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My Epiphany Letter.....I Need My Life Back!

Sometimes, life with chronic illness can be overwhelming. It’s not always because of your disease either.

It’s often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can quickly feel as if you are losing all sense of illness/work/life balance.

In fact, you wake up one day and realise you no longer have a life, and each days agenda is being determined by anyone and everyone, but definitely not by you.

This was my epiphany when I woke up the other day. I had a list of upcoming events, life changing events in many regards, running through my mind.

In this podcast I share with you the epiphany moment I had, resulting in a life changing letter where I draw a line in the sand and take my life back!

www.mymedmusings.com
medicalmusings@bigpond.com

Listen to the most recent episode of my podcast: My Epiphany Letter anchor.fm/my-medical-musings/episodes/My-Epiphany-Letter-e28fabs

#Podcast #ChronicIllness #RareDisease #Epiphany #lifechange #Doctors #Lifebalance #Wellbeing #OccupationalTherapist

My Epiphany Letter by Medical Musings With Sam

Sometimes, life with chronic illness can be overwhelming. It’s not always because of your disease either. It’s often all the appointments, including doctors, allied health professionals, equipment trials, dealing with government departments, routine tests and procedures, etc. It can become a full-time job. Your body becomes your business, your place of work, and you can quickly feel as if you are losing all sense of illness/work/life balance. In fact, you wake up one day and realise you no longer have a life, and each days agenda is being determined by anyone and everyone, but definitely not by you. This was my epiphany when I woke up the other day. I had a list of upcoming events, life changing events in many regards, running through my mind. In this podcast I share with you the epiphany moment I had resulting in a life changing letter where I draw a line in the sand and take my life back! www.mymedmusings.com medicalmusings@bigpond.com
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Listening to a child with sensory processing challenges

By Dr. Amy Wheadon, OTD, OTR/L, CPT, Y.E.S.

Parents and educators and other professionals are dedicated to facilitating growth and development in children. If a neurotypical child needs something, he or she simply asks, and an adult is able to respond to the child’s needs. But what happens if a child has challenges processing sensory input child may have difficulty articulating exactly what he or she is feeling or expressing what type of help he or she needs.

#OccupationalTherapist s who work with children with sensory processing challenges and/or #SensoryProcessingDisorder (SPD) know that sometimes by using different methods and strategies to “listen to a child”, we are better able to understand and provide exactly what that child is seeking.

Here are some unique ways to listen to your child:

(1) Listen With Your Eyes

(2) Listen With Your Intuition

(3) Listen With Your Ears But Read Between The Lines

(4) Listen With Your Heart And Act With Empathy

(5) Listen Through Action

If you are interested in learning more, go to www.kingsdayout.com/blog/blog-post-two-adtan

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A story to help children of those with #ChronicIllness

My husband Tom is a member of the Royal Navy and we have two young daughters. In 2017, Tom completed a Land's End to John O'Groats bike ride - a distance of 1000 miles in just 5 days. Following this, Tom became extremely fatigued and bed bound unable to do much more than go to the bathroom. After months of tests, and 'ologist' appointments, a diagnosis of M.E/CFS was given. Our daughter, then 3, struggled to understand what had happened and became anxious. This prompted us to write a story which helped her understand and come to terms with her dad's condition which is called 'Supercharged Superhero' (now available on Amazon). It is really for any child who is coming to terms with a sudden change caused by #InvisibleIllnessTom is so fortunate to have received medical care from a RN Recovery Centre with an amazing #OccupationalTherapistOver two years he has worked with his medical team, beginning with his cognition and concentration, then later gently helping him to physically become stronger through pacing and careful monitoring. He’s recovered enough that he is able to access family life in a way that we thought he could never do again. Tom will be medically discharged from the Navy at some point this year but is hopeful that his chosen career path will enable flexible working which will make things manageable. He still has bad times, the crashes still come and he doesn't always manage his condition as well as he could but we are so incredibly proud of the steps he has made. We are incredibly grateful for the things he is able to do with us. To quote the book: "Things are just a bit different now, That doesn't mean I should be sad. Time together's more precious than ever, Slowing down's not really so bad. We get to enjoy the little things, The bits we used to miss. When we were always rushing round, Doing that and this!" A lesson there for the world right now as we are locked down and isolated.#MyalgicEncephalomyelitis #MECFS #pwme #Fibro #Lupus #Fatigue #POTS #LymeDisease

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Best products for when showering is too hard?

My #OccupationalTherapist suggested I write out daily routines for both good and bad pain days. For the #Highpain days I’m interested in finding things to feel fresher.

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Feature the mighty #OccupationalTherapist #AutoimmuneDisease #ChronicPain #MentalHealth

I was a therapy assistant for 37 years. I have RA. I think this site is awesome. I would like to feature the mighty on my website blog. My focus is on PRACTICAL information for therapists and their patients. http://Cotsthoughtspot.com