Medical needs an overhaul
I was recently diagnosed with orthostatic hypotension with labile blood pressure. The cardiologist told me not to stand too long or sit too long. Wear compression socks and increase hydration. Can’t increase salt intake.. can’t take any medication. Cardiologist said I should see a neurologist because he can’t figure out why I have this.. I am 58 years old.. this condition is found in either young or older people. Three weeks later the neurologist office gets in touch and can’t get me in until October! Wow it’s hard to get answers! I had a tilt table test October 2022. Plus I broke my wrist and had surgery.. my OT thinks I have CRPS.
What other tests should I be having? How can I advocate for myself? Do I just sit around and wait?
I’m really frustrated with the medical system..
I think I may have EDS.. but I don’t know..
I know this is a long post so thank you for reading!
Any advice would be welcomed 💚