Hypoadrenalism

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    Delicate Little Petal - living authentically with chronic illness in a thorny world

    www.delicatelittlepetal.com

    Hi Everyone

    I'm excited to share my new project with you - writing about my new life with multiple chronic illnesses and invisible disability.

    I feel like we frequently hear inspiring stories about people with illnesses or disabilities when they can pack their diagnoses into neat little boxes and when they have already overcome great challenges in their lives through hard work and a clear treatment plan. However, we rarely discuss the messy stage that precedes this, in which the person has to fight, sometimes for years, to have their symptoms taken seriously, to find treatments that work for them, and to contend with the impact that their disability has on their identity and relationships.

    My hope is that through telling my story I can help others with complex health challenges feel less alone. Especially those who don’t yet have clear diagnoses, or those who feel that they don’t quite fit the label of disabled or chronically ill, despite significant physical or mental limitations.

    It would mean so much to me if you would give it a read and let me know what you think! I welcome all respectful questions and comments.

    P.S "delicate little petal" was my nickname growing up because of my extremely sensitive skin which was always covered in bruises and burst blood vessels!

    #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Fibromyalgia #Gastroparesis #TemporomandibularJointDisorders #Asthma #Anaphylaxis #MastCellActivationDisorder #PremenstrualDysphoricDisorder #Hypoadrenalism #Migraine #OrthostaticHypotension #SinusTachycardia

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    See full photo

    Delicate Little Petal - Living authentically with chronic illness in a thorny world

    www.delicatelittlepetal.com

    Hi Everyone

    I'm excited to share my new project with you - writing about my new life with multiple chronic illnesses and invisible disability.

    I feel like we frequently hear inspiring stories about people with illnesses or disabilities when they can pack their diagnoses into neat little boxes and when they have already overcome great challenges in their lives through hard work and a clear treatment plan. However, we rarely discuss the messy stage that precedes this, in which the person has to fight, sometimes for years, to have their symptoms taken seriously, to find treatments that work for them, and to contend with the impact that their disability has on their identity and relationships.

    My hope is that through telling my story I can help others with complex health challenges feel less alone. Especially those who don’t yet have clear diagnoses, or those who feel that they don’t quite fit the label of disabled or chronically ill, despite significant physical or mental limitations.

    It would mean so much to me it you would give it a read and let me know what you think! I welcome all respectful questions and comments.

    P.S "delicate little petal" was my nickname growing up because of my extremely sensitive skin which was always covered in bruises and burst blood vessels!

    #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Fibromyalgia #Gastroparesis #TemporomandibularJointDisorders #Asthma #Anaphylaxis #MastCellActivationDisorder #PremenstrualDysphoricDisorder #Hypoadrenalism #OrthostaticHypotension #Migraine #SinusTachycardia

    Post
    See full photo

    Delicate Little Petal - Living authentically with chronic illness in a thorny world

    Hi Everyone

    I'm excited to share a new project I've been working on - writing about my new life with multiple chronic illnesses and invisible disability.

    I feel like we frequently hear inspiring stories about people with illnesses or disabilities when they can pack their diagnoses into neat little boxes and when they have already overcome great challenges in their lives through hard work and a clear treatment plan. However, we rarely discuss the messy stage that precedes this, in which the person has to fight, sometimes for years, to have their symptoms taken seriously, to find treatments that work for them, and to contend with the impact that their disability has on their identity and relationships.

    My hope is that through telling my story I can help others with complex health challenges feel less alone. Especially those who don’t yet have clear diagnoses, or those who feel that they don’t quite fit the label of disabled or chronically ill, despite significant physical or mental limitations.

    It would mean so much to me if you would give it a read and let me know what you think! I welcome all respectful questions and comments.

    www.delicatelittlepetal.com

    P.S "delicate little petal" was my nickname growing up because of my extremely sensitive skin which was always covered in bruises and burst blood vessels!

    #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Fibromyalgia #SinusTachycardia #OrthostaticHypotension #Migraine #TemporomandibularJointDisorders #Asthma #Anaphylaxis #MastCellActivationDisorder #Gastroparesis #PremenstrualDysphoricDisorder #Hypoadrenalism