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Hi, my name is yitzchak2112. I'm here because I’ve been a caregiver for my wife of 17 years, who has been suffering with long COVID for almost 3 years. I’m looking for support with some of the daily challenges I face.
Hi, my name is yitzchak2112. I'm here because I’ve been a caregiver for my wife of 17 years, who has been suffering with long COVID for almost 3 years. I’m looking for support with some of the daily challenges I face.
A memoir from a girl who lost her life to covid
I still vividly remember the chaos that erupted when COVID first broke out. It felt as though the world suddenly stopped in its tracks. Schools were shut down for what seemed like an eternity, and months turned into an endless stretch of online classes that became the new norm. What had once been simple routines meeting friends, going to the store, enjoying family gatherings were replaced with masks, social distancing, and an overwhelming sense of fear. It became impossible to walk into a store, a building, or even a park without seeing the world covered in masks. These small pieces of fabric became a symbol of a new reality we were all forced to adapt to.
Nearly five years after the first cases of an unusual pneumonia appeared in Wuhan in December 2019, nearly 7 million people have lost their lives due to covid, and some 65 million more continue to struggle with the infection’s mystery aftermath, a poorly understood syndrome known as long covid. Covid not only took the world by storm, but also wreaked havoc on the lives of many to this day. Though I wish it was, it’s not as simple as contracting a disease, and being over it within a week or two. It's catching the disease, and never getting better. It's catching the disease, and having a long list of symptoms you must now juggle on the daily. It's a disease you not only catch, but a disease you can never get rid of. It has been observed throughout the past 3 years that covid has had a profound effect on the autonomic nervous system. Interestingly enough, these lingering symptoms are often different from the traditional symptoms of covid itself. This includes affecting blood pressure fluctuating out of control, orthostatic hypotension, palpitations, brain fog, fatigue, impotence, bladder dysfunction, alterations in bowel function, and gastrointestinal issues. The wide range of symptoms listed really highlight the multisystem nature of long covid and its ability to disrupt various body functions. It is a sad reality our nation is having to face, and a reality many young people are facing. It is not only older adults, but we are seeing more and more cases in teenages and young adults. These young adults' lives are often significantly altered forever, and they may never reach their full potential because of the long term effects this disease causes.
Hi, my name is Sue99. I'm here because I have ME/CFS symptoms made worse by Long Covid. Looking for support and answers - hopefully a laugh sometimes too x
Hi, my name is vicimic. I've been diagnosed with many illnesses starting with small insignificant things that I took too many antibiotics for, (UTI's, Parasites) that then created many health issues. From Cdiff, stomach problems, a heart condition, bowl issues, bile salt malabsorption, hair and weight loss then long covid. Now I just live in constant pain and exhaustion. I am looking to try and find people who understand some of what I am going through and to find out what has worked or not.
I hope you all have been having a great new year, and are staying warm and safe. Honestly, I myself have been struggling and I wanted to share what I wrote about my current experiences living with bipolar disorder. I will share more about the other challenges I have been dealing with over the last year that have all combined to feed into my emotional & mental struggles in a future post.
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There is a roulette wheel in my head…
…and sometimes it just won't stop.
