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    Having people that listen and respect us is so helpful and encouraging, so much better than having people who judge, or try to fix us!

    I am blessed to have people in my life that are there for me, sometimes just listening and asking what they can do for me, telling me that I’m not alone, letting me know they’ll be there for me, and they love me … but what can really help us feel better about ourselves is when they just say they’re proud of us. Wonderful people in our lives can regularly remind us about everything we’re going through and how amazingly well we are handling ourselves. They can acknowledge us for what we ARE doing even when we can only see and judge ourselves for the things we’re NOT doing. Sometimes they can be there just to listen to us, sometimes they can help us get our minds off all we’re going through by lightening up the conversation and not allow us to get caught in a loop of feeling sorry for ourselves.

    But we definitely can’t do this alone, things can appear insurmountable or overwhelming but if we’re lucky we have people who believe in us and are there for us when we just need them to listen and let us get our fears out in the open and talk about our pain. People can help us if they just say they feel for us and wish they could make us feel better. What I don’t think they realize is that by simply being there to walk by our side they ARE making us feel better!

    You can expand your network of support by getting up the courage and then tell people that are close to you (that don’t already know) what you are dealing with, sharing what is really happening and what you are going through and then tell them how they can help. I have found most people want to help and if they decline I try not to take it personally. It’s worth the risk to get crucial support

    #ChronicPain #ChronicIllness #PeripheralNeuropathy #Migraine #Headache #COVID19 #Disability #MentalHealth #Anxiety #Depression #BipolarDisorder #Bipolar1Disorder #Bipolar2Disorder BipolarDepression #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #Shingles #Bronchitis #Pneumonia #PTSD #Selflove #Selfcare #strength #MightyMinute #IfYouFeelHopeless #Hope #MentalHealthHero #MightyTogether

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    What are you grateful for? What can you be thankful for to keep you holding on during tough times?

    Please let's all share our blessings in life that we are thankful for. In
    dark and trying times (like right now), I try to always remember the things I am grateful for and remind myself that without any/all of them my life could be much less manageable

    I am grateful for:

    -Being alive!
    -Being able to walk, even if I need mobility devices
    -Having a roof over my head
    -Having food on the table
    -Having great doctors, nurses, my therapist, my shrink, numerous specialists and my clinic - and having the insurance to pay for them - as well as insurance to pay for my many medications!
    -Having a strong network of family and friends and always being able to know that I am loved and supported ...and
    -Having my relative health - things could always be worse!

    What are you thankful for?

    Maybe thank someone who you are grateful for and let them know how helpful they are and how much it means to you to have their support. Sometimes people don’t know how much they impact other’s lives!

    #Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Chronicpainwarrior #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #Stigma #BipolarDepression
    #ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #MyalgicEncephalomyelitis #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deaf #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #PTSD #EmotionalHealth #physicalhealth #PainAcceptance #Acceptance #relief #Happiness #TheMighty #MightyMinute #MightyTogether #DistractMe #MightyTogether #mentalhealthwarrior #RareDisease #ChronicFatigue

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    Surviving is just part of the journey…making the most of the time it gives you and realizing there can be good times despite the struggles is a gift!

    It’s not all about survival, there is a lot of living to do along the way. Although at times I feel like I am just treating one ailment after another, all day every day (which is true right now) I’ve decided why take all the time and energy it takes to survive everything unless I don’t enjoy how the time given to me by surviving is ripe for good times too.

    Recently I have mostly been homebound except to go to health appointments… doctors, PT & OT, clinics, therapy etc. and then only with a walker and the benefit of handicapped parking spots. But I try to continue to celebrate the gifts I have in life, be thankful for the blessings I have that make life just a little more bearable and remind myself of what I’ve been through, how I’ve survived and what I’ve learned from these experiences. If I consider all this, then I must be a very wise man 😉 I may have dropped out of college but I have a Masters degree from the School of Hard Knocks … the diploma is not needed, I know I have accomplished it and need no reminder…I’m still alive after all!

