.gov/pmc/articles/PMC8537065

    When someone reaches out to you about their life-threatening disease, get your facts straight before being unkind, even if you have your own life-threatening disease. Dying is NOT a pissing match.

    #lifethreateningdisease #lifeexpectancystatistics #compassion #DeathOfFamilyScapegoat

    6 people are talking about this
    Community Voices

    Ketamine Infusions for treatment resistant depression

    I’ve now had 6 ketamine infusions for my treatment resistant depression. I had hope, especially after the first treatment. It went so well. It felt like I could travel back in time to periods of my life where I was most miserable and let myself know things would improve.

    Technically, they have, but not due to the ketamine.

    After 6 treatments, and more than 2 weeks since my last treatment, I have lost my short term memory, I have anger outbursts, I have started self-harming again, and my suicidal ideations have gotten worse.

    I know it does help many. I’ve been in therapy constantly since 2006, many different medications, and I have had periods of improvement, but I’m in periods of major depression more than anything. And have not recalled feeling happy since before the birth of my first child 22 years ago. I lost a lot of blood with that delivery, and was borderline in need of a transfusion. They didn’t give me one for fear of HIV/AIDS back then.

    My new issue is what next? I don’t think anything else is possible. TMS is not proven as effective as ketamine and where ECT is, the permanent risk of cognitive impairment isn’t worth it.

    #feelinghopeless

    2 people are talking about this
    Community Voices

    Pain hidden and truths saved inside can fester inside and the stress can be overwhelming, so if you are hurting find someone to talk to about it...

    <p>Pain hidden and truths saved inside can fester inside and the stress can be overwhelming, so if you are hurting find someone to talk to about it...</p>
    13 people are talking about this
    Community Voices

    Part two: Tomorrow is a new day

    So as part of my journey I'm contuing to write my thoughts following my diagnosis of HIV transmitted to me by my ex partner. New to this so I'm really hoping nothing upsets people or offends, this is just my journey and I hope it means anyone else going through this doesn't feel alone right now in their journey. I wrote this as I blocked my ex from all media but then had an overwhelming sense of guilt for something I've not caused.
    __________________________________

    Why do I feel guilty for something I've not done
    When he took years of my life and all of the fun?

    I wanted to cut them out not forgive
    But my brain and the sense I have says live and let live

    Is this lack of confidence or no self worth?
    No, it's not that, what's been unearthed?

    The ride that I'm on hasn't finished just yet
    I'm sure all will come clear so I can move on, and forget

    I need to go to bed
    And forget he ripped out my heart and screwed up my head

    I was the one that they did betray
    but I know deep down; Tomorrow is a new day

    #HIVAIDS