Functional Neurological Symptom Disorder

Join the Conversation on
Functional Neurological Symptom Disorder
266 people
0 stories
18 posts
  • About Functional Neurological Symptom Disorder
  • Explore Our Newsletters
  • What's New in Functional Neurological Symptom Disorder

    How to stay positive during a flareup?

    How do u stay positive when u have a flareup? Struggling so bad right now. #FunctionalNeurologicalDisorder /ConversionDisorder #Depression #Psychosomatic #FunctionalNeurologicalSymptomDisorder


    Ho dose anione cop wib sesures


    Me note abel cop animor me hab one fore hr an half jus note tak an jus hab enuff it no lif fore anion jus wana slip awy in sesur 🥺😭



    Does anyone else here struggle with anxiety about the future? I keep worrying about a few years from now. Will I be able to go to college or have a job? I don’t know what will either be given to me or taken from me health wise in the next few years. It’s scary. It’s hard to do my treatments because sometimes I feel like they are just temporary and I’m the end I’ll never be able to be an independent adult. I don’t even know if it will be safe for me to learn how to drive in a few months or if I’ll pass the tenth grade. Everyone keeps telling me to focus on my life right now but I don’t like my life right now. I’m struggling in school, having CFS crashes, pain flares, and unexplained new symptoms. Sorry this is long and a bit of a crazy rant. It’s just hard to let go of worry for what my life will be. I’m scared that I’m fighting for a life that won’t be worth living.
    #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #FunctionalNeurologicalSymptomDisorder


    Sometimes it Still Just Sucks

    I’ve worked long and hard to be at my level of positivity and happiness. I try to keep going and not focus on the pain and stay positive. However, sometimes being in pain 24/7 just really sucks. I mean, I’m still a kid. I can’t live like my friends can. I feel like everything is a struggle. Like I have to push through every social interaction and online class and meal. One thing I’ve realized is you can still be sick and positive and happy. Even when it sucks, you can still be a fighter. #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #FunctionalNeurologicalSymptomDisorder #ChronicIllness #ChronicPain #Teen

    See full photo

    Take to time for yourself

    I allowed myself to have a lazy Saturday today. I made whipped coffee for the first time (lives up to all the hype) and watched Boy Meets World. I worked on a song I’ve been writing.I took a short nature hike this evening and took a relaxing bath with pain relieving bath salts. I challenge you to do something for yourself today. Take extra time to pamper yourself. You are worth it. #EhlersDanlosSyndrome #FunctionalNeurologicalSymptomDisorder #ComplexRegionalPainSyndrome #Spoonie #ChronicIllness


    Hospitalization Tomorrow 😬 !

    It’s the night before I get admitted for treatment and therapies for my chronic illnesses. Last year I was in the same program for 3 weeks. I don’t know what the time frame will look like this time. I’m realizing just how much I’m going to miss my family. My mom has been my main caretaker for so long and my advocate. She’s my best friend. So wish me luck, here I go... #Hospital #Inpatient #ChronicIllness #ChronicPain #EhlersDanlosSyndrome #ComplexRegionalPainSyndrome #FunctionalNeurologicalSymptomDisorder

    See full photo

    A Bedroom Easter

    This Easter is under strange circumstances for everyone, but especially my family. My dysautonomia symptoms amped up this afternoon and I couldn’t make it out of my bed for Easter dinner. My family wouldn’t let me eat alone; so they brought a table upstairs so they could eat with me. We had a Zoom call with my extended family. This Easter reminded me of how blessed I am to have a family to celebrate Easter with. Happy Easter!!! HE IS RISEN! #CRPSWarrior #Dysautonomia #FunctionalNeurologicalSymptomDisorder #EhlersDanlosSyndrome



    6 a.m. and counting.
    I am exhausted, yet cannot sleep.
    I am restless, yet cannot rise.
    So many thoughts, distractions, actions.
    So many tasks and necessary acts.
    Tapping, ticking, rocking, clicking.
    At last, I close my eyes and dream.

    #adhesive capsulitis

    See full photo

    Anniversary of My Inpatient Admission

    On April 1, 2019 I was admitted to an intensive inpatient program to control my complex regional pain syndrome in my right leg. I was experiencing debilitating pain rated worse than cancer and labor pains, my foot turned dark purple and became ice cold, my toenails fell off and skin on my foot peeled off. If someone blew on my foot, I would scream in pain. I went through hours of physical and occupational therapy, neuro and behavioral psychology, and recreational therapy in the hopes that all this work would bring me relief. I came out of all of this three weeks later, walking using a walker with a much lower level of pain. I was able to hang out with friends, go to school, and do these things with far less pain. I’m so grateful to my hospital for giving me my life back. #ComplexRegionalPainSyndrome #CRPSWarrior #FunctionalNeurologicalSymptomDisorder