Polycystic Ovary Syndrome (PCOS)

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Polycystic Ovary Syndrome (PCOS)
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    Community Voices

    New Meds

    I’ve been relatively stable for a while now, and had gone 9 months without any self-harm. Then I started hormone therapy, and it’s been kicking my butt for the past week or so. I got so angry that I punched our refrigerator multiple times, snapped at the kids, and then got so angry at myself that I self-harmed again. I may have to take this stuff for *months* to fix a physical problem (or until I lose 30-50lbs), but it’s so disheartening to realize how much it counteracts my antidepressants. AND I just learned I also have PCOS, and will likely need to get on medication for that, as well.

    I’m just feeling so defeated and hopeless. I know that I have SO much to be thankful for, and I am, and that my health could be much worse, but right now it’s really hard for me to focus on those positive things. My heart/chest physically hurts, and I just keep wanting to stop breathing, even though I don’t want to die, necessarily, I just want to stop feeling like this.

    Anyway, I know I’ll be okay. I just needed to vent a bit, because I don’t really have anyone to talk to.

    #Depression
    #Anxiety
    #BorderlinePersonalityDisorder
    #PolycysticOvarySyndrome

    12 people are talking about this
    Community Voices

    Relapsing

    Hi, I'm 23 and have fibromyalgia, PCOS, depression, anxiety and am really struggling. I got my fibro diagnosis 2 years ago but around that time i was dealing with a break up, grieving a grandparent, in the middle of a pandemic and dealing with final year of college.

    Since my life has calmed down slightly, pieces coming back to place, the reality of my diagnosis is kicking in as well as the knowledge of future struggles the PCOS will inevitably cause. The reality of this fibro never going away, that every day of my life will be spent in pain with mood swings, constant fatigue etc etc.

    This kicking in of reality has brought me back to a bad place that I have doing relatively well to avoid. I broke my 85 day streak of avoiding harmful actions toward myself today. I feel so disappointed in myself, I'm an adult why can't I stop myself from doing this shit.

    I hope this is okay to post I just need some advice. I feel really lost. I work as an ID nurse and have started working part time to give my body a break but even the fact that at 23 I had to go part time makes me feel like a huge failure.#Fibromyalgia #PCOS #struggling #scared #Relapse

    1 person is talking about this
    Community Voices

    Favorite Easy/Budget Meals

    Whether we’re struggling with depression, chronic illness, or pain, many of us rely on meals that are simple to put together. I’ve recently come up with a couple that I wanted to share, that are also somewhat affordable.

    1) “Fancy” Ramen: Okay, the “fancy” is a bit tongue-in-cheek, because we all know that dry, packaged ramen is far from fancy, really cheap (under $0.50), and not exactly healthy. However, if you add a package of steamable veggies (microwaveable and about $1), and a 10-12oz can of chicken (about $2.50), you get a filling, relatively nutritious meal of about 4 servings, for under $5, and very little prep.

    2) Easy Chicken salad: Okay, I cheat. I buy the chopped onions and celery from the store. They are a bit more pricey, but if stored in the freezer, they can go pretty far. The great thing about chicken salad is how flexible it is. Start with canned or precooked chicken, add some mayo or whip, and then however many ingredients you feel like adding. I’ve found that celery, red onions, dill relish, some onion powder, garlic powder, and black pepper, seem to work fine for me. If I feel up to halving grapes, or hard boiling and chopping eggs, then I’ll add those, too, but it all depends on how much energy I’m able to expend at the moment. I like this, because there’s no prolonged standing by the stove, and I can decide how much chopping to do. Also, 12oz chicken, about 1/8-1/4 cup red onions, 1/8-1/4 cup celery, and about 12 grapes, made enough for 4 sandwiches for me.

    What are your go-to easy and/or budget-friendly meals?

    #Depression
    #Anxiety
    #BorderlinePersonalityDisorder
    #Fibromyalgia
    #PolycysticOvarySyndrome

    15 people are talking about this
    Community Voices

    Fear

    I fear my (not so) monthly periods. The pain is so bad that I end up unable to walk as the pain travels down my upper legs. I had to crawl on the floor to get to the washroom during my last period.

