I’m NOT new. I actually founded this group😉 I have been dealing w/ layers & layers of health challenges. Thoughts, prayers & good vibes appreciated!
It is so exciting to see all the new members joining the group and so many of you introducing yourself and sharing about your journeys. I wish I could be more active & better support you all right now, however I have had to really step back & focus on self care. Big props and thanks to our new co-leader Wendy Love for jumping in to acknowledge and support you all with empathy, care and sharing her great positive energy!
Dealing with layers of health challenges right now can be overwhelming for me sometimes. Some are relatively serious, some have me scared while waiting w/ lots of “not knowing!” I have had very regular health appointments (4-6/wk avg) since November, 1 minor surgery, am getting a biopsy this week, have had 2 ultrasounds, and MRI’s of my neck, shoulder & back which were injured from a bad fall when I also had my second concussion in less than a year . So I’ve been in PT 2x/week since last year then two months ago I was diagnosed w/ a rotator cuff injury🙁
I had debilitating migraines back in 2020 from Long Covid that were finally getting better from working w/ my Neurologist… trying monthly shots, infusions & Botox, finding the right meds - one daily & two as needed at onset, using a special tens unit, and an ice cap, taking OTC painkillers, nutritional supplements, etc. Then after the 1st concussion I went right back to 14-16 migraine days a month🙁
Due to my lack of appetite & insomnia from the concussions, plus the migraines, my doctors made major med changes for 8 months. The challenge was that most were psych meds, leaving me just hanging on emotionally through severe ups & downs as I stopped 2 meds, added 1 & changed the dosages of 3 others! After all of this I have just recently had the migraines decrease in frequency and intensity👍
From the concussions I have also dealt w/ brain fog, and memory & concentration issues that made writing so frustrating, which have also been better recently.
I think it really helps me that from a young age I watched my Dad model how to deal with life threatening health challenges w/ determination, dignity, unwavering positive energy, humor, and being a warrior & survivor who never gave up hope! Then I learned how to survive through decades of health challenges myself… inspired by my Dad’s example. I was diagnosed w/ Bipolar Disorder (1982); I have struggled parts of my life with addiction (almost 12 years sober); along those paths I contracted HIV almost 40 years ago then I was very blessed to survive the 80’s when AIDS was considered a death sentence. With my weakened immune system I dealt w/ many serious complications like Pneumonia, Shingles, Bronchitis, C-difficile, and Neuropathy that had me bedridden for 9 months & told I may never walk again…which I still deal w/ today on a lesser level and in 2020 I got hit with Covid real bad, so I've survived two pandemics.
Earlier this year my perspective about everything I’m dealing with currently really shifted. I came to the realization that all my health appointments were helping me heal, cope, and I believe that they will help me to return to being active and thriving again. The blessing of being on disability is that it enables me to focus on my health and self care. I have accepted that taking care of my health is a full time job! It can be very Physically & Emotionally draining, yet I remind myself regularly of all the blessings I DO have. I take solace in the fact that it could always be worse. I am very thankful to have a roof over my head, food on the table, and to have a strong support network of friends, family & health providers.
I have learned to accept my limitations, and adapt as I live & evolve in other ways like focusing on writing my memoir & other reflections, starting this MHC group and posting regularly. In the first 18 months I made over 80 posts from June 2021 through 2022! I will repost select ones starting soon.
Sending blessings, virtual hugs and positive vibes your way! Please send some back…
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