Well, today I woke up very optimistic, but as quickly as I look at the mirror, see how much fluid has accumulated in my body, especially in my face, I feel that its features have disappeared. 😞 But I keep telling my self that I'm going through this battle for my kids, I gotta win 🙏
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Hey everyone 😊 Just wanted to share a bit of my journey. Earlier this year, things got really rough for me. The main blood vessels in my chest were blocked, which made things a lot more serious. The doctors told me I needed another central line procedure. I went in calm, thinking, "I’ve done this before, no big deal."
But the next day, right in the middle of it… my heart stopped 💔 They had to bring me back and put in an external drain to remove excess blood from around my heart. My world flipped upside down in that moment. Since then, I’ve been dealing with depression, panic attacks, and honestly… I feel like hope just isn’t there anymore. I wonder if I’ll ever get a kidney transplant or feel "normal" again.
What breaks my heart the most is being away from my kids 😔 As a single mom, I just want to be there for them, but my health keeps getting in the way. They’re always in my heart and prayers, and I hold on to the hope that one day, I’ll get to be with them fully 💙
Thank you from the bottom of my heart to everyone reading this, for all the love and prayers. I’m sending so much love back to each and every one of you 💫🙏
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Today I met with Local MP Dr Mike Freelander.
He helped to get MS recognised under NDIS and Centerlink. And now has agreed to help get Lupus Recognised.
I need your help!
We need as many Warriors as we can to tell their stories and request the government of Australia to recognise the need for support and funding to help us get the help and treatment we need in the form of Centerlink support NDIS support, and Medicare supports.
If you are interested please let me know! I will give you the details of where to send the emails/ letters to.
#
I was once you.
Nice car.
A home.
Savings.
Name brand clothes.
I had the office. The title.
I did everything right.
And that's all you saw- what I brought to the table and could do for you.
Now. Here I am. Soul laid open, my struggles and perseverance for all to see and what are you worried about?
What you might have to do FOR me.
When did we stop SEEING people? When did we all become so selfish?
We shouldn't have to prove our worth like a resume.
Just remember when you are looking at me and worrying about things I can't control:
It could just as easily have been you.
#lupusawareness #LupusWarrior #Lupie #Lupus #ChronicIllness #ChronicFatigue #CFS #AutoimmuneDisease #autoimmune #autoimmuneawareness #spoonielife #Spoonie #lupiechick #lupielife #lupussupport #lupusfacts #lupusfighter #blogger #bloggerthoughts #TheMighty #Lupus
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