Polymyalgia Rheumatica

Join the Conversation on
Polymyalgia Rheumatica
591 people
0 stories
36 posts
  • About Polymyalgia Rheumatica
  • Note: The hashtags you follow are publicly viewable on your profile; you can change this at any time.
  • Explore Our Newsletters
  • What's New in Polymyalgia Rheumatica
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Community Voices
    Community Voices
    Community Voices
    Community Voices
    Community Voices

    Chasing Ghosts

    <p>Chasing Ghosts</p>
    4 people are talking about this
    Community Voices
    Community Voices

    Anyone who has had PMR and had any success with things other than steroids?

    My mom has been "possibly" diagnosed with this. She sits or lays for too long and is completey frozen and cripplrd up. She can barely move. Has been on steroids for months and just tapered off. And the pain is back. Ten fold! Any advice would be most appreciated. #PolymyalgiaRheumatica

    Community Voices

    Will 60mg Prednisone Daily cause moon face and weight gain?

    I have just started 20mg 3x daily when do side effects appear? Did you gain weight instantly? How much? I am having biopsy for #GiantCellArterisis and I already have body issues. I am petrified of all the side effects. I am also being given it for possible Polymyalgia Rheumatica. If anyone can give me some information I will greatly appreciate it ☀️
    #Prednisone #MoonFace

    6 people are talking about this
    Community Voices
    Community Voices

    Another diagnose

    Hello, It’s been a long time since I’ve posted here, and I apologize. Yesterday I was looking at my medical file and it was a big file with hundreds of words I couldn't understand back then because I was only a child. Before my first dislocation, I was in a lot of pain and I was running from a hospital to another looking for a diagnose. They said it was Polymyalgia Rheumatica but when I had my first dislocation they said it’s EDS. Today based on the test and documents I own I think I have both EDS and Polymyalgia Rheumatica. It's hard I thought about going to the doctor again and retesting myself but I’m tired. Just the idea of going back scares me. If I have Polymyalgia Rheumatica it can be treated there are meds and there’s a chance of a better lifestyle, off there is no cure or treatment for EDS but maybe it can help. I’m scared and I don't want to be but just it hurts being 20 and having to deal with doctors and therapy. I should be going hiking or partying not searching for doctors and meds.