    My doctor tried me on the pill and it made my mood so terrible that I was in the worst depression episode I almost ever had. I stopped taking that quickly.

    I’m just feeling like I dread my next period as I’m afraid to fight through the pain.

    #PolycysticOvarySyndrome

    6 people are talking about this
    Community Voices

    Trying to accept the facts #Acceptance

    Well I am definitely in a flare. I am so sort of breath and it is very hard to eat. I still have to work and do all the normal stuff in life so I am just gonna take the best care of myself as I can and take my meds and get plenty of rest every day after work. It is just so hard. I can’t hardly stand it. I just want to be healthy again. I want to be able to go out and run like I used to. And to stay busy like I used to. It has been years since I could…and it is still very hard to accept. I am not sure if I ever can which keeps me very depressed. #Sarcoidosis #PolycysticOvarySyndrome #HypothyroidismUnderactiveThyroidDisease #MyalgicEncephalomyelitis #ChronicMigraineSyndrome #Depression #Anxiety

    4 people are talking about this
    Maison Fioravante

    Navigating a Pelvic Mass and Chronic Health Issues in a Post-Roe USA

    Hi, there fellow humans, I’m Maison. My pronouns are she/her, I am a 26-year-old cisgender (identifying as the sex I was assigned at birth) woman and I have been living with multiple health conditions my entire life including but not limited to: severe widespread chronic pain, disk herniation, and lower back arthritis (as well as in some other places), PCOS, lymphatic issues, chronic wounds, and most importantly, it seems, a rare and still undiagnosed genetic overgrowth syndrome that affects my right leg and foot since birth. My overgrowth syndrome has also caused some overflow of my adipose tissue that composes my leg into my pelvis. On June 24, 2022, as most of us with uteruses know, the United States Supreme Court abolished federal protections for abortions that were previously protected under Roe v. Wade which came into effect almost 50 years ago on January 22, 1973. Since (formerly) being in place, not only cisgender women, and people of other gender identities with uteruses, have had the federal right and protection to get an abortion dependent on state laws for certain gestational periods of pregnancy. However, since it has now been overturned, abortion laws are up to each individual state. Prior to Roe v. Wade being recently dismantled, many states had “trigger” laws, which, according to Wikipedia’s definition, is a “nickname for a law that is unenforceable but may achieve enforceability if a key change in circumstances occurs.” Ever since I was a little girl, I have dreamed of becoming a mother, and hopefully having the ability someday to carry at least one of my own children someday if my health issues allow me. I felt comfortable until recently, to know that if goodness forbid, I would need to terminate my pregnancy for any reason (not that I would want to unless absolutely necessary), including for my health and well-being, my rights to that abortion were protected and basically guaranteed in my state of Pennsylvania. At the moment, abortion rights are still protected under Pennsylvania law, but our future as Pennsylvanians is hazy as we are expecting a new governor come election time, and each candidate has very different opinions on abortion. If we consider just Democratic and Republican candidates, our democratic candidate, Josh Shapiro, is pro-abortion rights, and our republican candidate, Doug Mastriano, has proven his views to be highly against upholding abortion rights for Pennsylvanians. Speaking more about my personal health, I had always thought for a long time that I would be able to not be considered a high-risk pregnancy, albeit I was diagnosed with PCOS, (a condition which causes cysts on the ovaries as well as hormonal issues and oftentimes infertility in those who have it), at age 14. I had experienced heavy and extremely painful menstruation since starting to menstruate around age 10. I remember being at a gynecologist appointment with my mother, maybe around the age of 16, and having a more in-depth discussion with my former OBGYN and my mother (who I am so incredibly close with to this day as she is not only my mother, but my best friend and full-time caretaker) asking if I would be able to have children someday and my doctor had replied that it was more than likely. However, as time passed and my other health issues (like my overgrowth syndrome that affects my leg continuing to grow as overgrowth syndromes typically do, etc.) continued to make themselves more well known, I started to gain an immense amount of doubt about my possibility of becoming a biological mother carrying my own child. Flash forward to now as a 26-year-old woman. I would have no problem when the time is right to have children with options such as surrogacy or adoption, but I still cling to the hope of being able to at least try and carry my own child. Those hopes were somewhat crushed when I heard that our Supreme Court had abolished federal protections for abortion by dismantling Roe v. Wade. The day that it happened, I had a major news network channel on television broadcasting a talk show, and it suddenly went to a breaking news segment: Roe v. Wade no longer existed in 2022 America. I grabbed my phone (as my boyfriend lives in England and I wanted to show him what was going on) to record the television while half-screaming expletives in disbelief. At that moment I knew things were going to change across the nation and not for the better for people with uteruses. Since the ruling happened, I’ve really begun to ponder my future, which has been accompanied by some tears that weren’t all based on the chronic pain I feel. I asked myself a lot of questions, played out scenarios in my head, and the list goes on. In truth, I cannot deny that this whole ordeal scares me for many reasons. It scares me for the countless people this decision will affect, especially minority communities (as minorities of different types are statistically and historically most likely to be affected) like people of color, those with disabilities and health issues, LGBTQ+ individuals. I identify as pansexual and queer (although in a “heterosexual presenting” relationship) and am disabled. As stated previously, ideally I would like to carry at least one of my own children. Whatever happens after that is left to some semblance of fate. But what happens if I get pregnant someday? If I do, goodness forbids I need to terminate my pregnancy for some reason and my state changes its course on abortion rights protocols. This is why voting is integral as well as protesting and speaking our minds to fight for our rights. We as Americans need to make sure to do our research before it is time to vote for new persons in office and make sure they will fight for our right to abortion and other basic human rights, we need to show our governing body that we will have voices heard. I am very much for the sentiment of “my body, my choice” as I couldn’t even imagine telling someone else what to do with their body and their health because of my personal views. People like me, and anyone really, should not be denied the choice when it comes to abortion, because abortion is truly not an easy choice to make regardless of the reasoning. I should be allowed to try and carry my own child, and if I need to terminate that pregnancy for my health and well-being, it should be thus. My fingers are crossed for the best, and you can be assured that I will be voting come November. On a final note, I would like to add this: people in America with uteruses, and those without who stand for abortion rights…I see you, and I stand with you. Together there isn’t anything we can’t do. We will prevail.

