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I AM SENSITIVE CONTENT

Who decides what is sensitive #censure

Some time ago here, in the MIGHTY , my normal regular picture, almost headset, it shows black and it says: WARNING, THIS PICTURE MIGHT CONTAIN SENSITIVE CONTENT.

WHAT? Is AI, or THE MIGHTY , talking about the picture or me?

If anything, OK, I am sensitive content.

I am dangerous, because I speak up, and I am an advocate and an activist, and REPRESENTING means a lot to me.

I AM SENSITIVE, because as an empath, I try my best to listen, but also to feel what you are going through, and what my community is going through.

I AM LOUD, I AM LIGHT, I AM MANY COLORS, I AM A LATINO/X/E, I AM AN IMMIGRANT who came to this country with no LEGAL papers, I AM A GAY MAN, who has many shades and it has not been an angel.

I AM A SURVIVOR, 38 years living/dying with HIV, 12 years CANCER survivor, living with CHRONIC PAIN.

I AM, YES< an expression of an AY AY AY AY, because my pain is always there, and even pain has a cultural connotation.

I AM FREE, but ALWAYS a SLAVE of my journey, trying to be always a GOOD BOY.

I AM EXPRESSIVE, when I have sex, and when I feel the rain and the wind over my face and body.

I AM YOURS, if you want to hear my story as part of the HUMAN LIBRARY.

I AM...who you think I AM, but also many other faces that had been part of your experience and your family's experiences.

I AM, a DREAM, A HOPE, A THORN and SEED.

LOVE YOU....because I'm sending you healing energy, and I know you might feel me, and I might give you a smile.

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What are we celebrating?! (MARCH)

national developmental disabilities month
Women’s history
National MS Education and Awareness Month
March 1-31: Alport Awareness Month March 1-31: Brain Injury Awareness Month
March 1-31: Brain Tumor Awareness Month (UK only)
March 1-31: Deep-Vein Thrombosis Awareness Month
March 1-31: Malignant Hyperthermia Awareness Month
March 1-31: Multiple Sclerosis Awareness Month
March 1-31: Myeloma Action Month
March 1-31: National Bleeding Disorders Awareness Month
March 1-31: National Cheerleading Safety Month
March 1-31: National Colorectal Cancers Awareness Month
March 1-31: National Endometriosis Awareness Month
March 1-31: National Kidney Month
March 1-31: National Nutrition Month
March 1-31: Problem Gambling Awareness Month
March 1-31: Save Your Vision Month
March 1-31: Trisomy Awareness Month
March 1-31: Workplace Eye Wellness Month
March 1-6: National Aplastic Anemia & MDS Awareness Week
March 2: World Teen Mental Wellness Day
March 3: World Birth Defects Day
March 3: World Hearing Day
March 4: HPV Awareness Day
March 4: World Obesity Day
March 5: Dissociative Identity Disorder Awareness Day
March 7: National Hospitalist Day
March 10: National Women and Girls HIV/AIDS Awareness Day
March 10-16: Patient Safety Awareness Week
March 10-16: Pulmonary Rehabilitation Week
March 10-16: Sleep Awareness Week
March 11-17: Brain Awareness Week
March 14: World Kidney Day
March 15: World Sleep Day
March 17-23: National Poison Prevention Week
March 18-24: National Drug and Alcohol Facts Week
March 20: National Native American HIV/AIDS Awareness Day
March 20: World Oral Health Day
March 21: World Down Syndrome Day
March 24: World Tuberculosis Day
March 26: Epilepsy Awareness – Purple Day
March 26: American Diabetes Alert Day
March 30: National Doctors’ Day
March 30: World Bipolar Day
March 17: Saint Patrick’s Day
March: autoimmune diseases awareness month

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Feeling broken? Only seeing your flaws? Sometimes those things we feel are flaws are actually what makes us unique, special and extraordinary!