    Tough times have given me the chance to tap into my inner strength and I’ve also grown along the way. I don’t have to wait to celebrate the good times when I am experiencing some right now despite what I’m going through!

    Thank you all for the love, support, thoughts and prayers, I certainly couldn’t have done this alone!

    #Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #Bipolar2Disorder #Bipolar1Disorder #Stigma #ObsessiveCompulsiveDisorder #RareDisease #AspergersSyndrome #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #ChronicFatigue #DistractMe #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #PTSD #EmotionalHealth #physicalhealth #PainAcceptance #Acceptance #relief #Happiness #Selflove #Selfcare #MightyMinute #MentalHealthHero
    #TheMighty #InsideTheMighty #MightyTogether #DistractMe

    37 reactions 8 comments


    I know for a fact that I am not alone in feeling this way. The need to protect our loved ones from other people in our lives because well, a lie is certainly better than the truth; even though, honesty is one of our core values. It can cause us to become conflicted within ourselves. We can even start to doubt ourselves, gaslight ourselves and confuse ourselves into thinking we are crazy and just 'bad' people. However, perhaps, it is just the way circumstances are at that given point in time. Circumstances do not define us as 'good' or 'bad'; sometimes, circumstances are just that they are there. Then, why do we struggle to accept the circumstances for what they are? Perhaps, we hold expectations that the outcome should be different or could have been different and we set out to internalize and blame ourselves. Or perhaps, we externalize and blame others without point a finger at ourselves. What is the point of us blaming each other just to escape the feeling of 'acceptance'. Why is acceptance so hard?

    We lie to certain loved ones in our life about other loved ones because we want to protect one from the other; maybe we know each of them so well that we know they would not get along if we were to introduce them to each other. The pain of our individual friendships not becoming interconnected or turning into mutual friendships would cause us immense pain and suffering that we avoid ever intermingling our relationships. Then, is it about them or is it really about ourselves? Are we trying to protect ourselves and this is just one of our defence mechanisms? We try to protect the privacy and confidentiality of our individual friendships to the point that we risk our own integrity and we risk ourselves being perceived as dishonest and/or as pathological liars. When in fact, we never intended that. However, let me be brutally clear, our intentions are invisible and subjective; they are inside our heads and nobody can read our thoughts or know what we are thinking. They only go off what their conscious mind 'sees' in front of them. When we are so lost in our minds, we are not present in the moment. We do not even take note of how we look to anyone outside our head. They probably see someone that is lost, confused and just in outer space. This can cause them to make assumptions and judgements about us, which can be false or negative. And then we become so unfocused that we forget to communicate or socialize, which leads to further misunderstandings. Before we know it, we get to misperceived to be something we never even were. We either get so hard on ourselves (internalizing) or we become extremely bitter, angry, hateful (externalizing) and just spiral out of control. This causes debilitating symptoms.

    What a utopian world it would be if we could all communicate telepathically. But the truth is, majority of us do not have that so-called 'superpower'.

    In an era where we are bound by technology and rely so heavily on these smartphones, it is easy to forget to use our other senses also and do manual things like we used to. We get so programmed to using a device that we lose our autonomy and independent and we start allowing the devices to control us and decide for us so we do not have to think. This seems rather convenient or even easy because we do not have to think; thinking takes a lot of energy and time right? However, thinking is important because how else will our decision making be rational? How else can we do self-reflections and hold ourselves accountable so we do not reach a stage of utter despair? We're all prone to errors and omissions, machines are too. Nothing is perfect and never will be. Striving for perfection and actual perfection are completely different things.

