LupusWarriors

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    oh_su

    Hey you!

    <p>Hey you!</p>
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    Testy Chapter

    <p>Testy Chapter</p>
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    Was recently dx with lupus cystitis they say it’s rare I live in Saint Louis near one of the world’s highly ranked hospital #BarnesJewishHospital and I’m the first case they’ve ever seen in person its when lupus attacks the bladder, I just recently finished a three day course of 3,000mg prednisone and my first dose of cytoxin chemotherapy it’s gotten off to a super rough start haven’t felt well enough to do much more #Fibromyalgia I’m tired but there’s still too much to fight for

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    Lupus Warriors 💜

    <p><a href="https://themighty.com/topic/lupus/?label=Lupus" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce9700553f33fe996d9b" data-name="Lupus" title="Lupus" target="_blank">Lupus</a> Warriors 💜</p>
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    This Monday I had surgery on my left breast to remove suspicious tissue to have it tested for breast cancer, I had have my mother in law to take me to surgery, because it was my husband's first day on a contract job. He never called, or texted to even check if I was ok and when he finally called to say he was coming home, all he did was talk about his new job 🙄 and it wasn't until, I asked him... Do you want to know how the surgery went? That he asked about it, he shows no concern, or compassion towards me for the past 3 days! I've been recuperating at home, he doesn't call me or text me to check on me, we have been together 10 years, I have lupus and he has always been kind of supportive, so I don't really know what to think! Is this a way of him dealing with it? Am I overreacting? Should I feel upset? Or just give him space? I am feel so alone and lost right now, please someone help! #LupusWarrior

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    Community Voices

    Hi fellow warriors 👋
    Any recommendations for getting rid of these lesions on my face and neck?
    They look so bad, scar awful, and take 4ever to heal😩

    3 people are talking about this
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    How to manage pin prick sensation in hands? #Lupus #LupusWarrior #ReynaudsPhenomenon #Lupusflare

    I recently have noticed that my hands will start to have a painful pin prick sensation, very much like a painful version of waking up a limb after it falls asleep. Does anyone know the cause or how to help reduce the pain? I can’t use ice packs as I have Reynauds.

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