ChronicIllnessAware

Functional Neurological Disorder (FND) is the second most common condition that Neurologists see and treat - headaches is the first - however, very few people, including a lot of medical professionals, have ever heard of it and even fewer know how to treat it. This condition has not only destroyed my life, it’s destroyed millions of others too. Living with any health condition and/or disability is hard enough, but, when it’s something that hardly anyone has ever heard of, it causes added stress, depression and anxiety to an already difficult situation. Without the amazing support, acceptance and understanding of my fellow Mighties, and the wonderful charity, FND Hope, who have actually provided me with more support and information than my medical team has, I think I would still be feeling lost and confused. FND Hope even provided me with a Patient Information Booklet which provided more answers than my medical team had. 🧡 This ‘World FND Month’ I would love to raise awareness of this awful condition in the hope that it will help everyone living with FND, myself included, feel more accepted by the world. Hopefully one day there will be a cure, or better treatment options available, for FND patients but in the meantime, something that would be really helpful would be not hearing replies such as, “What’s that?” And, “I’ve never heard of that.” Whenever I, and other FND patients, say “I have FND”. 🧡
#FunctionalNeurologicalDisorder #FND #FNDAwareness #fndhope #FND2021 #LetsTalkFND #Disability #ChronicIllness #ChronicIllnessAware #ChronicPain #ChronicPainAware #MentalHealth #Depression #Anxiety #Stress #MightyTogether #MightyMinute #CheerMeOn #52SmallThings

Even though this condition is the second most common neurological disorder that neurologist see, most people with Functional Neurological Disorder (FND) are passed from pillar to post, spend years stuck on one waiting list after another, endure test after test after test, before eventually getting a diagnosis. This was also the case for me, and it took over 2 years before I was diagnosed with FND. Once you finally get a diagnosis of FND, you are then faced with a whole different set of problems - there’s no cure, there’s no effective treatments, hardly anyone (including many medical professionals) have ever heard of the condition and even fewer understand it. Which means that you feel that you are constantly having to explain yourself and the condition over and over again. All of which makes it even more difficult on the person with FND and it’s time that changes, so let’s raise awareness of FND and break the stigma attached to it. #FunctionalNeurologicalDisorder #FND #fndhope #fndaware #FND2021 #LetsTalkFND #FNDAwarenessMonth #Disability #MentalHealth #Depression #Anxiety #MightyMinute #CheerMeOn #MightyTogether #ChronicIllness #ChronicIllnessAware #ChronicPain #ChronicPainAware #SpoonTheory #SpoonieProblems