    We've become so used to working independently, we forgot how to work as a group or team. We focused so much on being competitive, that we forgot how to be collaborative. We tried to make things convenient and easy that we forgot the value of 'hard work' and determination and dedication or commitment, which includes loyalty. We used to actually think about long-term plans and goals, now everything is so spontaneous and impromptu-based. As a generation, is this what we want to teach our future generations; that this sort of laisse faire attitude or 'take it easy' mindset is okay? No wonder, there is so much conflict in the world involving nuclear weapons like guns, bombs, violence and so much unnecessary bloodshed. We do not even bother to stop, PAUSE and think before they proceed to destroy each other. They do not even bother to TALK in good faith, they do not even bother to communicate and use their words to try and resolve their conflicts and do not even effectively communicate their needs and interests to each other via language (including body language). We have reached a stage of trust issues due to spending so much time on our phones and in our heads that we have lost touch with each other. Go into a university or college campus, you see people sitting in close proximity or vicinities to each other (next to each other) and they are all on their phones. What happened to saying hi to passing neighbors on a friendly neighborhood walk? Or even giving a friendly smile when you pass by someone? Now, if you do that, people think you are a creep? Again, judgmental.

    Why can't we go back to the days when we were curious and actually interested to learn from each other and get to know each other via TALKING? In dating, relationships, we are in a instant physical attraction stage where you see someone that is physically good looking and you proceed to hook up and bang them; night gone, action gone and you try to erase it from your memory. We live in a culture of short term memory loss being romanticized. People use drugs and alcohol to try and erase their memories so they do not remember what they did last night to escape accountability? No wonder, our rate of HIV and our blood disorders is skyrocketing. It is not even about contraception or safe sex, because those still have risks. However, intimacy was once valuable and something sacred; now, it's lost all meaning - which is why more and more people are CHOOSING to remain single and abstain from sexual activities including dating. There is no point because nobody talks anymore. Our culture has become so anti-social? For the introverts, this is utopia -for the extroverts? This is mental torture.

    "Let's go back to simplicity; I've been missing me" - Jess Glynne, Don't be so hard on yourself


    My undiagnosed illness symptoms

    Here are my symptoms at the moment:

    Weight gain

    - Previously I was always on the thin end of the spectrum now on the overweight boundary

    - Have been passively been trying to loose weight for 18 months (usually I barely have to try to loose weight)

    - Average exercise 30-60mins/ day

    - I look pregnant

    - None of my clothes fit anymore

    Brain fog

    -Can’t concentrate

    - Poor memory

    - Feels sludgy, no smooth thoughts

    - Almost constant headache

    Frequent illness/ infections

    - Getting ill once a month with a cold/ flu something like that

    - Have developed nasal polyps as a result

    - Recovery slow avg 2-3 weeks which means I’m ill 50-70% of the time

    Absolutely exhausted

    - Could sleep for England Sometimes struggle to get to sleep

    - Can easily sleep well over 12hrs but up to 24hrs at a time

    - Difficult to get up in the morning, everything heavy

    Loss of libido

    - 3-4x per week down to 1x per month

    Nipple discharge

    - Started in January 2022

    - Can be clear, milky or clear with yellow in it

    - Often spontaneous after a shower

    Numbness and tingling in hands and fingers

    - Palm of right hand feels like ice is being rammed into it. Almost feels like the nerve is exposed and cold but it doesnt hurt and there’s not anything I can find that helps

    - Left hand pinky and ring finger often go numb

    - Often comes in waves where it will be almost constant for a few days or weeks then subsides for a bit

    Temperature sensitivities

    - Often too hot or too cold and struggle to get to the right temperature without swinging too far the other way

    Loose, clicking joints

    - My ankles are always giving way and often hurt for days after a particularly bad roll

    - Many joints click when I move and I sound like a 1 man band, in particular my knees

    - The arch of my right foot clicks but I don’t think there’s any joint or anything there to click?

