Trigeminal Neuralgia

When I was 10 yrs old I had my first migraine. Both my Mom and myself thought I was dying of a brain tumor. A trip to the ER put that thought to rest! I was given liquid co*ine in a horrible cherry elixir and swore I would never have a migraine again! As we all know that was a fruitless pledge. Here I am 69 yrs old and have the label of a chronic migraine sufferer (oh goody!). Typically I will have at least one a month if not more but they last days, not hours and are disruptive to my life. The last one I had was for 22 days... I've heard of people suffering longer. Sometimes I can continue to function, albeit at dimmished capacity. Other times I am bedridden, moaning that my pillow hurts. This last bout was a lot. I broke down and went to an urgent care but they couldn't help me. I waited 7 more days, hoping my neurologist would return my calls then went to the ER. They were more than nice to me. A migraine cocktail was given, twice, with no relief. Then I was asked about my Occipital Neuralgia history (from a fall) and we decided on nerve blocks. I finally got some relief, if not all the way symptom-less. I hadn't connected my migraine to the neuralgia as up until the last couple of days, I didn't have pressure or the electrical like zaps I usually get until the last few days. The shooting pains this time went from one side of my face across to my opposite temple then to the top of my head. . It was something new and unnaturally painful. I was told to consult my neurologist. I came away from that appointment with a new diagnosis: Trigeminal Neuralgia! A treatment plan was worked out. I will be having nerve blocks every 4 weeks until everything settles down. What I learned was migraines irritate the nerves due to a bunch of reasons but in my case it was most likely from tension in my shoulders from being in pain that set off the Trigeminal/Occipital nerves. This time instead of simply (!) having a migraine, I hit the triffecta! I had no idea that was possible. My chronic migraine history is now complicated and I must admit I am a bit daunted by it. I am frightened the pains will return. I figured I would write all of this out and reach out to see how many suffering with migraines have either Occipital or Trigeminal neuralgia or both and if so, how do they deal with them. I am completely incapacitated when the Occipital Neuralgia hits.

Hi, my name is Iris. I've been diagnosed with Bipolar then major depression then finally my last psychiatrist diagnosed me with Borderline I am curious and in need to connect with BPD societies and i have passion for psychiatry, reading people my own way and getting through to them helping them and saving them from their selves i have done that almost enough, rescued the life of 3 ex bestfriends with suicide ideation over-dosing then seizing and biting their tongues, cutting over and over and the worst part since i attempted the act myself i thought of my brother then i ran to call "friends" none answered none got even back to ask about me assure my health. i walked to the hospital i bled so much that i fainted on the emergency entrance. some of my traits that i am proud of is that i wear my garbage that's why i can stand out to everyone else cause i don't like to lie even if suicide attempts are a felony here. and i have been cheated on in front of my eyes with no remorse or guilt i saw my gf having sex with a guy who turned out to be her boyfriend all time long along with me and another two. i got hit violently afterwards by both my ex and her boyfriend, that i couldn't move for 6 days. i was so far from home. i was abused in every fucking way. my parents are divorced and this house was built and bought in time of distress. i experience a lot of symptoms of other coexisting disorders especially bipolar, mania major depressive OCD excessive delusions illusions and hallucinations *rarely but more than it should*. and the fear is accelerating to protect my wellbeing cause i am living my life with one final act in this life, how i will go, i don't think i believe that it's gonna be suicide.
#MightyTogether #BorderlinePersonalityDisorder #BipolarDisorder #SocialAnxietyDisorder #Addiction #TrigeminalNeuralgia #MajorDepressiveDisorder #Bipolar2 #ADHD

Hi, my name is PlayfulWren18923. I'm here because

#MightyTogether #ADHD #Crohn 'sDisease#Endometriosis #EhlersDanlosSyndrome #TrigeminalNeuralgia

Hi, my name is SomeNerve. I'm here because I am a 21 year veteran of chronic facial pain and I have written a lot about it. I am hoping to have some essays published here.

#MightyTogether #TrigeminalNeuralgia #TN #facialpain

Hi, my name is Crowdreamer. I've been diagnosed with

#MightyTogether #Anxiety #Depression #Fibromyalgia #ADHD #PTSD #AutismSpectrumDisorder #SjogrensSyndrome #TrigeminalNeuralgia

Hi, my name is BeTheLight406. I'm here because
I have been recently diagnosed with Trigeminal neuralgia (TN) still attempting to navigate what this means to my life!

Hi, my name is Mightymouse4. I'm here because

#MightyTogether #MultipleSclerosis #Fibromyalgia #Diabetes #Osteoporosis #TrigeminalNeuralgia #BellsPalsy #Anxiety #Depression

Hi, my name is Crosscountry2. I'm here because my husband has trigeminal neuralgia for 13 years. I was married fir 5 years before he got sick. He is in so much pain. This disease has completely ruined are life. I just retired and am not looking forward to this life of watching him suffer and watching everyone live life.

#MightyTogether

If you've ever felt a sudden, stabbing facial pain so intense it stops you in your tracks — you may already know the agony of Trigeminal Neuralgia (TN).

Often called the “suicide disease” due to its severity, TN is a chronic pain condition affecting the trigeminal nerve, which carries sensation from your face to your brain. Even light touch, a breeze, or brushing your teeth can trigger excruciating electric shock-like pain.

😞 Life with TN isn’t just painful — it’s unpredictable, exhausting, and isolating.

💡 So, where does PEMF come in?

PEMF (Pulsed Electromagnetic Field) therapy uses low-frequency electromagnetic waves to stimulate the body’s natural healing processes. While it's not a cure, PEMF has shown promise in:

✅ Reducing nerve pain and inflammation

✅ Supporting nerve regeneration

✅ Helping with sleep, mood, and stress — all of which can worsen TN flare-ups

✅ Improving blood circulation to affected areas

Some users report gentler, less frequent attacks and improved daily functioning after consistent use.

⚙️ How to use PEMF for Trigeminal Neuralgia:

Choose a device with adjustable intensity and frequency

Apply gently to the affected side of the face (always avoid direct eye contact area)

Use low frequency (2–10 Hz) sessions daily or as advised

Always consult your healthcare provider, especially if you have implants or are on medication