Bilateral

I've been at this debilitated state for about 15 yrs several spinal fusions and now I have late onset muscular dystrophy. It's a complicated rare genetic mutation that slowly but surely is taking my muscles and keeping me in chronic pain. My Dr and I searched for a diagnosis for the past three years as to why I was loosing muscle mass and at the beginning of this year a diagnosis was partially reached.

The purpose of this boring prelude is to show how lucky I am to have such a caring Dr one who thoroughly takes the time during each visit. He actually spent time after work to study my case and is frustrated there is no cure or treatment just showing how much he cares.#DDD #MDD #OCD #MuscularDystrophy #Rare disease#Bilateral footdrop#Anxiety #IntrusiveThoughts #

#fibromyalgia#bipolar1#cptsd#ptsd#celiac#Bilateral plantar fascitis #chronic pains#preemie#a#noi care#noise cancelling headphones HUM ...

Hi, my name is CarolynJ. I'm here because

#MightyTogether #Fibromyalgia #Bilateral upper limbs and neck injuries

Just when I thought I was getting some answers & help regarding my spine issues and my hands being swollen. All this crazy stuff with me difficulty getting doctor appointments. My new primary doctor sent me for blood work and I have some not great results. It seems my bun-creatine ratio is High+ MCHC is Low ( signs of anemia) Carbon Dioxide in blood is High- there was slight blood in urine but also noted Rare Hyaline cast in urine (indicator of kidney disease). I think I want to throw up I don't know whether I want to cry or scream in frustration and anger. Still waiting to see the rheumatologist about my swollen hands knuckles leg foot. Finish up with my nerve ablations in my lower spine. And now this. I'm sensing (feeling a panic pulse) a medical tsunami and I'm just waiting to get hit.
#ADHD
#Anxiety
#chronic pain
#Costa chondritis
#idiopathic Angioedema hives
#Fibromyalgia
#Baastrop syndrome
#Osteoarthritis
#Osteopenia
#rheumatoid Arthritis
#Peripheral Neuropathy
#raynaud 's syndrome
#spinal stenosis
#Bilateral impingement syndrome
#Pleurisy W/D
#Shingles in the left eye