Polymyalgia Rheumatica

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Pain levels # asthma. #Arthritis . #Fibro . Polymyalgia rheumatica #sciatica . # migraine

Sciatica is kicking my butt this week. So much to do, but a few minutes here and a few minutes there, and some progress is seen. I checked my garden a bit ago, and a few carrots, onions, and potatoes have sprouted. Tomatoes seem to have settled into their new homes. Few flowers are blooming. These small miracles please me. The sun is shining and the temperature mild.

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Enjoying spring #Fibro #Arthritis polymyalgia rheumatica #Migraine #Asthma

The ornamental crabapple tree is a pink cloud of flowers. I enjoy seeing it every spring

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I'm new here!

Hi, my name is Keyes2Mudd2. This is the first time I have ever written to join a support group. I hope I am sharing the correct information.

I am 72 years old, married with 4 grown children and 4 grandchildren all in college. My husband and I have been married for 47 years. (second marriage for us both)
We were blessed to retire when my husband was 50 and I was 45. Our company offered early retirement and we took them.

After we both retired we continued our love of travel around the world for years till my health got so bad it was to hard for me.

At that time we decided to move away from home for my health (warmer climate, less stress and a slower life). We founded a non profit that grew so fast and we were blessed to help so many people. It became to hard for me because we grew to love our clients and lived though their stressful times.

We moved to Thailand our favorite destination we visited during our travels. We still live here and love it. My health has improved we believe because of the weather, great food, lots we can eat for our program, much less stress, wonderful people and a wonderful church we attend that is very supportive of us and our health issues.

We are happy with the medical care in Thailand. Most doctors are aware of care for me and my husbands health problems.

Before we moved to Thailand for years I was diagnoses by many doctors but non ever fit my symptoms or helped them. So many Doctors, so many disappointments with large bills and low improvement.

So we decided to move and stayed in Bangkok for a while to attend their hospital for a diagnosis. After tests etc. and the same routine with other doctors. In Bangkok in one week I was diagnosed correctly with:
Fibromyalgia PRIMARY
Polymyalgia Rheumatica SECONDARY and
IBS with many side symptoms from upper 3 health issues.

Fibromyalgia - Going through my life history I have had FIBRO. symptoms from 1965 approximately.
Polymyalgia Rheumatica - same time as FIBRO. when we moved to Thailand.
I was diagnosed with IBS in 1980

You may notice I write a lot and think I may talk a lot. Yes I do. I believe it is wonderful to meet new people. We can always learn something from each person. My husband calls me a perky person. At my age it is getting much harder to deal with health issues and old age. Not so perky anymore.

In the last month I was diagnosed with cataracts in both eyes, slipped in the shower and reinjured my back from a previous back surgery. Wearing a brace now because I want to be supportive of my husband. He was in a car accident with our driver doing shopping. No injuries. Then my husband was diagnosed with cancer in 2 areas on his face and leg. He is recovering after surgery. He is my rock/caregiver. After he recovers I will follow up with back surgery. I am not sure if my story is unique. I would like to read other peoples posts and learn from them. Prayers for ALL

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FTD

It’s official. My beloved husband is dealing with Frontotemporal Dementia. His memory is largely intact but his behaviour and personality are taking a major hit. He is completely oblivious to these changes except that he’s noticed that he gets irritable quickly. # #Asthma arthritis # fibromyalgia #PolymyalgiaRheumatica

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New challenges # #Fibromyalgia polymyalgia rheumatica #Asthma #Arthritis #Migraine

In February, my husband of 33 years had a mild stroke. Since he was hospitalized, I spoke to doctors about my concerns that some of his behaviour did not seem normal- at least not for him. Tests have been ongoing since then, and we’re still not finished; however, the doctor informed us at our last appointment, that all signs point to dementia, possibly Alzheimer’s. The doctor canceled my husband’s drivers license which gave him independence and pride. In one way it’s a relief; yet we are now dependent on others for rides anywhere we need to go. I don’t think he truly believes that he has dementia, but he’s confident that God will be with us even in this situation. We don’t have a transit system here and we live several miles out of town. This will be a huge change and challenge in both our lives please pray for us as we embark on a difficult journey.

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Atarax?

I have been prescribed Atarax to help with situational anxiety (in addition to desvenlafaxine and regular venlafaxine for ongoing depression and anxiety).

It makes me SO sleepy but I don’t actually fall asleep. Is this normal? I have 6mg melatonin for bedtime too. I’m already exhausted from fibromyalgia, MCTD, polymyalgia rheumatica and Giant Cell Arteritis. I’m taking a ton of prednisone and hate the side effects. I’m stressed to the max and in a bad situation where I’m being harassed by our tenant who is having delusions of owning the house and has threatened to put deadbolts on our doors so we can’t get into our own home (he has the downstairs unit, we are upstairs). Needless to say, my husband is going to housing court tomorrow to file for eviction.

I have a plan to sue this piece of work for harassment and reimbursement of my mental health related medical bills stemming from it. Copays so far, over $600 and climbing.

But my question is, will the Atarax help? Does it take days to work, taken on a schedule, or can I take “as needed”? The ED doctor a few weeks ago said as needed, the one yesterday prescribed for every 6 hours. What’s your experience with Atarax?

Thanks.

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