potssyndrome

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    POTSies and compression stockings

    Does anyone else get a little anxious when you cant wear your compression stockings? They help my legs so much but when the weather gets hot or I go somewhere like the beach, or really anywhere that I am wearing shorts or a dress, I can't wear my stocking. And I get a weird feeling of anxiety. They are almost like my security stockings haha. Does anyone else feel this way? I used to take buffered salt sticks to compensate but my stomach has been too sensitive lately. #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Potsie #potssyndrome

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    New Job

    I just accepted a new job and am a nervous wreck. It is full time and I have only ever worked part time. It's a good job with a great company but my anxiety is through the roof. I have never worked in the insurance industry and feel very intimidated. I start in about a month. I am worried that i bit off more than a can chew but I know that if I don't try, I will be laying here crying and depressed. Any tips for working full time while handling anxiety and any other ailments? The job is remote. #Anxiety #Depression #MentalHealth #potssyndrome #Headaches #chronic migraine

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    Ups and Downs

    My anxiety and depression goes up and down. I am nervous that it is starting to creep up again. I need some words of encouragement. I go to therapy once a week but am a little nervous because my therapist is away this week. I overthink and ruminate too much and just need some positive thoughts. Woke up with horrible palpitations that a beta blocker didn't help, which it usually does. #Anxiety #Depression #MentalHealth #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #potssyndrome

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    Feeling Betrayed

    Feeling Betrayed: The world flipped upside down, but our past didn’t go away, they just were created in differents. My life still sucks and my between my family and my illnesses, they will forever be the reason why. Oh, can’t forget losing my best friend this time My Fur Baby Chief”.

    #AutonomicDysfunction #potssyndrome #CIDP #Depression #Anxiety #fakesmile

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    Chronic Pain Is Not "Just Pain"

    It's frustration, sadness, anxiety, depression, worry, emptiness, and anger.

    It's wondering if it will really be forever. It's asking yourself how you'll be able to keep paying bills, medication, and food.

    It's missing the past, barely floating in the present, and dreading the future.

    It's feeling different every moment of your life. It's feeling dependent on so many things - dependent on medicines, people, circumstances, and sometimes on sheer luck.

    It's withstanding mockery, blame, and criticism.

    Surviving chronic pain means getting up in the morning and facing another day of uncertainty and doing it with a smile or at least with as few tears as possible.

    And while we continue to take the fight towards invisible illnesses like CRPS, the real reason we get up every day is to be there for our family, our friends, and, yes, perhaps even ourselves. Although living with these challenges is hard, we all do the best we can.

    For us, survival is all about embracing the unknown, accepting the unthinkable, and never... never... never... giving up on ourselves. It's only then that we feel like victors, not victims of this devastating illness.

    I know it's hard for you to understand truly, and sadly you may never really grasp its magnitude unless you get it yourself. Although for your sake, I hope you never do.

    So why am I sharing this now after seven long years in silence? It's not for your sympathy or pity, but rather to give a voice to the voiceless. To remind the millions of us who have and continue to struggle in silence that you are not alone.

    Keep putting one foot in front of the other, for everyone matters to someone, and you are loved whether you know it or not. While, yes, we can't predict the trials and triumphs we'll face in life, I can tell you it's unquestionably a better place with you in it.

    Know, as I have, that all you need to overcome all you encounter already lives within you, everything! So when life gives you a reason not to smile, smile anyway.

    Your spiritual gangster,

    ~ Charlie Cryder

    #ChronicIllness #Fibromyalgia #ChronicPain #ChronicFatigue #Dysautonomia #potssyndrome #MECFS #CRPS #Healing #chronicillnessawareness #fibromyalgiaawareness #MentalHealthAwareness #InvisibleIllness #InvisibleDisability #ChronicIllness #Fibromyalgia #ComplexRegionalPainSyndrome

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    This was the first 2 weeks of #GBS #CIDP #gbsawareness #gbsawarenessmonth #Plasmapheresis post #COVID19 I had no idea the trials that lie ahead but I charged forward faithfully. My spirit had not been broken yet.

    #chrissystrong #brokennotdefeated #covid19survivor #covidlonghaulers #cidpwarrior #plex #spoonielife #spoonielife #chriss #HashimotosDisease #potssyndrome

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    New Mighty Podcast Episode on Chronic Illness Misconceptions is Out Now!

    In this episode Mighty Staff members Ashley Kristoff, Heidi Cope and Kat Harrison along with Mighty Super Contributor Charles Mickles discuss their experience living with chronic illness and the misconceptions they have faced along the way. Go listen!
    #ChronicIllness #Migraine #ChronicMigraines #ParkinsonsDisease #RheumatoidArthritis #LivingWithPOTS #potssyndrome #UlcerativeColitis #ThyroidCancer #HypothyroidismUnderactiveThyroidDisease #Podcast #TheMighty #MightyMoment #ChronicPain #TheMightyPodcast #listen

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    Frustrated

    So frustrated right now. I am tired of having POTS. Tired of having anxiety. Tired of being depressed. Tired of migraines. Life is not supposed to be this hard. I honestly don't feel like my setbacks are making me stronger. They are making me more and more frustrated and just digging me down deeper. It's been about 3 months since I have been going through this setback and I feel like I am supposed to be better by now. I am sick of feeling stuck and I am trying SO hard. I don't know why I am writing this. I just am tired of feeling invalidated. A doctor told me yesterday that "no one even knows of this POTS thing is real." It stung. I don't want to have to keep justifying myself and defending myself. I want to stop feeling dread about the rest of my life. Maybe this rush if emotion is a wake up call that I need to change, or maybe it's just the recent med change process. I just want relief. #Anxiety #Depression #MentalHealth #potssyndrome #PosturalOrthostaticTachycardiaSyndrome

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    Tough day...

    Having a tough day. I don't know if it is the POTS, anxiety, depression, or medication change, but I feel like crap. Beyond exhausted, palpitations, and just not up for anything even though it is beautiful weather out. I hate these days, especially because I have been having more of them lately. #PosturalOrthostaticTachycardiaSyndrome #potssyndrome #LivingWithPOTS #Anxiety #Depression #NeedEncouragement

    Question

    Driving?

    Does anyone with POTS have trouble with, or dislike driving? I am usually okay with local driving, but going far is really hard and gives me a lot of anxiety. I get lightheaded and anxious and it is hard for me to stay calm and focused. So frustrated because driving is so important as an adult and to feel like you have independence!

    #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #potssyndrome #POTSLife