I can get caught in that awful loop of beating myself up, only seeing my flaws, only recognizing things I haven’t done instead of giving myself credit for things I have done, getting stuck in self judgment, only seeming to hear my inner critic’s voice, I can lose all my self confidence, let my self esteem dip and things can look pretty bleak.

Over time more and more I have been able to catch this in the moment, pause, breathe, re-set, and then be gentle with myself and allow myself to shift my energy. I can then take first steps towards better self care…and reverse that repetitive loop, replace it with self respect and start to believe in myself! One situation at a time, I’m getting better … and every time I succeed it can get a little easier the next time. I can see that I have grown along my path and although it can be very hard for me to accept, there is unique beauty to the journey I have been on. I am not broken - I am strong - I have been accepting my flaws and see that as I have picked myself up over and over I have filled myself with gold!

~~~~~~~~~~~~~~~~~~~~~~~~~~

I find doing a gratitude list can help. A while back it was recommended I process a gratitude list every morning. I like to think of my blessings: roof over my head and food on the table; a car that runs and being able to afford insurance & gas for it; MY HEALTH…here I go through all my 5 senses thankful they all work, touch and feel my legs that didn’t at one point and give thanks that parts of me are healing but by bit ! I give thanks for my whole support network: great doctors & health providers, my friends, and my family!!! I find after doing this I start off the day feeling much better about myself!

What is on your gratitude list?

#MentalHealth #Depression #Anxiety #SocialAnxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #COVID19 #Parkinsonism #Concussion #BrainInjury #Migraine #Headache #BackPain #neckpain #PhysicalTherapy #HIVAIDS #PTSD #Stigma #PeripheralNeuropathy #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe

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I enjoy watching sports, which can be a distraction from my health challenges. Are there sports, shows you binge watch, or movies that help you too?

Being passionate about sports is a trait my Dad passed on and instilled in me from an early age, and watching and talking about them together was a very bonding experience we had that built over the years. When I was young I was very blessed and had the opportunity to attend a lot of games with him live: football & basketball, some baseball & hockey games, and we even went to Indianapolis for the Indy 500 races twice. His father had taken him to the big race a few times too and to many other games when he was a child, which I think had the same impact on him!

I was never a good athlete, but under his tutelage I became very interested in drama and intrigue with sports and began to understand, appreciate and enjoy all the nuances of the games: teams - their players & coaches, stats, and strengths & weaknesses; types of plays; strategies; the history of the sports; … and I adapted Dad’s favorite teams & players and we followed them very passionately, intently and took the games very seriously. To this day I can get depressed after a game my team loses, and as a kid I’d pout and be in a really bad mood, often for days.

We watched games and followed our teams, not just the games, but almost every day, as we even fought for who got the Sports page first! His excitement, curiosity and dedication were contagious.

As I got older and I moved away to other places I made the “pilgrimage” up to two hours every Sunday to watch football with Dad & on Memorial Weekend went to watch the Indy 500 with him almost every year. We didn’t even miss a minute of games, with Mom being part host, part cook & part waitress … bringing us big homemade deli sandwiches, her legendary guacamole, and yummy desserts she baked. Then during commercials sometimes we would both sprint to different bathrooms for a break, rushing so as not to miss a second of the games!

However, I recently realized I have actually tried to avoid watching big games there since he passed away. I just admitted to myself that over 3 years after he died it still can be emotional watching games in the room where we watched events together. It can be a sad & empty feeling🥲 The first games I watched without him there soon after he died were some of the few things that triggered me to cry when I wasn't processing things well yet. When I sat there in my familiar chair and our team scored I would turn to high five him and saw the empty chair he always sat on next to me and suddenly deeply felt his absence… It was one of the first ways I truly realized he wouldn’t be there to share experiences with me (physically) anymore. It hit me hard. The first time I watched a game without him I completely broke down in tears which was the strongest emotion I had experienced since he died to that point.

