Functional Neurological Symptom Disorder

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🎶🎄12 Days of FND Christmas🎄🎶

I love Kirsty-Ann Johnstone’s re-writing of the classic Christmas song ‘The 12 Days of Christmas”! Such an amusing and creative way to raise awareness of FND.
#FND #FNDAwareness #FunctionalNeurologicalDisorder #FunctionalMovementDisorder #FunctionalNeurologicalSymptomDisorder #ChronicIllness #ChronicPain #SeizureDisorder @sassyfndlife

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My Continued Thanks 💝

This is just a short post to show my gratitude for your patience, support and understanding while I have been experiencing health challenges that have caused me to not post as much as I would like to, and usually do. As I’m sure you’re well aware of, living with chronic health conditions brings many challenges and I know that you will all be able to relate to the feelings of wanting to do something and actually having the physical ability to do it. Thank you all so much, I hope to be back soon. 🧡💙
#FunctionalNeurologicalSymptomDisorder #FND #fndaware #FNDAwareness #Fndlife #ChronicIllness #ChronicPain #JointHypermobilitySyndrome #BackPain #MentalHealth #Anxiety #Depression #Migraine #Spoonie #Selfcare

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Ho dose anione cop wib sesures

#FunctionalNeurologicalSymptomDisorder

Me note abel cop animor me hab one fore hr an half jus note tak an jus hab enuff it no lif fore anion jus wana slip awy in sesur 🥺😭

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Future

Does anyone else here struggle with anxiety about the future? I keep worrying about a few years from now. Will I be able to go to college or have a job? I don’t know what will either be given to me or taken from me health wise in the next few years. It’s scary. It’s hard to do my treatments because sometimes I feel like they are just temporary and I’m the end I’ll never be able to be an independent adult. I don’t even know if it will be safe for me to learn how to drive in a few months or if I’ll pass the tenth grade. Everyone keeps telling me to focus on my life right now but I don’t like my life right now. I’m struggling in school, having CFS crashes, pain flares, and unexplained new symptoms. Sorry this is long and a bit of a crazy rant. It’s just hard to let go of worry for what my life will be. I’m scared that I’m fighting for a life that won’t be worth living.
#ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #FunctionalNeurologicalSymptomDisorder

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Sometimes it Still Just Sucks

I’ve worked long and hard to be at my level of positivity and happiness. I try to keep going and not focus on the pain and stay positive. However, sometimes being in pain 24/7 just really sucks. I mean, I’m still a kid. I can’t live like my friends can. I feel like everything is a struggle. Like I have to push through every social interaction and online class and meal. One thing I’ve realized is you can still be sick and positive and happy. Even when it sucks, you can still be a fighter. #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #FunctionalNeurologicalSymptomDisorder #ChronicIllness #ChronicPain #Teen

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Take to time for yourself

I allowed myself to have a lazy Saturday today. I made whipped coffee for the first time (lives up to all the hype) and watched Boy Meets World. I worked on a song I’ve been writing.I took a short nature hike this evening and took a relaxing bath with pain relieving bath salts. I challenge you to do something for yourself today. Take extra time to pamper yourself. You are worth it. #EhlersDanlosSyndrome #FunctionalNeurologicalSymptomDisorder #ComplexRegionalPainSyndrome #Spoonie #ChronicIllness

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Hospitalization Tomorrow 😬 !

It’s the night before I get admitted for treatment and therapies for my chronic illnesses. Last year I was in the same program for 3 weeks. I don’t know what the time frame will look like this time. I’m realizing just how much I’m going to miss my family. My mom has been my main caretaker for so long and my advocate. She’s my best friend. So wish me luck, here I go... #Hospital #Inpatient #ChronicIllness #ChronicPain #EhlersDanlosSyndrome #ComplexRegionalPainSyndrome #FunctionalNeurologicalSymptomDisorder

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