ExplainMyPain

#Fibromyalgia #ChronicPain #ChronicIllness #InvisibleIllness #ExplainMyPain #familyresources

I’ve been thinking about this a lot, in two contexts. First, as a mom with #CrohnsDisease and #Endometriosis how to I explain things (bad pain days, trips to the bathroom, taking medicines) to my daughter? But, I’m also reflecting on being diagnosed at 12 years old. What language/words could I have used with friends and classmates to better explain my illness and help them empathize and understand, rather than tease and bully? #ExplainMyPain

#Fibromyalgia #Howtoexplainfibromyalgia #DepressionAndMentalHealth #ExplainMyPain

Hello, I’m struggling to explain to my bf - who is from a very small town, about my mental health. It seems he can’t grasp it as he is too logical. He thinks people should be able to stop/start doing things they should/n’t do to better their health. How can I explain such a complex thing to him. And that telling me to “relax”, “drink water”, “have vitamins” - although great things to do - arent what I need to hear when I’m having a breakdown/ panic attack or just explaining my feelings. Are there any good materials that I could send? Ideally I’m going for things that are more matter-of-fact. a

Do You ever get an inexplicable need to hug someone specific? So strong you think you might cry if you don’t? I’m not sure if it’s from my depression, anxiety, exhaustion or some combination of the 3. #Depression #Anxiety #ExplainMyPain

#ExplainMyPain

My pain is like havung a chqrlie horse all over my body.
My pain like like my nerves have a fireworks show every day.
My pain is like driving a car but have no control.
#ExplainMyPain

We are warriors drafted for war
In our own lives
That we feel sometimes we
Can't take no more.I
But we are human after all
But we rise after we fall
We gain strength and wisdom
from it,
We cry, we scream
Nd we let it out
It's what is fucking
 WARRIOR'S ARE ABOUT
We hide the fear
Of the pain, knowing it's
 there and
That it will hit u again. 
But we push through
The days.
We smile an look ok
At times our smile
Quickly faces,
We lay at night not
Able to dream
From the complexities
Of our life.
Sometimes taking
Our tears, our hope, our courage and our power
But not for long
For we are fucking
WARRIORS BABY
And we grow by the hour!
For our growing wings
And the strength from within,
We remind ourselves
What has been
And repeat. . . .
WE ARE FUCKING WARRIOR'S
Never, Ever, Ever Give In!!!

Jenny Ryan =  I like to write my own poems about it x
#ExplainMyPain

I feel like people don't believe my pain because of the many types of pain I have. My joints feel like they are on fire from my RA. The only way I can feel my feet and legs is through pain that feels like ant bites. The side of my face feels like someone is stabbing me with an ice pick because of my trigeminal neuralgia. My muscle spasms from fibro and MS feel at least 20 times greater than a "normal" spasm that you might get and come one daily even with medication, not just once in a while.
This is just SOME of the pain I feel. And I constantly have people telling me I'm too young to have so many illnesses or it's not possible to have that much pain. Well, it is.
#ExplainMyPain