The ball keeps spinning, never settling in a slot
I look to my right and see black
To the left I see red yet I’m stuck on the track
I feel like a hamster spinning in his wheel
For hours into the night until I can't feel
My legs should have been tired hours ago
Yet I didn’t notice anything so lost in the flow
I'm trapped on a spinning merry-go-round
Going up and down to the cacophony of sound
My horse hugs the pole, and I can't feel my butt
It doesn't seem to matter as I am stuck in a rut
I'm on a race track speeding round and round
Hurtling at high speed, almost off the ground
As I'm going so fast totally out of control
No brakes, no down shift, just on a crazy roll
I'm in suburbia driving in circles on a roundabout
Yet I can't see the exits and make a turn out
Circling around, my steering wheel is stuck
I speed up, I get dizzy, this is just my luck
It seems in these cycles I’m always alone
I hide, avoid and ignore, never pick up the phone
It is a lonely place yet my history proceeds me
I'm so ashamed to be weak and desperately needy
Then there are the mountains to climb
I hike really fast I'm having a great time
I sprint to the top emboldened & inspired
With unlimited energy when I'm totally wired
Yet what goes up must come down
And I tumble and tumble smack to the ground
There is absolutely nothing left of that energy
Its suddenly pitch black dark and I can't see
There are poker games near the roulette wheel
I'm a winner, it's destined, I’m a real big deal
Bid big on a pot the chips are all mine
Then I go all in and moments later I find
My hands are empty, I completely lost it all
My savings are gone as I took the fall
I slink out the door can't even afford a ride
Won't call a friend, and break through my pride
The hamster on the wheel has fallen to the ground
Can't get up although I ‘m desperate to be found
Once again on the ground I just can't move
Lost my momentum and fallen out of the groove
The park has way since closed and the merry-go-round is shuttered dark
Yet lying at the foot of my horse
I lay lost without a hint of my spark
I noticed the the paint is cracked & faded
It shows its age, is it all overrated?
My cars battery died in the middle of the track
Under the hood my wiring was way out of whack
Can't start up again as I’m just stuck in place
It looks like its destined I’ll never finish the race
I often wonder when will these cycles ever end
Will I ever find balance or just have to pretend
Like I have for decades… everything is just fine
While I’m shut down, lonely and lost in my mind
I need to embrace support available to me
Ditch the shame & pride so others can see
What's really going on as I struggle inside
It certainly has not helped me to run and hide
Can I accept support, admit when I'm so down
Or I’m high in the clouds lost to be found
I don't need sudden riches, today I ‘ll just survive
I've found the glory & blessing that I'm still alive!
Moshe Mark Adler
21st February 2025
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(the photo is mine - I have been exploring nature photography)
#MentalHealth #Depression #Anxiety #Bipolar2 #Bipolar1 #BipolarDepression #BipolarDisorder #ADHD #ObsessiveCompulsiveDisorder #Addiction #AddictionRecovery #PTSD #ChronicIllness #ChronicPain #SocialAnxiety #Disability #Grief #DistractMe #CheckInWithMe #ParkinsonsDisease #Headache #Migraine #IfYouFeelHopeless #Trauma #COVID19 #InsideTheMighty #MightyTogether
Hello all, I’m Kat and I have a few challenges so I thought I’d come find my people as well as be a cheerleader for those who are struggling. I have C-PTSD, borderline personality disorder, and some symptoms of bipolar 2 disorder (they can’t say yes or no on the bipolar because the symptoms could be the C-PTSD and Borderline. all three disorders and all symptoms are covered by an umbrella cause - prolonged, consistent trauma. To top it off, I also was diagnosed with anxiety, panic disorder, and akathisia. I also have chronic fatigue syndrome and long COVID, thanks to having been positive for COVID 5 times to date. While trying to diagnose the CFS, they discovered I have asthma and a vocal cord disorder. I am a mom of 6, a wife of a man who could not possibly be anything but an angel, I’ve been in Human Resources for over twenty years, I am a trauma informed life coach and working on starting my private practice, and I recently became published author.
Hello everyone. I was so excited to see that this group exists. I was diagnosed with long covid a couple of years ago when I was having prolonged difficulty breathing. X-rays found ground-glass opacity in my lungs as a result of long covid. I have had COVID-19 five different times ranging from severe to mild. As a result of the many COVID-19 infections and the Long Covid, I have developed ME/CFS. I have a long road ahead of me, but I am up for the challenge. #COVID19 #ChronicFatigueSyndrome
Hi, my name is Scootet1974. I'm here because LONG COVID HAS WRECKED MY WORLD!
#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #HemiplegicMigraine