Peripheral Neuropathy

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Peripheral Neuropathy
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Collection

Just a snap shot of the San Pedro cactus blooms over the years. Its almost prehistoric looking as you can see the bloom pod grow has protecting scales before they bloom. Starts off as a small nub with hair in it on the side or top of the cactus. Wanted to share some positive pictures something I enjoy.#MentalHealth #MuscularDystrophy #RareDisease #DegenerativeDiscDisease #ChronicPain #Anxiety #Fibromyalgia #PeripheralNeuropathy #CervicalRadiculopathy #Disability #Diabetes

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My best friend and medicine

Just having a great time with my dog Magnus he really is a bright star in my world. He has totally bonded with Mom also very affectionate. The beginning was a lot of work but he is listening better after all he is only 9 months old now.

I have been having a really rough time with my new symptoms the abdominal muscle spasms are all day. I wake up in great pain every morning that's the reality of muscular dystrophy no matter how long you rest it's back to square one. This is where my little buddy Magnus comes in and is so happy to see me every morning. He is so much fun with his toys and loves to play fetch. He is truly my best defense against rough times and he ha captured my heart 💙💙#MentalHealth #DegenerativeDiscDisease #Anxiety #Depression #RareDisease #Fibromyalgia #PeripheralNeuropathy #FootDrop #facialneuropathy #MuscularDystrophy #ChronicPain #ChronicIllness

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Not new to the Mighty

I have spent some time on the mighty but always wanted to comment on this page. I have severe pain from Hyper Algesia, peripheral neuropathy and fibromyalgia. The root cause of these ailments over eight spinal surgeries and a diagnosis last year with progressive myosinopathy a rare disease that is slowly taking out all my muscle with no cure or treatment.

The fibromyalgia is all over my body all day non stop i can't stand the feel of my own hand on my body this saga has been going on for years just thought i would join another group #Fibromyalgia #DegenerativeDiscDisease #MuscularDystrophy #RareDisease #Depression #Anxiety #CervicalRadiculopathy #Disability

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I'm new here!

Hi, my name is Mocanaqua00. I'm worried about the peripheral neuropathy getting worse so tht I will be in a wheel chair. I have a walker and a scooter which I use to get around. I take physical therapy at home as much as is offered by Medicaire and United Health Care. I was very active until the pandemic and I am now 91 years old wih arthritis. I live alone but have help for housework and shopping. I have started with tremors lately and feel afraid to go out because of the fear of falling. My balance is not good.
#MightyTogether

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Understanding rejection

Sometimes I look back on some of my relationships, the ones where they already had another boyfriend before they ended up dumping meeven my ex wife, and I think how cruel that actually is. My last relationship i gave it my all she had five kids and I helped her with Dr appointments taking the kids to school helping around her house and even in my condition but I did it for her kids it gave me a sense of purpose . Before I met her I was already disabled with 6 of the eight back surgeries already done she said had no problem with that

The relationship lasted eight months she was only using me until her supposed ex husband got out of jail. All the romance she threw my way and I reciprocated I was in heaven.

Long boring story but I am really starting to question who I am how could I let this woman walk all over me e and not see it coming. I consider myself not to be a dumbass but it wasn't only her i have let people do this to me for a long time even supposed good friends . What makes a human being be so stupid when it comes to being able to detect someone is hurting you? Maybe it's my low self esteem humble people are easy to con but I don't understand why I let it go so far 💙 #MDD #PeripheralNeuropathy #allidynia #dd d#Diabetes #Disability #hyperalges ia#MuscularDystrophy #RareDisease

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My mobility aids.

It's been awhile since I walked without the assistance of my leg braces so long I almost forgot but you don't really. Fifteen years and counting and I am very aware that without them my life would be much worse. At first it's the appearance that bothers you but it soon gives way to being practical I mean am I not going to leave my house without them. I saw a post about mobility aids and how if you need them use them. Don't worry about how it looks or how people stare at you their opinions have nothing to do with your health so when a medical professional tells you it will make your life easier then use them.#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #Disability #PeripheralNeuropathy #Allodynia #hyperalges ia#MDD #Anxiety

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Feeling like a fraud

I can barely remember the day it started or maybe I have evolved into some kind of numb punching bag. After 15 years of chronic pain and immobility I am forced to take pain pills ever day. If you can ride this journey without it changing the chemical make up of your brain my hat is off to you. The stigma of taking antidepressants and being on pain pills is something you never shake when we live in a society of ableism any deformities are considered a handicap.

This is why I feel like a fraud my mental and physical wellness are being propped up by medications the real me is probably lost and always will be. However if I don't take the antidepressants my agoraphobia and depression comes back like a freight train. If I don't take the pain medication I can't walk even with braces and my blood pressure (more pills) will go through the roof. I'm stuck on this ride until my last breath because there is no cure for my rare muscle disease each day counts as being upright and not bed ridden my worst fear.#MentalHealth #MDD #OCD #MuscularDystrophy #PeripheralNeuropathy #Disability #alodynia #Hyperalgesia #DegenerativeDiscDisease

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Trying to hang on chronic pain

Another morning waking up in debilitating pain forced to take pain meds if I want to walk today. I've been at this for so long I can't remember what a normal life looks like a day when I didn't have to take meds or be able to walk with out full leg braces. I'm 58 had seven spine fusions and at the beginning of the year diagnosed with a rare muscular dystrophy which is taking out all my muscle slowly. I write these posts because I have no one to talk to and unfortunately there is nobody on the muscular dystrophy forum and I am frustrated because there is no cure or even treatment to slow it down. I don't think it's all dismal I find happiness when I can and let my brain be distracted from the pain by healthy conversation or doing what I can do gardening with my mom.#Anxiety ##Chro nicpain#RareDisease #MuscularDystrophy #DegenerativeDiscDisease #BorderlinePersonalityDisorder #Disability #OCD #PeripheralNeuropathy #alldynia #hyperalsesia #MDD

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The patio still full of colors

Just sharing some pictures of our colorful patio seems to just keep going rose bush gave out 50 plus this summer and is still going and these other flowers will give us flowers for awhile. Fun gardening is the only gardening #ObsessiveCompulsiveDisorder #BorderlinePersonalityDisorder #MajorDepressiveDisorder #RareDisease #ChronicPain #MuscularDystrophy #PeripheralNeuropathy #DegenerativeDiscDisease #Disability

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