lupus diagnosis

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    Whenever you have a flare or are just not feeling well, what self-care activities do you do to make your day better and more manageable?

    6 people are talking about this
    Community Voices

    Lupus after years?

    Hello,
    Maybe I am jumping tje gun but I am been diagnosed for years with fibromyalgia for years and now autoimmune tests are coming back positive and they keep asking me about rashes on my face. They keep hinting at lupus. I have many indications of lupus, but tge long term rash, but I do get burned only on my cheels and nose, nowhere else. Idk if it is lupus yet, I am still trying to find a rheumatologist, but it has been 12 years at least of being told I am crazy and and another 4 years of fibro diagnosis.
    #LupusDiagnosis

    2 people are talking about this
    Community Voices

    Mid-week check-in: How’s your physical and mental health right now?

    <p>Mid-week check-in: How’s your physical and <a href="https://themighty.com/topic/mental-health/?label=mental health" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce5800553f33fe98c3a3" data-name="mental health" title="mental health" target="_blank">mental health</a> right now?</p>
    1 person is talking about this
    Community Voices

    Do you think this is lupus? Here are my symptoms and other issues thatake me wonder:

    Debilitating fatigue for 10 years, tonsillectomy due to viral infections, viral meningitis, , two pelvic prolapse surgery due to prolapse of bladder, vagina, and rectum, carpal tunnel with swelling and pain particularly in the hands not RA been to rheumatologist, low grade fevers unknown causes, Rash on left leg for 2 years straight, poor circulation in hands and feet turning white when cold, vision problems , severe anxiety and depression with seizure like activity at times, hypothyroidism, blood work tested positive for old Mono, blood clot in my arm, severe panic attacks, m
    #LupusDiagnosis

    2 people are talking about this
    Community Voices

    Has anyone else been diagnosed with Lupus Profundus or Panniculitis?

    I was diagnosed with SLE about four years ago and given Hydroxycloroquine and sent home with no education. Without MyLupusTeam and a lot of internet research, I wouldn't have known what to watch out for as far as alarming symptoms. This one is a doozy! Any help would be appreciated! Thanks. 🙏 #LupusDiagnosis #lupusprofundus #LupusAwarenessMonth

    3 people are talking about this
    Community Voices
    Tammy

    Not ready for ANOTHER diagnosis!

    Hello Lupies!
    I'm a 25 year old with multiple chronic illnesses (Fibromyalgia, Ehlers Danlos type 3, CFS/ME, POTS, Cluster headaches and more.

    Now they believe I have Lupus too. I was convinced it was RA at first because of the symptoms but they ruled it out and are now working on the lupus thing.

    My other diagnosis' were all made together and it sent me into a spin with depression back then (10 years ago) and I'm so not ready for another one to be added to the list and go down the same road.

    How did you all cope with diagnosis and treatment starting etc?

    #LupusDiagnosis #Lupus #LupusVeins

    17 people are talking about this
    Community Voices

    How do tremors impact you?

    <p>How do tremors impact you?</p>
    Community Voices

    Hello Lupus Groupies

    I just wanted to introduce myself and say thank you, I am so glad to find this group! I have been living with fibromyalgia for the last 5 years and was just diagnosed with SLE Lupus a week ago. I was a little surprised by the diagnosis, I had it in my head that is was Rheumatoid Arthritis. These last few months have been extremely painful with swollen joints and my muscles have felt depleted and weak. From what I'm learning that seems to be a common symptom of Lupus as well.
    I'm just grateful to now have a treatment course and hopefully find some encouragement and support within this group! #LupusDiagnosis #Fibromyalgia #SupportGroups

    19 people are talking about this
    Community Voices
    Community Voices

    How long did it take you to get diagnosed? I am 22 and have been trying to find answers to my life long chronic pain for 2-3 years now. ##Diagnosis

    <p>How long did it take you to get diagnosed? I am 22 and have been trying to find answers to my life long chronic pain for 2-3 years now. #<a class="tm-topic-link ugc-topic" title="diagnosis" href="/topic/diagnosis/" data-id="5b23ce7700553f33fe9912e4" data-name="diagnosis" aria-label="hashtag diagnosis">#Diagnosis</a> </p>
    11 people are talking about this