Hello my fellow migraine strugglers!
Curious if anyone has any tricks for blocking ultraviolet lights. I have been wearing a baseball cap and sunglasses but it’s not enough 😩😩😭
Please! Any tips welcome! #ChronicMigraineSyndrome #lightsensitivity #ultravioletlights
I’ve been having a really off week where my mast cells seem to be acting all crazy without my obvious trigger of inclement weather. I blame some of temperature fluctuations just from need to have a comprehensible trigger.
Anyway... I had to beg out of a Zoom call tonight and make someone else host because suddenly (even with extremely dim lighting, a screen on night mode, and migraine glasses) looking at the screen caused me significant pain and I felt sweaty, tachycardic, and very unwell. I felt like I desperately needed to get off and get away from all stimuli (my MCAS often triggers my POTS and sends me into flight or fight).
I wasn’t feeling anxious and it wasn’t a panic attack. Turning off the computer and the lights and removing all stimuli made me feel better. Although I still ended up eventually falling asleep to an Agatha Christie audiobook read by a British gentleman with a very soothing voice.
Does this happen to anyone else with Zoom? The reaction was sudden and extreme. I wish I could more precisely pinpoint my trigger. It was very unpleasant. #MastCellActivationDisorder #mastcelltrigger #zoommeetings #zoomreaction #triggeredbyzoom #lightsensitivity #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome
#Fibromyalgia how do you help releave your symptoms of light sensitivity? My eyes hurt
I am a full time internet reseller.
It’s hard and I’ve had some complaints. With #chronicmigraine and #Photophobia in the way, I live in dim lighting with the brightness turned down on all my devices. I can’t be the only one trying to improve photography skills with #lightsensitivity . Please give me some tips.📸
I’m thinking about trying blue light blocking glasses. I have daily headaches w/ migraine qualities. I also have light sensitivity.
The eye fatigue, dry eyes (or eyes that tear up when I yawn and make me look like I’m crying 🤦🏼♀️), and most recently allergy related eye issues.
Have you tried blue light glasses? What’s your opinion?
#Fibromyalgia #Tensionheadache #Dailyheadache #lightsensitivity #Migraine #Chronicdryeye #Eyefatigue
I want to hear your thoughts on photophobia. Photophobia is characterized by an increase in light sensitivity.
It's the morning I wake up grab my dark tint prescription lenses (shades). It's the night the sun goes down and the fluorescent lights are on? I still have to grab my shades. People cannot make the difference between tinted prescription glasses and sunglasses. So I'm always left with the question 'why are you wearing sunglasses indoors or at night'.
Driving at night becomes hazardous with my shades and I have to memorize the routes by heart. I overdose on aspirin everyday to prevent migraines and visual snow. Artificial tears are my best friends and I manage to put them all day long. Some people believe it's disrespectful to have shades on when talking to them.
No more movie theatres, no more Netflix binge watching, no more clubbing, no more night life (unless you want people to believe you're blind by wearing shades at night) and indeed no more bank transactions over the counter (shades are considered to conceal ones identity).
How did photophobia affect your lifestyle?
Latest
