allinmyhead

I've had chronic pain for 20+ years. I've tried many medications, infusions, injections, etc. My husband's best friend has been experiencing chronic pain as well, is on opiod therapy but wants off and was going to talk to his pain management MD about alternative therapies. So I told him to ask about Namenda (memantine) as I've been taking it for a few months with some success. So my husband shows me a text from his friend, which basically says that his doctor thinks it's all in my head and that the medication is crap. And he processed to tell my husband that my pain must be all in my head as well. I'm just so hurt and really angry. I don't know how to respond to this. I was only trying to offer a suggestion that might help him. I didn't expect this type of response. #allinmyhead #friend #help

What if when doctors can’t explain what’s causing your symptoms they simply told you that they did not know what was causing them rather than trying to convince you that it’s all in your head. (Wild, I know). #allinmyhead #MedicalPtsd #Gaslighting

Being chronically ill for over 20 yrs now and ongoing visits to doctors and specialists I've definitely discovered the great importance of becoming my own health advocate. Communication via the medical staff is sometimes literally ABSENT!!!! Overall, I'm pretty satisfied with my care team but does anyone feel like their Dr's are thinking all what u r feeling is imaginary? All the tests performed, lab work and still no definitive answers on what's going on. Finding a compassionate, understanding, extremely knowledgeable doctor is, in my opinion, more challenging nowadays. To b honest, I've lost some respect for medical professionals. Not all of them r willing to actually take extra time with their patients and research his or her condition. They r too quick to pass u on to another doctor, then another. I realize they r limited to a certain amt of time with each patient, but many medical facility websites offer patient portals as a way to communicate with their team. Doctors really need to gain that patient/doctor relationship and b continually monitoring patient progress, researching possible answers to mysterious symptoms. I will give u one perfect example: prior to my immune deficiency diagnosis in March 2013, I had multiple lab draws to check various blood levels. I was suffering infection after infection, given tons of antibiotics. Back in 2000, my eosinophil levels were way off and absolutely nothing was done about it. Other lab tests throughout a 13 yr span depicted the same results. If doctors had treated me at the time these levels were so messed up, I'm pretty sure my life would b a lot different today. So sorry for the super long post. Please share any similar experiences and your feelings on the medical community. Thanks for reading.

I feel empty.
I feel lonely.
I wanted to cry...whimper
I wanted to vent!
Is there anybody out there for me? Anyone at all?
It has only been a matter of 'what if'
I wonder who/where/why/how...
How did it get to this stage?
Did I do something wrong? My mind keeps telling me I did. My heart keeps beating fast. Heading in a direction of the unknown. Fear of the impossible. What disappointment. Finding my own self in someone else. My happiness. In search of it. How to explore it? Find my spark of joy!
What is my worth?
Knowingly aware conscious of my actions but doing it anyways
Painful
Endlessness
Hopefulness
Hopelessness
Felt a longing
Make effort
Fall flat on my face
Falter
Failure
Alone
Imagine the separation being compared
Not having a partner
Society expectations at the age of 25
Family ideals

19/03/2018
#Anxiety #Selfworth #mindset #Selfesteem #whereisthelove #MentalHealth #Stress

I finally got to a point where I asked for help and initially I thought I was actually being listened too and getting the help I needed...today has just proved how incredibly wrong I was!

How can everything I’m experiencing be nothing?! If that’s the case what A fucking piss poor existence! There is no way I can continue living if this is all there is!
#allinmyhead #helpless #MentalHealth

I have chronic pain caused by extreme abuse as a child - finally confirmed that it's not #allinmyhead . 5 corrective surgeries later I'm stable but the pain will be a lifelong. My pain mgt dr has luckily been tremendous but only 2 ways to treat are left. He told me today that if they don't work I'm on my own because pain meds are not allowed long term anymore. #floored What am I supposed to do to cope with huge daily pain if the procedures don't work??? His suggestion was speak to my psychiatrist. Are we really back to that AGAIN? I am terrified - I just can't do that.....
#ChronicPain