HeartProblems

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I Cleaned From My Wheelchair!

Let me start by saying I am proud I did it. I'm having to re-learn my body over it feels like- from one thing to another and now another. But this is a good step in regaining my feeling of strength.

I got my wheelchair about two and a half years ago to use when I had to run errands, due to a mix of pain and collapsing. Eventually I was able to find a walker with a seat and basket, which I was able to use just as effectively and felt less guilty for using (imposter syndrome, anyone?).

But my wheelchair has come out of its corner now, as my heart has decided it, too, shall cause me more to manage and I've both found and been told to rest to reduce my symptoms until I can get in to the Cardiologist.

Between my physical and mental health, my house was neglected for a month. Erm, how do I do this from my chair..?

Sweeping more instead of vacuuming, smaller bags for trash instead of a giant one, a grabber for things on the floor or up high if I am too weak to stand, asking the kids for help, extendable cleaning items like dust wands or spinning brushes to clean the shower walls, more things have been put into totes and drawers to make less to clean in some spaces, and just sitting on the floor and scooting my way across it to wipe up spots or sort bins for the kids.

I'll be honest, my back isn't used to this yet and hurts. I'm leaning on a heating pad right now. My shoulders are sore from adjusting to the chair, but both pains will pass as I learn and adapt better. But boy am I proud. Despite feeling extra burdensome to my family due to my declining health, worrying I'm not trying hard enough, I still got my house back into shape. I might be able to do this after all. :)

#Wheelchair #HeartProblems #ChronicPain #Fainting #Ididit #learning #Independence #MobilityAids

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Feeling really scared #HeartProblems #SupraventricularTachycardia #potssyndrome #HypermobileTypeEDS #Dysautonomia #Spoonie #CheckInWithMe #Anxiety

I was rushed to the hospital in an ambulance last week for an SVT. My husband and I figured it's most likely because I have POTS from my EDS. I've had issues off and on with this type of thing since high school, but it's never been that scary. I know POTS is the most logical explanation, but I am TERRIFIED it's going to happen again. I have a cardiologist appointment tomorrow, and I'm really nervous about it. Part of me is scared she's going to tell me I have something horrible and life threatening (not that POTS is a walk in the park. It sucks). The other part of me is scared she'll dismiss me. I'm just tired. I'm so tired of feeling like I'm out of the woods and then something terrible and scary happens. I'm not sure what I'm looking for here. Maybe some reassurance? I mostly wanted to vent to people I knew would understand.

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