Advice needed after rheumatology evaluation please

Advice needed after rheumatology evaluation please
I Think My Weighted Blanket Is Too Heavy for Me
I'm new here!
Hi, my name is chazzledazzle. I’m new to The Mighty and look forward to sharing my story.
Hello. I am new here. I'm hoping The Mighty and the groups within will be a help for me. And as soon as I get more familiar with it, I hope that my sharing will help others as well. I've struggled with mental wellness for as far as I can remember and am at a point in my life, with chronic pain issues mixed in, where it has become the most disruptive to daily living than it ever has before. I feel like every day is a fight, mentally and physically. I've decided to take time to look within and try to learn and hopefully, discover what changes are appropriate to make or things I can do to cope on the days when I feel all I am capable of is breathing. I call those days my dark days and there are more of them than not. It was alarming to me when I realized I was defining it a good day when at least part of it wasn't so dark. It has lead me to feeling ashamed, guilty, and worthless. My husband is supportive, however I don't like to share too much with him, about how big my struggle has become and what I go through, because I feel like I'm being a burden and don't want to bring him any worry or stress, as well as be a negative existence in his life. So I hide how bad I feel most of the time, which isn't easy. I'm a currently, non-practicing nurse, a wife, a mother to 4 grown children, and a grandmother to 12. I am very blessed, however I feel like I'm extremely falling short of being the best I can be to my family. And it's been hard to play a very active role in their lives for a while now. I almost panic when I have to interact for any length of time and get overwhelmed quite easily. The physical problems are contributing as well, and I can't help but wonder if they have been produced by my mental health issues. I think that about sums it up. Thank you for "listening". #ChronicDepression #Anxiety #Fibromyalgia #Osteoarthritis #DegenerativeDisease #PeripheralNeuropathy #CarpalTunnelSyndrome
Preventing Hand Pain by Writing with Compression Gloves
Who knew going out for a few hours would put u in a major flare.
Couldn't sit, couldn't stand, ever bump I hit driving hurt, etc, etc.
Please don't say feel better, get well soon, this to shall pass, etc, etc.
Just in need of support
I have
Congenital Hydrocephalus,
Retinaopathy of Prematurity
Hypertonia
Chronic Knee, Ankle Pain
2 L5 S1 Discectomies
Diverticulitis
Essential Tremors
Neuropathy
Possible RA
Carpal Tunnel Syndrome
Groin Pain
People just don't get it, understand, care, etc.
Got invited somewhere, probably not going to be able to move much
They got mad because they needed to know if I was coming by Thursday, I said, depends on how I'm feeling, they didn't like that answer.
Those to me, r so called friends and family.
That is why I consider yall my friends and family
#support
#care
#chronicpain
#ChronicIllness
#LetsMakeNewFriends
#themightylife
#MightyTogether
#noshame
#CheerMeOn
#ChronicFatigueSyndrome
#CheckInWithMe
#AloneTogether
#liftmeup
#MultipleHealthChallenges
#Chatspace
#EssentialTremor
#FamilyAndFriends
#Insomnia
#lonely
WeAre#MightyTogether
I'm New Here