Hi, my name is Brunette_Rhyme. I've been diagnosed with and am a long term sufferer, I have other conditions but they are not on this radar however that does not surprise me. I feel out of 32 neurological and a mess of a muscularskelatal, my body is heading for another change. How long before we know what’s going to happen is anyones guess. My biggest obstacle right now is I seem to be my carer’s carer. I have a new set of carer’s coming on board. My new NDIS package has come through and finally I had and awesome LAC who knew what she was talking about. We have fought so hard and finally I received a package where I now might received the care I need instead of laying on the floor in a pool of blood in the morning whether I have an Apple Watch on or not. It is all dependant on the impact of the fall and mine are usually low by the time I hit hard. I have been on dexemethasone for nearly 3 months this time and it’s taking it’s toll and my doc does not get back from holidays for another month. I have to hang on as 2 hospitals have nearly killed me and I refuse to go down that road. I have an induction on Monday and really need these carers up to speed. I have one carer who is about to take leave and is on holidays to Italy. I hope she has and amazing time and sadly another one I have just lost as she had a fight with another carer to whom where previously friends. She put me in a very awkward position of choosing. I refused to and split them apart. It was not good enough so she resigned. I am very sad for this and I see her hurting right now but as the say with Pride come a fall. She knows I am very fair and kind however she needs to ask me. I guess I am reaching out for some moral support as I am truly exhausted and know I need to hang in there. I hope every is doing the best they can? If you are having reasonably good day, share and extra smile for the rest of us and we will do the same in return. J
#MightyTogether #Anxiety #Migraine #Fibromyalgia #ADHD #PTSD #RheumatoidArthritis #MultipleSclerosis #ChronicIllness #CentralPainSyndrome #MyofascialPainSyndrome #ChronicInflammatoryResponseSyndrome #UrticarialVasculitis #CentralSleepApnea #CentralSensitizationSyndrome #VasculitisSyndromesOfTheCentralAndPeripheralNervousSystems #MultipleSystemAtrophyWithOrthostaticHypotension #HipDysplasia #DegenerativeDiscDisease #DentatorubralAtrophy #MyotonicMuscularDystrophy
Hi, my name is deassa9. I’m new to The Mighty and look forward to sharing my story.
#MightyTogether #Anxiety #Depression #ADHD #Hypersomnia #InappropriateSinusTachycardia #ChronicOrthostaticIntolerance #cushing'sSyndrome #ChronicIllness #DegenerativeDiscDisease #GastroesophagealRefluxDisease #Trichotillomania #Dermatillomania #JuvenileDiabetesType1 #Migraine #MyofascialPainSyndrome #Arthritis #obsessive-CompulsivePersonalityDisorder
Hi, my name is Janis22. I’m new to The Mighty and look forward to sharing my story. Due to long term pain, I have had epidural injections which has helped me. This is after five years of pain and falling many times flat on my face. Because of falling now I am nervous and anxious to walk and use a Rollator as I have a fear of falling even though I can walk in my house. Because of this and because I moved away from my friends a number of years ago, I don’t have any friends other than my sister who lives nearby. I am feeling very lonely as I always have had a lot of friends and I do not have that now. I feel like I need a friend and I can’t go out to make them. I have always been a very social person. I actually can drive but then when I get there I’m too afraid to walk. I used to be normal. What the heck happened!? I need a kind friend and would like to be a kind and fun friend in return!
Hi, my name is Jillian :). I’m new to The Mighty and look forward to sharing my true… YES, it IS true, story!