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    Community Voices

    How do you cope when it is ALL coming at you at once? I was once a very independent, successful, super type A, corporate America gal who was so capable. Three chronic illnesses later I am exhausted, always battling brain fog, and my past coping mechanisms no longer work. Very quickly my life has spiraled out of control & I am feeling in such utter chaos that I don’t know how to right the ship. #hopeless #needhelp

    13 people are talking about this
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    Community Voices

    I've Been Gone Too Long (poem)

    #MultipleSclerosis #MS #mslikesymptoms #chronicallyill #Spoonie

    I’ve been gone too long

    Voids stare back at me

    Enough is enough; set me free

    Being in this body is tiring

    Enough is enough

    Every day feels the same

    Never changing, always something holding me back.

    Going every part of nowhere

    Only seeing what I want to see

    Nothing can change what’s already begun

    Even though I want it to change.

    Too many years wasted

    Only to find the truth in hell

    Over the hill, right in front of me

    Long has the fight lingered inside of me

    Only to be snuffed by the anger and rage

    Never again, never again!

    Great minds never cease.


    This poem was written from my bed as I was battling a menieres/neurological attack. I was fine one moment, then I was grabbing my head and throwing up in a bowl.

    What the?

    It’s frustrating, dealing with all of this. I’m strong and a badass but there are days when I don’t feel strong enough.

    I have to remember that I am because it’s true. I need to be kinder to myself, nicer to myself. Because I’m worth it.

    2 people are talking about this
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    What to do when you’re currently going through a chronic PTSD event?

    Currently going through something that is an addition to my already diagnosed medical ptsd.

    It’s already taken a toll on my physical health that I ended up in the emergency clinic a few weeks ago. The doctors asked if anything stressful was going on in my life that could have caused it. At first I couldn’t think of anything, but I quickly put the pieces together and realized it was from all this current medical stress.

    I can’t find any resources online on how to deal with cptsd while it’s happening. Only after. Therapy isn’t an option right now. I’ve been in and out of therapy since the age of 5, and it’s only ever hurt, not helped. Also, a part of my medical ptsd is from psychiatry, so I feel like it’ll do way more harm than good right now. And just all these appointments I’ve been subjected to lately have been really triggering.

    #PTSD #CPTSD #ChronicIllness #chronicallyill

    10 people are talking about this
    Community Voices

    Tips and Tricks needed

    I'm chronically ill and need some tips and tricks for when I am having a bad flare day #chronicallyill

    1 person is talking about this
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    So. I have issues with my hands (redness swelling the whole shabang) and recently my hands will twitch, but like not in the involuntary way. It’s akin to like when you have that restless leg syndromey feeling where it has to jerk but it’s more reflexive because I don’t mean to. Parts of my body in pain will do it, like my leg while I write this. If I wiggle my fingers and hold them out they go freaking nuts and it looks a little like playing the piano. If I try really hard I can stop it, which makes me a bit paranoid that it’s all in my head. Not bothering telling my doctor cause if she tells me it’s anxiety one more time I’ll lose it. So yeah. Funsies. Anyways anybody have thoughts or similar experiences? #MyalgicEncephalomyelitis #chronicallyill

    4 people are talking about this
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    Give me strenght . #fibromyagia #Depression

    This is one of those days where I quite honestly just want to give up. I cannot get over the rollercoaster of emotions having a chronic illness is. I feel defeated, the lack of social interaction is making me feel lonely. I need to exercise but am scared of causing more pain. Every little task is hard and I cannot bare it . Someone give me strenght. I need to feel heard. #chronicallyill #sad

    6 people are talking about this