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    The Best Night of my Life

    I have the best little brother in the world! I haven't been to a concert since 2001! We went to see Tyler, the Creator, Blood Orange and Goldlink! Tyler is my FAVORITE artist!! I never thought I would ever get the chance to see one of his shows. I had the best time of my life!! As an EDSer it is hard to go out to big events like this. I haven't went to any type of music shows since being diagnosed with EDS and the other invisible diseases. I honestly didn't know it I could get through a show to that magnitude but I did! I am feeling the aftermath today! My body is very angry with me, yet I'm still on cloud NINE!! I got to see Tyler last night! It was worth it all!! I will never forget October 3rd 2019!! #EhlersDanlosSyndrome #LifeofanEDSerwomanofcolor #Concerts #musclespasms #Energy #PosturalOrthostaticTachycardiaSyndrome #Music #bestnightever

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    Preserving Energy

    As the sun gets ready to set here in Atlanta, I am so excited about tomorrow night! I am going to a concert with my little brother. We are going to see Tyler, the creator along with Jaden Smith and Goldlink, some of favorite artists in music. So as I prepare for tomorrow, I am preserving my energy. This will be my first time going to a concert with my brother and the first time going to a big event with massive people in a big arena as an EDSer. As much as I am excited... I'm SUPER nervous too. I called the arena to see if I needed to bring anything extra or how will I get along with my wheelchair. I learned a lot from the friendly customer service agent I spoke to. I learned that when I get to the gate I can ask for wheelchair assistance to and from our seats. I was able to map out our seats and know how to move about in the arena. I have all my essentials in my clear bag and my emergency meds for just in case. I'm ready to have some fun because I deserve it! Keep fighting!! #EhlersDanlosSyndrome #Anxiety #zebrastong #keepfighting #Concerts #WheelchairUsers #Restisnecessary #preservingenergy #ideservealifetoo

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