Mast Cell Activation Disorder

My daughter has dysautonomia, Raynauds, GERD, autism and more. She shows symptoms of MCAS, but no anaphylaxis or severe reactions. She has flushing, skin rashes to basically everything her skin touches, and itchiness. Could this be MCAS? #POTS #MastCellActivationDisorder #Dysautonomia #AutonomicDysfunction

Hi, my name is Fireflycatcher. I'm here because I’m being worked up for chronic pain since having a flare with Long-COVID. I have symptoms of dysautonomia/POTS, pericarditis, myocarditis, MCAS and Ehlers-Danlos syndrome. I’ve been diagnosed X 15 years with Rgeunatoid Arthritis and Fibromyalgia.

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ADHD #RheumatoidArthritis #ehlers-DanlosSyndrome

Does anyone have any suggestions on electrolytes that are easy to digest or good for digestion issues? I have POTS and Mast Cell Activation Syndrome and some pretty severe GI problems currently. They stopped making the only flavor of Body Armor that I could drink without reacting. Maybe people with #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD #CrohnsDisease #UlcerativeColitis #Gastroparesis have some things that have worked for them?

#LymeDisease #PosturalOrthostaticTachycardiaSyndrome #MastCellActivationDisorder #MastCellDisease #Migraine #Depression #Anxiety #Autism

#EhlersDanlosSyndrome # Help me please my fellow Zebras, my eyes have been itching a lot lately and I can’t figure out what is going on. Could it be a MCAS thing or something that is just a EDS thing?

Hi, my name is Cadecaleb2. I'm here because I suffer from Ehlers Danlos , fibromyalgia , depression, anxiety, dysautonomia , POTS and MCAS symptoms. I have chronic pain and chronic fatigue syndrome and Spondylothesis. I just turned 50 and everything has been exasperated with my age. I have had hypermobile Ehlers Danlos my whole life yet I can’t find anyone in central Texas that specializes or knows anything about it. I’m exhausted and weary.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #OCD #Grief

I teach two year old at church. I have a port and one of them saw it and asked me what it was. I explained it to them as best as I could for a two year old. They said “Well God can use anything to teach others about Him. I’ll pray for you.” And sure enough days later I was able to make a connection between my health and God to someone I know has been reselling with the thought of God. How has God used you lately? #god #christ #POTS #EDS #MastCellActivationDisorder #ChronicIlless

Sometimes I say I don’t need people to catch me, because I am friends with the floor. The floor catches me sometimes and laughs at/with me sometimes and sometimes lands a well-meaning punch too hard. I have to be patient with this friend who often shows up unannounced, thinking to surprise me and it will be great fun. When I’m writhing there, if someone is in the room, I know they cannot contain my pain. It hurts me to see them watch me there - someone they love’s body trying to turn itself inside out. They plead, beg and bribe the gods for a way that they can help. There’s not. I dance with the edge of knowing what I can control; where is my power and where isn’t it? But most often able people have not fought this war of attrition, and are not prepared for the blow to the gut knocking all the air from their hearts. Seeing them powerless and unaccustomed to this pain adds the hurt of another too and it weighs so much. But the floor, for all its flaws, is quiet after the initial impact. I scream and it listens.
#fall
#EDS
#AutonomicDysfunction
#Dysautonomia
#HEDS
#PosturalOrthostaticTachycardiaSyndrome
#LivingWithPOTS
#MastCellActivationDisorder