    Skin changes

    - Lots of bruises that I don’t know where they came from

    - Spots particularly on chest also more acne on my face than I had during teenage years

    - Fragile skin that tears if I take a plaster off

    - Purpura and pietache

    - Stretch marks on my sides and thighs

    Bowel changes

    - Swing between constipation and almost loose/ diarrhea

    Hair thinning

    Slow healing of wounds

    Recent additions

    - Longer, heavier periods (14 days and bleeding through onto clothes started 6-9 months ago)

    - Twitchy muscle thing

    - Can feel blood in my legs

    - Intermittently feels like I have a UTI for a few hrs then it goes away

    - Bone in my lower leg hurts (both sides)

    Test results

    - Normal pituitary MRI

    - Nasal polyps found on MRI

    - Normal ovaries (NOT PCOS)

    - mild anemia which worsened with heavier periods

    - Normal WBC even when ill

    - High IgA and IgM with normal IgG and recent EBV infection

    - Negative ANA

    - intermittently elevated liver enzymes, negative liver antibodies

    - Negative HIV

    - TSH mid of normal range, T4 on lower end but normal

    - CRP normal, ESR borderline

    - high Phosphate swings between high and low but usually low and rarely normal

    - Intermittently but usually high estrogen, DHEAS, testosterone, cortisol, LH

    - Low good cholesterol (slightly), all other cholesterols are normal

    - Normal vit D, platelets, urea, electrolytes, albium, calcium, HbA1C, B12

    If anyone has any suggestions of things to look into that'd be really helpful.

    #Undiagnosed #chronic #ChronicIllness #chronicallyill #searchingforanswers #Gaslighting #Answers #Diagnosis #Testresults #symptoms

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    The article below is full of great ideas on how to find a good new doctor…please add your own experiences, tips and suggestions

    Great article that talks about the importance of good bedside manner, doctors that listen, checking your insurance at the start of your search, asking good questions and do your homework of course! It has lots of good ideas especially at the end under “Finding a good fit”…like…

    “…During that first visit, think about how the doctor and office staff make you feel, HHS advises. If the doctor doesn’t make you feel comfortable, show respect for what you have to say, know your medical history, and spend enough time with you, then they might not be the one for you.”

    #MentalHealth #Depression #Anxiety #Disability #PTSD #Selflove #Selfcare #ChronicIlless #ChronicPain #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #COVID19 #Migraine #Headache #PeripheralNeuropathy #Concussion #BrainFog #ParkinsonsDisease #balance #EssentialTremors #Memory #Addiction #AddictionRecovery #HIVAIDS #longtermsurvivor #ADHD #RareDisease #ChronicFatigue #IfYouFeelHopeless #Hope #Faith #FuriouslyHappy #Belief #Love #help #GettingHelp #InsideTheMighty #TheMighty #MightyTogether #DistractMe

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    Concussion, Migraines, major Balance issues, Parkinson’s, tremors, Neuropathy, shoulder/neck pain, back pain, brain fog, poor memory, and no appetite.

    (PART ONE) Please send me prayers, good vibes, healing energy and keep me in your thoughts. It would really be appreciated. It is very hard for me to ask for help…but bedrudgundly I have been parking in handicap parking spaces and recently began using a walker. To be honest I’ve had to! I had four falls at the end of December and I am constantly catching myself from falling over and having to regain my balance and re-direct myself. It is very challenging in my apartment where I have no support and very often find myself leaning against walls and always being very conscious to make slow turns part by part like a clock, and get up from a sitting position very carefully the special way I was taught.

    Just this past February I was diagnosed with Parkinson’s with Essential Tremors and balance problems, and had to stop a med I took before bed for over 10 years that may have been causing it and then without it I didn’t get a good night’s sleep for over a month and woke up 3-4 times every night.