I realized that sharing sports with him was so much more than the games, it was something we shared together in almost a ritual format for decades, and looking back I remember how much I always looked forward to being with him for each coming game. So I still am deeply invested and tuned into sporting events and that focus can help me to take a break from pain, depression, anxiety, fear & worry. It’s all I think about for that 2 ½-3 hours, sometimes longer.

🏀🏈⚾️⚽️🏒⚽️⚾️🏈🏀

Do any of you take comfort, find refuge, a healthy escape and/or a distraction in watching sports? Or are there other things you enjoy watching like binging episodes of your favorite show? Or watching a movie trilogy over and over? Or watching thrillers that keep you on the edge of your seat, or action or drama movies that take your complete focus like tunnel vision? Or do you enjoy watching nature, animal or history channels? Was sharing them with family a part of your childhood?

What engrosses & entertains you the most? How do these affect your energy and emotions when you watch them? Do you find it a much needed window away from thinking about your health challenges like I do?

#MentalHealth #Depression #Anxiety #SocialAnxiety #LossOfAParent #Grief #Disability #ChronicPain #ChronicIllness #Selfcare #BipolarDisorder #COVID19 #Migraine #Headache #HIVAIDS #PTSD #Stigma #BrainInjury #Concussion #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe


@texassonrisa
@sparklywartanks

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I am thinking about putting together a zoom group for this MHC community on New Years Eve! We could all be together at midnight… Is anyone interested?

Recent years I have spent the night alone at home, sometimes watching the ball drop and seeing everybody celebrate together which has made me depressed, feel lonely and wishing my physical limitations didn't limit me so much! I am actually in great spirits recentky with parts of my body feeling better! yet I am aware that it might be a tough night for me. Has anyone else been thinking about this? Had this experience in the past too? I think those of us with physical limitations can have these feelings at least some of the time…does that sound familiar?

It would be a closed group with password only offered here directly to members of the group (and MHC FB group) so people can feel safe…we can chat, check in, share stories, even have a meal together (I've done this on zoom dates where we both got the same food! You can’t share apps through the screen😉 but it was a cool experience)

All that said I don’t have a zoom account and have never set up a zoom group…I am not sure if you need one, but if anyone out there can help me with this I would at least go on myself and see who joins me! We could RSVP or just show up, it could be for just 11:00-midnight, or longer and people could just drop in. I plan on smudging my apartment and doing divination readings for the new year…I have done groups where we all lit a candle or burned sage …which is a cool connection.

The idea of a group zoom just hit me yesterday and it seemed like it could be nice for some of us to connect and support each other as it can be a tough holiday for many of us! I am totally open to any suggestions of structure, things to do together, what time window works for people etc and it would really help if someone interested could set up the zoom. I know it’s very last minute but if it doesn’t work I would love to offer one every month or two (maybe on the full moon?!?)

Please tell me what you think of this, if you are interested and if you are technical and can set up things please DM me one-on-one so we don’t have to discuss it back and forth here!)

I know The Mighty had started things called Rooms awhile ago, but I gavent heard about these happening recently, and don’t know if they are still available to do, and I also think there is a way to at least do a group chat which would easier to set up…but i woukd really love to see and hear people, of course you coukd also keep your camera off! I am kind of excited that this could work, even if it’s just a handful of us!

Please chime in about the zoom with your thoughts, interests, and what you think it would “look like” that is best for you…hope to hear from many of you…

In service,
Moshe

You can email me at Justmemoshe@gmail.com

or message me through Facebook where I am Moshe Mark Adler,

I won’t put my phone here but would offer it in a DM if calls or texts work better for you…all that said if nothing else I know how to start a group text so that would be a last option but less “intimate.” I think I could figure out how to do a conference call so we could also do a phone “meeting”.

Just thinking out loud about this and was curious if it might interest others…

I am completely open to brainstorming here together as a group…

#MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #PTSD #BipolarDisorder #BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #COVID19 #Migraine #MightyTogether #IfYouFeelHopeless #CheckInWithMe #DistractMe

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The holiday season is upon us…does it make you feel joyful and happy? Or does it make you sad and depressed? It stirs up a lot for me….how about you?

