TED Talks

My dream is to go at Ted x talks and just tell my story. To be honest I’ve always kept my illness a secret and even when I’m in a lots of pain I just tell everyone I’m fine just a bit tired. I’m just too scared to tell my story, I’m scared what will people think will they pity me or will I inspire them. So here is my speach

Hello everybody! First of all my name is Lily and I’m just so grateful to be here. I’m here to talk about chronic illness, chronic pain, invisible illness and Ehlers Danlos Syndrome. I won't lie to you saying that positive thinking or eating healthy will cure your illness no man. When you hear the words chronic or syndrome you already know that it can be treated but not cured. After I got diagnosed I started reading on Internet and ohh Lord I felt lost and lonely. I won’t lie to you telling the pathetic story how after I got diagnosed I felt good or that I knew what I had to do.Those are all lies.The first year after the diagnosis it feels like a dream no it feels like a nightmare you just can't wake up from. After the first year I told myself ” you're sick and disabled accept it or not this is never going to change so you can sit there and cry or just accept it and move on”. That moment I decided to accept the fact that I will never be like everyone else and that's ok. I decided to focus on the good side ” just because you can't run it doesn't mean that you can't walk” and so every time I envied my friends and their healthy normal lives I told myself ” just because you can't run it doesn't mean that you can't walk ”. They have their lives their mission and so do you. It's true you are sick and nothing can change that but you can change the view of chronic illness. That's how I found THE MiGHTY and since then I felt like I found home. Here we are all a big family we support each other and raise awareness ”We can't run but we can walk ” we are rare but we are here. Please follow us ”The Mighty ”

#EhlersDanlosSyndrome #ChronicIllness #ChronicPain #TEDTalks

Ted talks, Affirmations, and youtube motivational videos really helped me a lot. I am someone who cant easily talk and say things that I want to when it comes to what I am feeling. I’d imagine it million times on how I’ll tell someone but then ends up not doing it. So its good to hear and see those motivations everyday. I may have no one to talk to but at least I hear what I wanted to hear and I see what I wanted to see #TEDTalks #Youtube #pinterest #MotivationalQuotes