    Community Voices

    Under a lot of stress

    My health has been wonky, my CPTSD has been agony, my shoulder injury been killing me, my insomnia has been driving me up a wall, my BPD makes me crave what I can’t have, and during all this I try so hard to be strong and push through. But I’m so weak, depressed, miserable, in pain, etc. i just can’t push anymore, I think I need to spend a few days in bed doing nothing. Sleeping all day maybe. Idk. I just feel desperate for peace, so very desperate. And I can’t seem to catch a break. And I need one so badly.

    #CPTSD #PTSD #BorderlinePersonalityDisorder #Trauma #Abuse #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #PolycysticOvarySyndrome #Migraine #esaphagealspasms #IrritableBowelSyndromeIBS

    1 person is talking about this
    Community Voices

    POTS is worse?

    I’ve been fainting daily these days. That’s way more than normal. I’ve also had some bizarre in explaining weight gain of 5 pounds. I don’t look bigger, feel bigger, and my clothes fit the same. Not to mention I haven’t overeaten. Then I’ve been getting my period every other week lately. I guess I’m just getting kinda scared something is wrong with me. Like maybe somethings growing in me? Idk. But I’m worried,

    #PosturalOrthostaticTachycardiaSyndrome #PolycysticOvarySyndrome #EhlersDanlosSyndrome

    2 people are talking about this
    Community Voices

    Wyoming & Gender Equality

    <p>Wyoming & Gender Equality</p>
    5 people are talking about this
    Community Voices

    Chronic Pain & Passions

    I am recovering from severe anemia due to PCOS, and since then I’ve dealt with chronic pain in my back,legs and knees. I’ve had chronic pain for years buts it’s gotten worse and I’m still being tested for a couple of autoimmune diseases.

    With all of this happening, I’ve had to stop doing what I love and am very passionate about because everything is unmanaged.
    With those who struggle with chronic illness, how do you keep doing the things you’re passionate about. The things that create joy in your life? It’s really affecting me not being able to do the things I like. #ChronicPain #AutoimmuneDisease #PolycysticOvarySyndrome #AnkylosingSpondylitis #Anemia #MentalHealth

    6 people are talking about this