Are you really looking forward to seeing family and friends? or Do you dread being alone? Do you love hearing Christmas songs on the radio or at the mall? or Do you just wish it would be 2024 already? For me it makes me feel a mixture of these…each year I go down to see my mom and family for Chanukah which created social anxiety for me this year but eventually I settled in and enjoyed the company and connections which was nice, then since I came back home at times I have felt sad, lonely and isolated! I celebrated Hanukkah weeks ago and In the past I have felt like so many others are being festive and celebrating Christmas with a decorated house, sparkling tree, and presents for all…without me …especially when I was younger! What are you looking forward to doing this weekend? I send you all blessings for a festive, joyful and special time!

#ChronicPain #ChronicIllness #physicalpain #PeripheralNeuropathy #BackPain #Migraine #Headache #COVID19 #covidlonghaul #Disability #MentalHealth #Anxiety #Depression #BipolarDisorder #Bipolar1 #Bipolar2 #BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #PTSD #PainAcceptance #Acceptance #Happiness #Selflove #Selfcare #MightyMinute #MightyTogether #IfYouFeelHopeless #Hope #MentalHealthHero

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How do you decide when to push through challenges like pain, discomfort & fatigue? OR when to listen to your body, slow down, rest, or call it a day?

Being uncomfortable and uncertain have been challenges I have faced very regularly in my life, and I have dealt with so many times that were “hard”, full of pain, made me anxious or angry, wore me down, and tested my fortitude & resilience. I used to always fight and push through these obstacles and challenges every day facing things head on. I was stubborn, determined to keep going no matter what…and I got a lot done, stayed busy and proved to myself I wasn’t a quitter and could accomplish anything I put my mind to. I certainly did grow in many ways and find out a lot about myself and what I was capable of doing, and gained confidence and learned to feel comfortable with adversity…

…Yet I did so without realizing I was pushing my body to its limit and maxing myself out! I wouldn’t pay attention when my back was screaming to be rested, my neuropathy in my legs and feet burned so much and they begged to be kicked up & treated, and/or when I had a blistering migraine that made me so sensitive to light, sound & movement, and completely drained my energy. I still pushed through.

Then something happened … I don’t remember who it was or what they said, but I had a light bulb go off, an epiphany of sorts. It changed my thinking and how I have chosen to function since then. I realized I don’t have to always be strong, determined and push myself so hard just to prove (to myself) that I am willing and able to get things done.

I can just pause for a moment, breath, and do a little personal inventory to see how parts of my body are really feeling, then if they are telling me to stop I have learned to be gentle with myself and take a break, not feel like I have to do everything on my ToDo list that day. Then I almost always find that I can just call it a day…. I can table everything left on my list til the next day or two, and my world won’t come crashing down. I have learned that I am almost always the one putting all the pressure on myself, I am the one who sets unrealistic goals, I am the one that doesn’t want to admit to myself that I have numerous challenges that require regular care and that I have limitations of what my body can do.

I am disabled and that’s ok. It’s ok to not be 100%, It’s ok to need to use a cane, It’s ok that I get brain fog & stutter, it’s ok that I have to wear obnoxiously big migraine glasses in public, it’s ok to need to use handicap parking spaces…and it’s ok if some days I don’t complete everything on my list, and instead choose to be mindful that I’m tired and pushing through would make it worse.

————————-

Yet, some days I’m tired but I still want to go on the daily walk my Physical Therapist has finally cleared me to go on, I still want to finish a project in my kitchen, join my family for a big dinner, or go to the men’s group meetings I have missed for a long while. Then sometimes I still push it and do them, but only if first I can honestly tell myself it’s not too much and that I will also choose to stay mindful along the way and just stop when it’s time to stop!

For me it’s about balance, acceptance and practicing good self care! A lifelong journey…one challenge at a time!

What have you learned about your body? Can you step back, scan yourself and let yourself rest if necessary? Please be gentle with yourselves … dealing with multiple health challenges can be tough enough, I’ve learned that my stubbornness and pride have often made things worse!

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #HIVAIDS #PeripheralNeuropathy #BackPain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #DistractMe #MightyTogether #conqueryourmind

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Combatting HIV Stigma in Women

