Orthostatic Hypotension

Join the Conversation on
Orthostatic Hypotension
1.1K people
0 stories
64 posts
  • About Orthostatic Hypotension
  • Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
    Newsletters
    Don’t miss what’s new on The Mighty. We have over 20 email newsletters to choose from, from mental health to chronic illness.
    Browse and Subscribe
    What's New in Orthostatic Hypotension
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Community Voices
    Community Voices
    Community Voices
    Community Voices
    Community Voices
    Community Voices
    Community Voices
    Community Voices

    I'm new here!

    Hi, my name is Carli. I was diagnosed with Orthostatic hypotension in 2017. I knew I had it - my spouse was diagnosed with MSA in 2010. His main symptom has always been OH. My doctors searched and searched for answers to my OH - and all they could find was a hypertrophic adrenal gland, which they tested over and over again. My cortisol and ACTH was dreadfully low, and my endocrinologist decided to do a carotid artery ultrasound on my neck. They found nodules and biopsied them. They turned out positive for Papillary thyroid cancer, and I had surgery. 2 years later, my diagnosis has changed - from OH to POTS. Before my surgery my heart rate hit 176. Now, my high is 118. Still working on it. But I’m thankful my doctors never gave up! My symptoms were total exhaustion, hot and cold, and weight loss. They’re the same symptoms my spouse has, with MSA, and now I see the progression. POTS, OH, MSA. Best, Carli

    #MightyTogether

    #OrthostaticHypotension

    #ThyroidCancer #POTS

    #PapillaryThyroidCancer

    2 people are talking about this
    Community Voices
    Community Voices