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Anyone with babesia has a swelling gland like this? #Babesia #Babesiosis #LymeDisease

Since the first time I got babesia, I had this huge swelling. It’s benign, not dangerous. It’s liquid, the color is like a milk. I had a biopsy for this but, it grows bigger. At first it is 4 cm, now it is 8 cm.

Anyone experienced this?
Thank you

#Babesiosis

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A Rarity...Science Who? #MentalHealth #RareDisease #Babesia #Bartonella #LymeDisease #PsychiatricIllness #MoldPoisoning #NewScience

For as long as I can remember I haven’t felt good. Anxiety and Depression have always been words I’ve known, and have been overactive in my life. What was once thought of as regular mental illnesses have now been changed.

Before it was illness from nature vs. nurture but now I see more than the average Joe. I went to a new psychiatrist 6 years ago because no one within a 50mile radius would take me on as a client, I was too much, too many severe psychiatric illnesses. I was finally referred to someone that would take me on. This was like nothing I had experienced in my over decade long search for treatment.
I walked in and off the bat they wanted medical testing of my body, and let me tell you I was VERY caught off guard. I didn’t understand, why? Why do they want testing of my body when I came in for my brain? My brain is very resistant to medications.

It started with a urine test, an organic acids test to be specific. They were looking at my intestinal tract and not my brain, but I found out that the two are heavily connected. They call it the gut brain axis and it didn’t stop there. The results were in and they were not good in the slightest.

Next came all of these blood tests, they even sent my blood to Germany! I became positive for Babesia and Bartonella, two coexisting infections in the Lyme catagory. THATS NOT ALL FOLKS, they also found highly extensive markers for inflammation and MOLD. Moldy blood? Am I being Punk’d? I come to find out that my body has something wrong with it and they don’t know what it truly is, but whatever it is, it’s severely messing with my brain. My body is constantly having an allergic reaction and cannot properly get all of the toxins out of my blood. As of now, they do not know how to proceed without making my psychiatric illnesses 10 fold worse, but at least I have some answers as to why.

Once you hear these things you start flipping back through your life to think of where this could have come from. I grew up in old homes in the Midwest and it was very common for our basements to flood or be perpetually damp. I mean these are houses built either a few years before 1900 or a decade or two later. My father is also an acute hoarder. It’s not like what you see on television but it’s very similar. Did you know mold can look like dust on old papers? Especially old papers that have been in a damp, most likely some asbestos filled basements? Pro tip: don’t blow the dust off because it is not dust, it is mold, and bad mold at that.

Then I thought back to when I visited my sister whom I only found out about as a 19 year old, thanks dad. For the record I absolutely adore my sister. I have ALWAYS wanted a sister and the only thing I hold against him is not telling me sooner. Anyways, my sister had a cat that ran away for 3 weeks at 17 years of age. We knew the outlook wasn’t good but oddly enough Azreiel made his way back, but with fleas.
Who knows what has caused what but damn science, you scary.

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My question is does Lyme Disease have a Community Leader? I am not familiar with what Is ok to post, or if certain things have to be run past Leade

I see this is a support site. Lyme sufferers are having questions about how the CODIV19 virus impacts us. My LLMD as well as 3 other Integrative Doctors created a Panel Discussion Webinar with up to date information
on the whats, hows, whys we’ve been asking specifically relating to our Tick Borne Diiseases. One Dr. has 3 Lyme patients that contracted the virus right now. It is not just pharmaceuticals. It is a comprehensive chat. Please advise if the link to educate is ok. Thank You!
#LymeMSIDS #Babesia#Bartonella#learn

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How many out there with babesia?

Been working hard on diagnosis for 6 years. Always told I was crazy. No support from family.
Herbalist and zyto say babesia; a little research has me thinking it’s even worse than lyme. Life has been miserable. I gave a toddler and I’m a single mom. Got to get better.
Can’t find much about it. Anyone want to share real life stories, treatments, protocols, fair expectation; what works what doesn’t. Any insight. Please . Not sure how much more misery I can take. Everyone inch of my body is overtakem. Is there hope? Especially if I have to go it alone and I’ve lost everything trying to get help? #Babesiosis #Babesia #LymeDisease #lymes COINFECTIONS #Bartonella #herbalmedicine #zyto #alone #miserable #FlareUps

16 comments
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Disulfiram for Lyme+Co’s Update

1 month update
I have continued to take 200mg (coated capsule form) of disulfiram for the past two weeks. I have been experiencing a lot of herxing, nausea and diarrhea even though I am being careful of interactions. I am seeing my LLMD this week to talk about lowering my dose. Our original plan was to aim for 400mg but with new info and severe herxing that might not be the case. I have been reading lots of research from people who have only gone up to the dose they felt best on and it seems to work as good as those who took the max dose. I have noticed that when I’m having an okay day I have a lot more energy than usual and my brain fog lessens. I got my monthly blood work done and my liver is still doing good and everything else looks normal. I’d love to hear more from those trying this treatment. Let me know what you are experiencing and if you have any tips, thoughts or questions:) #disulfiramforlyme #LymeDisease #disulfiram #Bartonella #Babesia #ChronicEpsteinBarrVirus

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Disulfiram for #LymeDisease

I just started taking disulfiram as treatment for my Lyme disease plus co infections last Monday. Currently having minimal side effects but I’m wondering if anyone else is trying this treatment and what side effects their experiencing. Also still trying to figure out what foods and products to avoid to prevent digestive issues and major detoxing. #LymeDisease #disulfiram #Bartonella #Babesia #EpsteinbarrVirus #lymediseasetreatment

8 comments
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Lyme symptom #LymeDisease #ChronicLymeDisease #Babesia

I’m assuming this is a persistent swollen lymph node behind my right ear. doctors have checked it multiple times and don’t show concern. they tend to say they will keep an eye on it. I know that persistent swollen glands are a symptom of chronic Lyme, but do any of you have a history with one persistent gland in particular? it never seems to wax and wane and causes me a huge amount of anxiety.

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Lyme+ Co infections

I just found out that in addition to my previously diagnosed LymeDisease and Bartonella I also have Babesia, Ehrlicia (Anaplasmosis), and Epstein Barr Virus. Now to try and treat it all😑😬
#LymeDisease #Bartonella #Babesia #anaplasma #EpsteinbarrVirus

4 comments
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Should I have a will or medical directive?

As I lay here today in a haze of tears that have rolled down my cheeks and also been more like a waterfall today. So many of my symptoms are worse and continuing to worsen. I have Grey's Anatomy playing because I don't have to pay attention... because I can't pay attention. Someone has to decide if they should take someone off of a vent. I've never told anyone what I want in that scenario. I don't know what I want in that scenario....maybe I need to figure that out with how sick I am. #LymeDisease #MCAS #Babesia #Bartonella

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Lyme Diagnosis question


As many of you have probably discovered it is very challenging to get “proof” of babesia and other co-infections after the disease reaches the chronic mark. How have you all been diagnosed? What blood tests worked for you in the chronic stage? If you didn’t get “proof on paper” what helped re-assure you with a diagnosis based off of symptoms? #LymeDisease
#Babesia #Babesiosis #ChronicLymeDisease

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