In the battle against HIV stigma, cisgender heterosexual women face a unique and often overlooked challenge. Society’s automatic assumption that these women are promiscuous and the subsequent slut-shaming perpetuates a harmful narrative that further marginalizes them. What is seldom acknowledged is that a significant number of these women contracted HIV from seemingly monogamous relationships.

Many of these cases stem from men who, unbeknownst to their partners, engage in relationships on the down-low with other men. This failure to disclose crucial information places women at an increased risk, highlighting the urgent need for open communication and honesty.

Contrary to popular belief, the majority of HIV cases in cisgender heterosexual women result from committed relationships, including marriages. The disparity in treatment is striking – men who contract HIV are often met with understanding, while women face a barrage of judgment and stigma.

It is imperative that we shift the narrative and prioritize comprehensive studies on women and HIV transmission. Recognizing that the risk is incredibly low for women, we must challenge the stereotypes that perpetuate their vilification.

The mental health aspect of this stigma cannot be underestimated. The constant judgment and assumption of promiscuity can lead to isolation and a crippling fear of dating or disclosing one’s status to potential partners. This isolation takes a toll on their emotional well-being, exacerbating the already challenging journey of living with HIV.

Furthermore, this isolation and fear can have long-lasting effects on a woman’s mental health. The weight of the stigma can lead to anxiety, depression, and feelings of inadequacy. It’s crucial that we create safe spaces for these women to share their experiences and receive the support they need and deserve.

In the face of this stigma, there are brave advocates on social media working tirelessly to combat it with education. Unfortunately, some responses from both men and women are remarkably degrading and dismissive of these advocates’ efforts. Many remain stuck in their ignorant beliefs, refusing to be educated on the facts. This resistance only reinforces the urgency for continued advocacy and education.

Additionally, we must advocate for increased research into the dynamics of HIV transmission in these contexts. By understanding the intricacies of transmission, we can develop more effective prevention strategies and better support those who are affected.

In conclusion, the stigma surrounding HIV in cisgender heterosexual women is a deeply entrenched issue that demands our attention and action. We must challenge societal assumptions, prioritize research, and provide the support these women deserve. By doing so, we can pave the way for a more inclusive, compassionate society that empowers all individuals, regardless of their HIV status. Together, we can end the stigma and create a brighter future for everyone.

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When you are depressed or in pain what would be the most supportive thing a friend or loved one could say to you? What would be the most comforting?

I can get pretty bad social anxiety these days, and I always fear people will say “What have you been up to…?” I know they would mean well, but the honest answer would be that I've been busy going to doctors, PT & therapy appointments..and practicing self care… treating pain in four parts of my body, off & on for hours each day. But I really don't want our conversation to focus on discussing this…as I often feel a need to explain further, answer the inevitable questions and hear their concern, and often sympathy I’m definitely not looking for!

Even if people say positive things like “You look great!” I think… if they only knew how I feel INSIDE…(I have been dealing with numerous Invisible Illnesses)

Can you relate to these?

What would you like people to stop asking? What have people said that you felt was callous, unsympathetic or uncaring? What words have been the most hurtful?

When you are struggling, what can people say that would help the most? How can they let you know they’ve got your back? What if you could have someone say (or not say) anything you want to make you feel better…What would you want to hear?

Please share your responses to the question(s) that speak to you the most ….your experiences, and what you would (and wouldn't!) like to hear. I find that in hearing other members' responses to them they often could basically be telling my story and we are on similar journeys. I have found this opportunity to empathize with each other here helps me feel less alone!

——————————————————————————-

👍We just went soaring past 2,500 members!👍 It seems that I just posted about 2,222 so recently. I am humbled and grateful that you all have joined me here and are sharing this journey connecting with each other! It’s become more than I even imagined when I started this group a few years ago…let’s keep asking for support, offering it, and empathizing & being there for each other! 🤗🫶🩷🤝👏🤝🙌🤝🩷🫶🤗

