Amblyopia

Join the Conversation on
28 people
0 stories
4 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post

Reflection In The Water

Water
No one tells it what to be, how to be
Water flows continuously,
water keeps going,
Content with what it is.

Made up of many molecules, all vital for the element
I, too,
Am composed of so many things
All essential to make me who I am
Though it is not always
Viewed that way.

And when the moon is risen
Darkness has fallen on the world,
there is light, reflection, in the lakes and rivers,
Reflection in ourselves.

Reflected in the water, I am
Crooked
Light refracted
Simply the girl who has the
Awkward smile,
thoughts she doesn’t
Say,
Emotions in her eyes,
and legs that are her chains—but only if
That girl allows
Her legs to define her.

I make a choice
When I look at my
Reflection
One foot on the water
The reflection ripples, is
Gone,
Unreliable.
Unreliable like my legs can be
Unreliable as my steps, legs shaky,
One foot drags behind me,
Binding me, holding me
Down
But I am not the way I walk

When I look into the water, there is so much
And so little
I can see
I can see how I hold myself
I can see my legs,
I can see all the little things
The tells—
Fingers digging into my skin;
Arms tight with anxiety;
Head tilted downward;
Eyes meeting the floor—
That make me
How I don’t want to be seen.
The way
I don’t want others
To view me.

When I look into my reflection,
I wonder
Is my reflection all that other people see?

There is so much more
Beneath the surface of the water
So much more
Beneath my surface
If only people are brave enough
To dive beneath the water

God put my cerebral palsy
On my surface
God put my
Crossed eyes
Hesitant smile
Crooked legs
on my surface
But what a blessing it is
My reflection isn’t all of me

Through my reflection
I teach others to see
Not everything is as it seems
Not everything can easily be defined
Not everything can fit into a label
I am not made up of labels.

For those that choose to see
My inside
Hopefully you see

The happiness
in my awkward smile
The emotions
in my crossed eyes
The effort
in my gait
And all that my reflection can’t
Show you,
Or tell you.

My reflection can’t tell you
How grateful I am for kindness
My reflection can't tell you
My passions
My goals
All I have gone through,
All I have done.

My reflection is limited,
Is so flawed
Not just because
my legs are flawed
But because
The reflexion shows my physical struggles
Only
My outward appearance
Only
My reflection is accurate to those who see
With their eyes,
Not with their heart.

Water goes with the flow
Is content with the way it is
Water offers so much to the world
Is seemingly simple,
But made up of so many complex
Parts, so many
Molecules.

As I step through the water,
The next challenge
In my life,
My left knee bent toward
My right leg,
My arms tight
Against my sides,
My eyes crossed, yet seeing so much;
My left foot, turned inward though it is;
Strikes the water
Shatters my reflection
And I smile
The watery reflection never represented me,
Truly,
anyway.

I am like water.
Content with who
I am,
Made up of
So many things,
Seemingly simple,
I can offer so much
To the world—
If only people see
Past my reflection.

#themightypoets #CerebralPalsy #Amblyopia

2 reactions
Post
See full photo

Amblyopia

What amblyopia looks like. Like a lazy eye but unlike a lazy eye It only goes “lazy” when tired or by my own will. Some people with amblyopia might have more significant misalignment. Amblyopia is a condition where a child’s eye begins to favor one over the other for one reason or another (often starting in infancy) causing a difference in vision between the two eyes significant enough to result in eye misalignment due to the brain turning the eye off to prevent double vision. People with amblyopia have poor depth perception (which requires two eyes working in harmony) and can’t view 3D very well. Other vision ailments may be involved as a possible reason for the brains favoritism such as cancer of the eye. Often times the cause of the favoritism isn’t known. Most folks with amblyopia are farsighted not nearsighted. Including myself. But I hate my glasses. :P

It’s important with new born babies to understand they are generally all farsighted. They say babies only see bouts at birth. “Yep that’s my mommy! That big blobby thing over there!” Lol and that doesn’t mean they have any vision problems. They’ll likely outgrow it.

#Amblyopia #Strabismus #CPTSD #BorderlinePersonalityDisorder #EhlersDanlosSyndrome #PolycysticOvarySyndrome

P.s. yes I’m safe with my guns! XD when you live your life with vision deficits you’re brain finds a way. When shooting everyone uses their best eye to aim. That would be my eye staring right at you. My left eye. Also my farsightedness has yet to disable me from things. If anything it makes me a better shot since I don’t stand right in front of my target lol.

5 comments
Post
See full photo

Face Reveal

What do you think guys? Can we make insomniac eyes trendy? Lol Seriousky though I have photos where my phone flash highlighted my insomnia eyes and my dad asked me who punched me. Wha? Punched me? These are just my eyes dad. He was like “oh man.” Gee thanks! Girl loves to hear that! 🙄

P.s. my shoulder tattoo was a bonding thing with my birth mom and half sister. Now it’s just a reminder that my mother ruined my life. Well she had a big part in it. She cost my sisters and grandparents. I got this tattoo in a basement by the way. My birth mom thought that made her “cool.” News flash. Cool moms are usually bad moms. It’s true.

P.s. I’m looking down at the camera because if I look straight ahead I look… like I have a heart shaped face. But I’m an oval lol. And it looked WEIRD. I was all chin and I hardly even have a chin! Okay to be fair I have more chin then when I weighed 280. But I forget it’s there. And still its not much lol.

#PTSD #CPTSD #Insomnia #Trauma #Abuse #Depression #BorderlinePersonalityDisorder #EhlersDanlosSyndrome #ChronicMigraines #IrritableBowelSyndromeIBS #PosturalOrthostaticTachycardiaSyndrome #PolycysticOvarySyndrome #esophagealspasms #JackhammerEsophagus #Amblyopia

1 reaction 8 comments
Post

I was born sick

That a actually might be a line from a song, the song just alludes me at this current moment. The #Weather is dreary, and messing with the #barometricpressure , so because I have #Hydrocephalus I feel like poop.

I don’t know what people go through when they become ill, it’s extremely hard to empathize, with them. I don’t know. I was born at #28weeks gestation, and 2lbs 4oz. I was also dxed with #CongenitalHydrocephalus , #Amblyopia , #Brainbleed and later, learning disabilities and cerebral palsy, #AntiphospholipidSyndrome and #Autism.

I have been wrongly dxed, and had pills shoved down my throat that made my feel zombified. I’ve spoken to my peers about why my head is shaved and why I have a gnarly scar on my head, or why I can’t participate in a sport.

But I don’t understand what it’s like to be normal and feel grief about being ill.

When I get a new dx, it’s just another bunch of signs and symptoms to watch out for.

And my main concern is, will this shorten my life span.

Most people I encounter have been dxed later in life, and they have no idea how to process pain, tiredness, taking pills, doctors visits... #Surgery, #Complications . None of it.

It’s just all so interesting from a ##spooniesincebirth
Perspective.

1 comment