Granulomatosis with Polyangiitis

I know this is very short notice but I thought I’d share anyway, if any of you are interested in joining us for a live webinar/patient panel re: living with Vasculitis and rare disease. It applies to all of the struggles and uphill battles we face as a community everyday. If you or someone you love suffers from chronic illness, I invite you to check out the panel this evening. If you register, you may be able to view a recording later at your convenience. Just thought I’d share, I hope to become an active member of your group ☺️ stay strong!!

Welcome! You are invited to join a meeting: Voices of Vascul...

Hi, my name is Flokimomma. I'm here because

#MightyTogether #GPA (wegners)#RheumatoidArthritis

Hi, my name is Flokimomma. I'm here because

#MightyTogether #GPA (wegners)#RheumatoidArthritis

I did not know what my title should be since I am having some major issues right now because of all my autoimmune diseases, mental health issues, and a host of other medical problems. I am having a major problem focusing on one task and getting it done. While I am trying to accomplish that task another task surfaces in my brain and I tell myself I should do that one because it will make the first task easier to finish. Before I can get started on any task a whole host of other tasks I need to do. That's when I become so overwhelmed I don't do anything. That is when the anxiety and depression over take me and I just shut my brain down so I can cope. I would like to see a psychiatrist but have been unable to find one who accepts insurance and we cannot afford to cash pay. I also suffer with #Fibromyalgia , #Bipolar2 , #PTSD , #ChronicPain , #MixedConnectiveTissueDiseaseMCTD , #GranulomatosisWithPolyangiitis , Buerger's Disease, #Kidney Transplant, #type 2 Diabetes, #Brain Fog

I am sure that I have Vasculitis but

I cant find a Dr to diagnose me or else need months waiting list for appt.

I have Lupus and Sjogrens.

I would go anywhere on the East coast.

Thank you

#GranulomatosisWithPolyangiitis

Hi, my name is FeliciaDistad. I'm here because I want to elevate patient voices and create a space where we have a more active role in our own care.

#MightyTogether #Vasculitis #GranulomatosisWithPolyangiitis #chronicallyill

Anyone here suffering from Granulomatosis with Polyangiitis? I’m newly diagnosed and feeling scared and sad. It’s another diagnosis for me on top of IC, endometriosis and adenomyosis along with depression and anxiety. There’s some relief with a diagnosis after over a year of struggling with “mystery” symptoms but I don’t know if I can handle another #chronicdisease with #ChronicPain . I don’t know how to keep going through all of this. I feel like I am falling apart physically and mentally.

#GranulomatosisWithPolyangiitis