Mast Cell Activation Disorder

I recently got a port for fluids and ect but the dressing that the home helth says is absolutely the best doesn't stay on well so I've been using the tape they gave me to keep it on and they also think is the best. I'm reacting to the tape and when I take it off I'm sticky everywhere and I can't get it off without lot's of scrubbing... to the point of bleeding. it doesn't matter what I use. And that could really raise infection risk so I'm looking for suggestions for tape, getting tape residue off, skin protectant or a dressing that you have found works well. Thanks!
#EhlersDanlosSyndrome #MastCellActivationDisorder #PosturalOrthostaticTachycardiaSyndrome #Port #tetheredchord #ChiariMalformation

I have a tradition, every Monday I watch RuPaul‘s drag race and eat popcorn. I come up with creative new flavours each week and I love both eating it and making it! This week‘s favourite was s’more popcorn. What food feeds your soul?

#Abunchofrarediseases #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #FunctionalNeurologicalDisorder #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds #Arthritis #Rarebleedingdisorder
#MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe #dying #dyingyoung