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #HIVAIDS #PeripheralNeuropathy #BackPain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #mighty #conqueryourmind

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Keeping up w/ meds, pharmacy & insurance can be grueling. Yet over time I’ve embraced them. What is your relationship w/ your meds? Love? Hate? Both?

Recently I've had a change of perspective about all my meds, doctors, specialists, hospitals, psychiatrist, therapist, physical therapists, pain clinics, caseworkers, and the many types of treatments I get. I have come to be thankful that I have them all and no longer resent them, no longer resent how physically and emotionally draining they can be, no longer resent the days I have lost when I could be working…or playing! I stopped venting and complaining about them in the bulk of my conversations, and making them the focus of the (often limited) emotional energy I do have left many days.

It took awhile and some really tough and scary times…surviving two pandemics: being HIV+ in the 80’s, and many serious complications from it; and then decades later I got Covid that had me taken by ambulance to the ER with over a dozen symptoms, and having to learn how to walk again in rehab; heart surgery; multiple concussions; being in a coma for 4 hours after and accident; mental health hospitalizations…including the arrests I had during two manic episodes; and struggling with addiction. It took really stepping back away from it all and then suddenly I came to find a new perspective, came to the realization of how blessed, loved…and yes, lucky I am. I now choose to see all I deal with currently as tools, resources, and opportunities that keep me alive, help me heal, stay balanced, and I can now see how they are leading me to good health and having the opportunity to thrive.

Yes, I do have well over three dozen doctors, departments, and health care providers in my phone, and probably have seen or worked with over 20 this year, averaging 4-6 health appointments a week for most of the last year. And yes, I take 16 medications, and right now I have a few challenges that have created limitations every day, needing the assistance of mobility devices, needing rides most places and when I drive now using handicapped parking spaces. I stopped feeling sorry for myself and playing the victim and instead choose to smile and laugh during health appointments, joking about the crazy, big, obnoxious migraine glasses I wear everywhere and sharing how I can't wait to run a marathon with others who I meet that are also struggling with physical health limitations. But am I joking? Do I really see myself running, rock climbing, kayaking, going camping and getting back on my favorite hikes again? I choose to hold on to that hope and believe I can overcome the obstacles in my path.

I am realistic though. I also accept that this might be unlikely, and that I will have many of my current health challenges the rest of my life. Yet I give thanks every night for another day, the blessings I do have in my life, the relatively good health I do have in spite of it all. I choose to make sure to observe those around me at the hospital, when I go for (only) outpatient appointments, see how some are in worse shape than I’m in, hear the helicopters land at the hospital, and see the ambulances come to the ER, knowing how scary that can be! I observe other people at Physical Therapy with their head in a cage, or without a limb, I walk past the mental health ward that was my home (twice), am humbled when I read many posts of what others go through here in MHC and remind myself it COULD ALWAYS BE WORSE. With this new perspective, comes gratitude and appreciation…and I choose to smile.

Now to be honest this is a work in progress, I still can wake in the morning and feel sorry for myself after I get out of bed with four body parts hurting before my first step. I can get depressed due to having so many med changes recently. I have even called Mom in total fear before I went for a biopsy, while waiting for news from an ultrasound of something else, and having just found out a procedure I had recently might need to be repeated… and all of a sudden I realized how overwhelmed and scared I was, broke down and cried. Mom “caught me” as she has so often and uplifted & encouraged me. Then a funny thing happened later...I broke out laughing at the magnitude of it all, then walked out of the doctors with my cane and funky glasses and remembered it HAD been worse…but I’m still here!

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How do you feel when you see your pill bottles? Take your meds every day? Go to regular doctors appointments? I invite you to shift your perspective too… if you haven't already…because even if nothing changes with your health challenges, how you feel about them can make all the difference!

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #HIVAIDS #PeripheralNeuropathy #BackPain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #MightyMinute #MightyQuestions #conqueryourmind #RareDisease #BrainInjury

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