Join the Conversation on
70 people
0 stories
4 posts
Explore Our Newsletters
What's New in

PSA: You can Opt out of Care Everywhere!!

Doctors sharing notes can be extremely detrimental when you have a complicated medical history. Even changing medical systems often isn't enough to escape something wrong/misleading a doctor once wrote about you or diagnosed you with because of "Care Everywhere", which lets all doctors using Epic see each other's notes.

You opted in without knowing it, but you can opt out.

The good news is, you can opt out! You can get back in control of who sees which notes from your past! One bad doctors visit doesn't have to be it ❤️

To opt out Google "NAME OF YOUR HOSPITAL/CLINIC" and "Care everywhere opt out" Fill out the form you find (should be a simple one page with check boxes), and send it in!

Hopefully this will help someone else. I was just able to do it (and just saw the records are really not shared anymore!), and though being told my problems were psychosomatic was deep back in my chart, it's existence still made me nervous. Now I not only have diagnoses, but I don't have to worry so much about the past getting drug up.

#RareDisease #Undiagnosed #Disability #PTSD #PsychosomaticSymptoms #Psychosomatic #Undiagnosed autoimmune disease #autoimmune #PeriodicParalysis #FibromyalgiaDiagnosis #Fibromyalgia


Psychosomatic Symptoms (Symptoms caused by brain/mental health/stress)

Does anyone have helpful tools for psychosomatic symptoms? I’ve been getting these stress rashes since high school and they are so distracting. I use hydrocortisone both to calm the skin and to try to use the placebo effect to my advantage and trick my brain

#Anxiety #Depression #PsychosomaticSymptoms #Psychosomatic #BodyDysmorphicDisorder #Hypochondria

*I’m positive these are psychosomatic so please no advice saying that I may have *insert cause here * please. My doctor and I over the course of a few years in high school ruled out sun/ sun allergy, body wash, lotion, detergent, food allergies, seasonal/environment allergies and probably some I’m forgetting probably forgetting

See full photo

Introduction #Depression #Anxiety #Migraine #Psychosomatic

As this is my first post, I'd like to introduce myself (in the allotted number of characters). Perhaps you'll read something interesting or that we have in common & would like to discuss it--let's do that!

I am an RN (my 2nd bachelor's degree) & mostly work with a pediatric population in the home setting. My clients' special needs care varies widely--from generalized I/DD to complex disorders requiring ventilators, trachs, feeding tubes, ventricular shunts, seizure management, etc.

I've been diagnosed with major depressive disorder & anxiety, with symptoms starting around the age of 18. I've had regular migraines & tension headaches since I was about 9 & have tried almost every med that numerous doctors/neuros have tried, retried, combined, & recombined, & have suffered through almost every adverse effect. I still have about 20 migraines a month & a regular headache almost daily. I just started a new biological injection med for the migraines that induced one lasting 8 days. Current meds include Effexor, Lamictal, Topamax, & an anxiolytic BID.

I am prone to psychosomatic pain* under extreme mental & emotional stress. I experienced idiopathic chronic pelvic pain on my left side that left me debilitated for a large portion of my junior & senior years of college (getting my BA in biology/cognitive psych). About 2 months after I graduated, it went away. I've had episodes of compulsive self-harm (hitting) in the past.

*Please ask me about psychosomatic pain if you are unfamiliar with it--it is NOT the same as factitious disorder or malingering.

I am excellent at what I do & expect the same of others; I'm easily frustrated by other people's lack of effort or keeping with organizational tools that I create to improve communication & continuity of care. I tend to take care of others even at the expense of my own mental/physical health, & can go on doing that for quite a long time. My life is nothing like I thought it would be. I'm now almost 40 & single with no spousal prospects, & no kids. I have no property, no savings, no retirement fund... I want very much to change but am often paralyzed by fear of failure when it comes to the point of action. I didn't used to be like this. A series of setbacks has steadily chipped away at my self-confidence. I used to think I would conquer the world. Now I just aim to get through the day.

I love gardening & generally playing in the dirt. I love my nephew (now 2 years old, born at the end of 2016) more than anything in the world. I'm an atheist but have studied energy healing & am a Reiki Master Teacher. I strongly believe in the healing power of human touch & connection. I like to get lost in the woods. I love thunderstorms. I like weird people. I appreciate wit, sarcasm, & a desire to learn & to teach. I'll talk to anyone about anything as long as there is mutual respect. I'm passionate about what I do & what I believe in. I am intrigued by darker topics, but probably because my heart exists in the light.

1 comment