    Two and a half months ago I had a bad fall at my mom’s, scared her half to death and injured my neck and shoulder. I had just started PT for that when I had another big fall … hard, and my head snapped back as I hit the ground. Later that week I was diagnosed with a concussion and I have seen 5 doctors and had about 10 appointments so far since then and been to a concussion clinic. Then I saw another Neurologist and he confirmed what another said…that my symptoms from my concussion likely will last up to 6 months!!! Thankfully it’s already been 6 weeks but there is 4.5 months ahead. But he was optimistic about the progression I’ve had and said I am on the Path to Recovery! But it sure is a rocky path!

    Other symptoms I have had are really bad brain fog and memory issues which have left me having to stop and take a long break to find the right words or even remember where I am in a conversation, and having to look up the spelling or meaning of simple words. These two things are very scary and embarrassing…(please continue to Part Two below)

    #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #Selflove #Selfcare #Concussion #balance #ParkinsonsDisease #EssentialTremor #PTSD #COVID19 #Migraine #MigraineBrainFog #Memory #HIVAIDS #longtermsurvivor #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #TheMighty #MightyMinute #MightyMoment #MightyTogether #DistractMe #IfYouFeelHopeless #Hope #relief #Love #PeripheralNeuropathy

    51 reactions 12 comments
    This photo may contain sensitive content.

    Concussion, Migraines, major Balance issues, Parkinson’s, tremors, Neuropathy, shoulder/neck pain, back pain, brain fog, poor memory, and no appetite.

    (PART TWO - please read Part One above first)

    …and the Neuropathy and Migraines I already had have gotten much worse. I had started a new daily med for my migraines and I was having much fewer and less intense ones whenever I did have one. But since the concussion I went from only 4 a month back to 12 migraine days in December. They can really hijack a whole day from when I wake up til bedtime, with bad light and sound sensitivity leaving me in the dark with no sound and very sensitive to movement. I have had Neuropathy since I first started my HIV cocktail in 1999 but it had gone from being bedridden to manageable. Since the concussion I have struggled even before I got out of bed, and I also have no appetite at all. I was about 205 before when I got Covid two years ago but weighed in at 192 when I got out of the hospital and rehab where I did PT and OT but I just weighed in at 178. This is too much weight loss!

    This week I started PT for movement /balance and will do so 2x/wk for 8 weeks plus OT. I have been doing the exercise I was given so far 3x/day. (Please see the Update at the bottom about a new fall recently that was probably another concussion). And with the newest med I’m on I have gotten some good night's sleep. Every 2-3 nights but still some are better than none. I use a walker everywhere I go for necessary support and have started drinking two Ensure drinks a day to get protein I need with limited eating.

    I definitely am not a patient person but this 6 month scenario has me putting up with challenges for 4.5 months more and adapting to my limitations. When it’s not one thing, it’s another. It’s really helpful that I have had serious pain and lived with other limitations much of my life, so sadly it’s not unfamiliar ground and I just hang on. I enjoyed watching football this weekend while stuck in my lazyboy recliner like usual and tomorrow I will park in a handicap parking spot and use my walker to get to yet another appointment. I try not to dwell on the limitations instead I choose to remember I am on a Path to Recovery and I won’t be like this forever.

    UPDATE: Sadly, I was going to post this 3 days ago, but just fell again and face-planted and hit my head very hard. I have a gash under my eye in the shape of my glasses which rammed into my face. I cut my lip pretty badly and both places are very swollen and bruised including a nasty black eye. Just the week before my Neurologist was so happy to see I was using a walker because he said “I’m glad you’re using it because the last thing we want is for you to get another concussion” I fear (and feel) that is what I just did!

