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Hi, my name is Maggie863. I'm here because I need all of the support that I can get right now!
Hi, my name is Maggie863. I'm here because I need all of the support that I can get right now!
So last night I broke down and just lost and cried and felt sorry for myself. I really hate doing that!! But I’m going through a rough patch. A bad flare where I swear every joint is swollen and screaming bloody murder at me!! And my currently injured joints are so bad that I don’t know what to do anymore! I’ve got a partial torn ligament in one knee, several torn ligaments and damaged cartilage in my wrist, and low and high sprains that haven’t been properly evaluated by my doctor yet but are from the same fall at Christmas that caused the above noted damage! And so for the past few summers I’m usually in a cocoon of constant migraine all summer long but my preventatives are finally at a good dose and the weather isn’t as severe so I was hoping to get to enjoy some stuff with my family but of course not!!! Because with my ankle as bad as it is I can barely walk anywhere!!!!! And of course my orthopedic doctor had to go on leave and so some other Dr is filling in and got distracted on another issue so that I don’t know what the heck is going on and all I want is them to evaluate my ankle, get the MRI, give me the right exercises to do, even though I’m so tired all of the time, so I can get back on my feet! But by the time that happens the summer will be over and I’ll have once again done nothing but stayed home reading books and sleeping all summer long in pain. Again.
Just wanted to introduce myself. I was diagnosed with fibromyalgia myofascial pain syndrome about 40 years ago. I also have hEDS (hypermobile ehlers danlos syndrome) and ulcerative colitis. Life can be challenging at times but my two pups keep me laughing. Looking forward to receiving and hopefully providing tips and hacks.
Hi there, I have Myofascial Pain Syndrome specific to the Thoracic Region. Often written off as fibromyalgia, and being a cousin to this, my biggest complication is the muscle group it affects: chest wall conditions directly affect your ability to breathe. I've lived with this since April 2012 after a viral infection (swine flu) effected systemic changes to my immune response. Like many others here I'm sure, I have run the gauntlet of misdiagnosis and incorrect treatments. I would love to find someone with the same or similar condition, but honestly, I'm desperate for support from anywhere I can get it. Pain is debilitating. Living with chronic pain wears you down, and I am tired. I live alone and have little in person support. While I have some very caring friends, many are elderly with major health issues themselves or work and are just not available when I genuinely need help. And I need help. #MyofascialPainSyndrome #ChronicPain
Hi, my name is Fluister. I'm here because a concerned friend said I need to find support
Hi, my name is Cdaquila. I'm here because I have a severe TBI/Epilepsy/Fibromyalgia/Myofascial Pain Syndrome. I am newly diagnosed with Fibromyalgia and Myofascial Pain Syndrome and am trying to learn and understand both of these conditions and appreciate support. I am still trying to work full time too.
Hi my name is @Tropicmanic and I have not yet got a hang of how to navigate this app, group yet but I really need support and I can also give back. Thanking everyone here for input. I feel very lonely and in despair with my 23 year’s chronic pain… #ChronicFatigue #Fibromyalgia #Depression #MyofascialPainSyndrome #PTSD #Migraine #Grief
Hi, my name is FranktheTank.Nice to meet you.
#MightyTogether #Anxiety #Depression #SuicidalThoughts #MyofascialPainSyndrome #complexpost-traumaticStressDisorder
Hi, my name is queenslander. I'm here because I want to learn how to heal my body and mind.
Chronic pain from injuries and inflammation plague me daily.
#MightyTogether #MyofascialPainSyndrome
Hi, my name is Lauren. I'm here because
I want to add to the number of people who can relate to the challenges I face and help me become the best version of myself. I’m excited to meet people with the same challenges as me.
#MightyTogether #Anxiety #ADHD #MyofascialPainSyndrome #CentralPainSyndrome