surgery

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    How to cope when you feel the burden of your disease is all on yourself?

    A wonderful person on here gave great advice that knowledge is power. It feels very true for fibro at least for me. Along with a recent diagnosis of fibro, I also deal with OCD, Anxiety, & Depression. I also deal with recent diagnosis of PTSD & a birth defect in my kidney.

    I recently had surgery on my kidney 4 days ago. I told the doctor that I had fibromyalgia before the surgery. Unfortunately, I just googled today surgery and fibromyalgia. I feel irritated with myself because now I’m in a lot of pain and I just found out there were things I could suggest to my doctor to decrease my pain. Like local anesthetic into injection sites and magnesium drip so I didn’t have to wake up from anesthesia with so much muscle cramp pain.

    I feel irritated with my doctor that she didn’t know these things but as a healthcare professional I understand why.

    I just feel like I have to know everything all the time and it’s exhausting, lonely, and disheartening. #Fibromyalgia #Surgery #DaVinciSurgery

    1 person is talking about this
    Community Voices

    I need #Prayer

    Hello, I just joined. I’m Laurel.

    I had #Surgery on Wednesday for a #Cataract in my right eye. I had surgery on my left eye 2 weeks before. I have #Fibromyalgia , #chronicvertigo , #Deaf left ear and #HOH #HardOfHearing in my right ear, #MDD , #Anxiety , along with many other medical issues. My left eye was nice & easy. My right eye got a scratch on it in the first 24 hours, It has yet to focus. I have antibiotic eye drops along with the 2 anti-inflammatory drops. So many drops!

    I want my sight back so I can drive our daughter around. We #adopted our 2children from Russia in 2004. Our daughter has #FAS (fetal alcohol syndrome). She is afraid to drive, so she still lives with us. Without sight, even with glasses, I can’t drive Gabby around. Please #Pray for my sight to become sharper.
    Thank you 😊

    7 people are talking about this
    Community Voices

    Stapes surgery: your thoughts/experience
    #Deafness #autoimmune #MyastheniaGravis #Surgery #ChronicIllness #sjogren ’ssyndrome #POTS

    I have very severe cochlear otosclerosis with severe to profound hearing loss in both ears and multiple autoimmune and chronic conditions. Since I am using hearing aids on both sides but getting little benefit from one of them due to the severity of the loss and difficulty with speech discrimination too, my doctor wants me to undergo a stapedectomy. I’m pretty nervous to undergo this surgery and would love some feedback about pros and cons and any alternatives I may be missing. Thanks!
    #Deafness #autoimmune #MyastheniaGravis #Surgery # chronic illness# sjogren’ssyndrome #POTS #Hearing loss

    4 people are talking about this
    Community Voices

    Feeling lucky

    <p>Feeling lucky</p>
    4 people are talking about this

    How Spinal Surgery Affected My Son With Spinal Muscular Atrophy

    I didn’t know that I wouldn’t be able to pick you up again. I didn’t know that your body wouldn’t bend. I didn’t know that my upper arm strength was so weak. I didn’t know that spinal surgery would change everything, not just the shape of your frame. I didn’t know it would be the last day I held you in my arms. I didn’t know I wouldn’t dance with you again to silly songs. I didn’t know it would stop you from sitting in my lap. I didn’t expect everything to change in an instant. If I had known, I would have held you for longer before placing you on the gurney for your procedure. My only regret is that I miss the feel of your comforting weight, but I wouldn’t change the outcome either. It is hard to stay sad when I look at you and see a smiling, relatively healthy, and happy kid, despite having spinal muscular atrophy, doing great. My arms may be empty, but my heart is full and lightweight.

    Community Voices

    Ovary Removal

    <p>Ovary Removal</p>
    2 people are talking about this
    Community Voices

    Another day, another trip to the hospital, another procedure…the fun never ends. Being what I call a “professional patient” helps but it’s still scary

    <p>Another day, another trip to the hospital, another procedure…the fun never ends. Being what I call a “professional patient” helps but it’s still scary</p>
    16 people are talking about this
    Community Voices

    What was the last health scare you had and how did it make you feel?

    <p>What was the last health scare you had and how did it make you feel?</p>
    22 people are talking about this
    Community Voices

    ALL APOLOGIES

    I am SO sorry to have evaporated and left messages and requests hanging while I had a surprise surgery! Please accept my apologies and let's head this off in the future--would anyone like to co-moderate this group, please?

    Many thanks for your patience and understanding.

    #surprise #Surgery #moderatorsneeded

    1 person is talking about this
    Community Voices

    What would your ideal doctor’s office set-up look like?

    <p>What would your ideal doctor’s office set-up look like?</p>
    42 people are talking about this