    #MentalHealth #Depression #Anxiety #Concussion #ParkinsonsDisease #ChronicPain #ChronicIllness #Disability #Limitations #Selflove #Selfcare #COVID19 #Migraine #PeripheralNeuropathy #HIVAIDS #PTSD
    #BipolarDisorder #BipolarDepression #Bipolar1Disorder #Bipolar2Disorder #ADHD #Tremors #balance #fall #TheMighty #MightyTogether #MightyMinute #IfYouFeelHopeless #Hope #Love #Belief #happy #DistractMe #BrainFog #Memory

    36 reactions 12 comments


    My ex cheated on me while I was pregnant with his child, it was 3 months ago but I’m due in February and I’m afraid to let someone else in my life, I’m afraid to be in a relationship with someone else like any type of relationship even sexual, I’m too scared of that bc my ex gave me hiv, even tho I take my medicine and I’m undetectable right now, I don’t see myself have sex or being in a relationship with someone but I want to have someone to cuddle, to talk too,to watch movies and to love but idk. Is it wrong it’s taking me so long to get over it? I’m scared to be with someone thinking,what if they hurt me,what if they don’t accept I have a child with someone else or what if it’s bc I have hiv or what if I never find the right person

    2 reactions 1 comment

    Is Marijuana Permitted in Connecticut ?

    Marijuana is legal for both recreational and medicinal purposes. Connecticut is late to the marijuana legalization debate. Massachusetts, New York, New Jersey, and Maine have all relaxed their marijuana laws far ahead of Connecticut.

    Legislation's Evolution

    Governor Dannel Malloy decriminalized cannabis possession in 2011.

    Governor Malloy of Connecticut signed into law a medical marijuana programmed for his state in 2012.

    Governor Lamont signs Senate Bill 1201, legalizing's recreational cannabis, in 2021.

    Conditions of Eligibility

    To qualify for a medical marijuana card in Connecticut, patients must be 18 or older, or have a caregiver who can access cannabis if the patient is a minor or adult who cannot buy/grow for themselves.

    Debilitating medical conditions in adults include:

    Cancer (Effective 2012) Glaucoma (Effective 2012) Possibility of Human Immunodeficiency Virus infection or Acquired Immune Deficiency Syndrome (Effective 2012) Parkinson's Illness (Effective 2012) Multiple Sclerosis (MS) (Effective 2012) Spinal Cord Nervous Tissue Damage with Objective Neurological Indication of Intractable Spasticity (Effective 2012) Epilepsy (Effective 2012) Cachexia (Effective 2012)

    Debilitating Medical Conditions for Patients Under the Age of 18 include:

    Cerebral Palsy (Effective 2016) Fibrosis of the lungs (Effective 2016) Intractable Spasticity Caused by Irreversible Spinal Cord Injury (Effective 2016) Epilepsy with severe manifestations (Effective 2016) End-of-Life Care for a Terminal Illness (Effective 2016) Uncontrollable Intractable Seizures (Effective 2016)

    Medical marijuana laws in Connecticut


    Patients and caregivers who have registered may each have up to 5 ounces.

    For personal use, those 21 and older may have up to ounces of cannabis, grams of concentrate, or 750 milligrams of THC.


    Beginning in October 2021, patients who use medical marijuana will be able to grow their own cannabis.


    If a patient uses marijuana in a public setting, such as: A motor vehicle, a school bus, or another moving vehicle, the legislation does not apply.

    1. While working

    2. While on the premises of any public or private school, dorm, college, or institution.

    3. Within a marijuana dispensary.

    Quick Steps to Get a Connecticut Medical Marijuana Card?

    The Department of Consumer Protection is now in charge of the cannabis sales in the state according to SB 1201.

    Schedule a consultation with My MMJ Doctor.

    Complete the online form to schedule a consultation with My MMJ Doctor. We have a group of qualified medical professionals who specialize in medical marijuana.

    Show up for the appointment.

    A certified medical expert will establish a video conference with you at the time you specify after you submit the form to review your medical issues.

    Join the state's registry.

    You must register with the DCP as soon as you receive the recommendation letter. Patients cannot access the online certification system until they have registered with the DAS Business Network.


    Only Connecticut residents who meet the requirements are allowed to possess cannabis and purchase it from licensed dispensaries, according to Connecticut state law. Reciprocity is not available to residents of other states.

    To know more , Click here :