Mast Cell Activation Disorder

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Mast Cell Activation Disorder
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College and Chronic Illness

Hey guys! I am currently new to the Mighty as I was just looking for some helpful tips in managing chronic illness. I am a freshman at the University of Florida and am really struggling with managing both college and chronic illness! Any tips would be amazing!!!#PosturalOrthostaticTachycardiaSyndrome #MastCellActivationDisorder #Migraine #ChronicIllness

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I'm new here!

Hi, my name is SaltAire777. I'm here because I have MCAS systems and seeing an immunologist who is treating me for low level MCAS but hasn't given that diagnosis yet.


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I'm new here!

Hi! I’m Ashley and am new here! I suffer from severe mental health and physical health issues. I am excited to have joined this platform and officially be an “Mighty” lol. I’m pretty unfamiliar with this app/website but I am super hyped to learn the different things to do on here! Because I’m just getting started, does anyone have any tips, some cool things you can do on The Mighty and if you’re a fellow spoonie/dealing with similar issues I do too? Maybe I can make some friends that truly get these struggles…because we all know that nobody gets it like the ones that live it…aka US. I look forward to meeting any future friends!! Again please reply with any helpful information or to let me know of others on here dealing with the same things please!♡

#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #ADHD #OCD #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #MastCellActivationDisorder #Gastroparesis #Dysautonomia #OrthostaticHypotension #ChronicPain #ChronicIllness #ChronicOrthostaticIntolerance #ChronicFatigueSyndrome #Migraine #Insomnia #Psychosis #PanicAttack #PanicDisorder

8 reactions 4 comments

New Here

Hello. I'm new to this group and this platform in general. I have suspected MCAS either on its own or caused/exacerbated by mold toxicity. Last time my doc put me on a detox protocol I got so much worse and wasn't able to handle it so I had to stop. Now I'm in the middle of a severe depression and feel no motivation toward anything anymore. I'm trying a new tricyclic antidepressant that is suggested by the research to be preferable for MCAS than typical SSRIs I've taken for years. I'm slowly going up in dose but so far not feeling any improvement and feeling pretty scared. Does anyone have any experience with this or anything else they could share?

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Hi! I'm new here. Just need a place to tell my story, and perhaps get some necessary help.

This morning I woke up with the migraine again, this is now day 6, off and on, but mostly on. I go through phases like this, where it seems I cannot escape the pain, then they might suddenly improve drastically, down to once or twice a week, and back again. The right side of my forehead feels like my skull is going to explode right off, or my brain is going to come through my temple, and the back of my neck, at the very point where it connects to the skull feels like I'm being stabbed with an icepick. This is the same pain as always, it rarely varies, and causes nausea, extreme light sensitivity and pressure behind the eyes like they want to just pop right out of there, and the dreaded panic attacks. No medicine the neurologist has tried helps to prevent them, but thankfully, the triptans prescribed do give me temporary relief. I've had multiple CT scans, MRI scans, X-rays, and blood tests. The only thing that showed up is rather severe arthritis in my neck. I also suffer from rather extreme allergies, meniere's disease, interstitial cystitis (under control), and asthma. I believe it is likely that I have mast cell activation syndrome, but have not as of yet found a doctor who is able to assess me, here on the outskirts of Atlanta. That pretty much covers the physical. The mental impacts of all of this can be quite a bundle as well, as I'm sure you folks understand. Today is a rough day, but I'll get through it. Thanks for listening.

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How Did You Break Away from the Pain and Really Live!?!

Prisoner to pain that is constant and keeps me unable to function. EDS, vEDS, pots, mcas...severe malabsorption and chronic dehydration.

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I’m new here!

Hi, my name is Mary.
I’m 20 years old and I’m here because 2 years ago my life changed drastically. I started my tedious medical journey through lots of hospitals, looking for answers no one seemed to have. I finally got diagnosed with mast cell activation syndrome, dysautonomia (enteral and pots), antiphospholipidic syndrome, gastroparesis, inmune deficiencies, malabsorption, irritable bowel disease… among other things. However, it wasn’t easy. I was told it was all in my head for lots of months and had lots of near death experiences until someone understood I couldn’t keep living like that. Nowadays I have a surgical jejunostomy which help me get my nutrition. And we’re looking for some meds that we can try to start feeling a bit better… although we didn’t get there yet. I’m really looking forward meeting people who are in the same situation as me; I was told during these years that I was the only one and I recently found there’s more people like me with very similar experiences. I’d love to hear suggestions, or to find someone that can really understand the pain.
#MightyTogether #Dysautonomia #Gastroparesis #mcas #tubielife

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