hippain

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G'morning

I woke up.
Clearly waking up each day is a trap.
The assassins are shitty.
But oh gosh
Whoever flipped the migraine switch...
And oh fuck
My right side from below my ribs and to my knee.
I am so glad I'm not leaving my apartment for any reason today. This pain is ridonkulous.
But I made a cold PSL this morning.
It's almost entirely pumpkin ingredients except for the creamer. The creamer was an ounce of creme brulee. It was all that was left in the bottle. It pairs lovely with pumpkin. But I think the next flavor I'm gonna get is butter pecan.
So I'm very excited cuz I ordered a bag of the new flavor of Javvy and it's coming in a few days. It's toffee nut flavor. I ordered 3 bags. The reviews on the new flavor is phenomenal.
It's been 2 weeks since I last had Javvy and I'm just miserable. The pumpkin pie flavor protein powder is good but it's half of the drink ingredients I need. I'm trying to make a chocolate hazelnut pumpkin latte. It's the best coffee I've ever had.
I'm hunting for affordable chocolate hazelnut flavor instant coffee. Or just hazelnut. I can add either chocolate syrup or hot chocolate mix.
I need a new french press. I had wanted to share my favorite tea with Pauley last night. But we currently can't locate the unopened bag. I'm sure we'll find it.
My favorite tea is actually an autumn flavor that I discovered about 8 years ago. It's called psychocandy. It's roasted pumpkin, caramel, and rooibos. Technically it's not a true tea. It's a tisane. Most of the tea I drink are tisanes. They're herbal, fruity, bright and vibrant. But psychocandy is deep and sweet and delicious. I prefer sweetening it with maple sugar.
My right hip just popped for the 5th time today. It's kinda squishy.
I rescheduled my appointment for having the 2 bumps on my head lanced and drained. Mostly because it's not even remotely squishy. It's a hard bump and it's growing. I saw my doctor a week ago. She asked me what I need help with and I pointed it out to her and said "I'm pretty sure this is a Pilar cyst." She immediately started to Google "Pilar cyst identification". Sigh.
Then I told her about the regrowth of the SEL. She had no idea what it was. I tried to explain in very simple terms. I told her to talk to her boss and tell him "Nox's SEL grew back" cuz he loves rare diseases.
My lumbar is screaming and my right SI joint is pulsing. I'm gonna eat half of a pineapple gummy. It's gonna make my pain go away but I won't get a buzz. I think they taste like pickles.
Here's hoping for the best.
#hippain #FemoralAcetabularImpingement #spinalepidurallipomatosis

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Today's coffee adventure

Oh ok so hear me out. Banana butterscotch toffee caramel cinnabon flavored coffee.
Mind. Blown.
It's just sweet enough, I can taste every ingredient. It's silky smooth and rich. And the temperature is perfect.
I made it right before my telehealth appointment with my pain specialist. Oh she's such a a sweet woman. We talked about my back and it really just hinges on my getting the MRI done. It's scheduled for the 14th but I have another appointment that day. Even though they are hours apart my transportation only takes me to one appointment per day.
I am really glad she's my doctor. She said as soon as we get the MRI done we can schedule injections. I'm quite eager to get it done.
She looked at the X-ray and said she completely understands why I am hurting so much. Finally someone with education having compassion for me.
#hippain #FemoralAcetabularImpingement #BackPain #spinalepidurallipomatosis

Oh so the prevalence of femoral acetabular impingement is 1% but bilateral is even less. My body thinks rare health problems are Pokemon.

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Finally

My hips don't hurt anymore. I took half of a 7.5mg Norco and slept for 3 hours. I feel so much better.
Pauley woke me up to take my meds and I thought it was bedtime... and then I looked at the clock. It's only 130am! Bedtime is at 6am. Hmmph
She keeps dozing off and I asked her if she wanted me to go to bed so she can sleep. She said no.
Our 7 month anniversary was on the 21st. I feel like I blinked and 7 months went by. But we were QPP for a few months before we started dating.
The 29th is the one year mark since she moved in with me. It's been a really great year of growing and changing.
I'm hungry but I already took my insulin. Oooh oh yeah, I'm getting Biscoff ice cream bars! I'm super excited. I'm hooked on Biscoff. But I'm also getting ingredients for tomato sandwiches.
#Relationships #hippain #ChronicPain

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Today

My caregiver slept till 2pm. She decided today she was gonna organize and clean my room. I directed her from my bed. I hadn't touched my suitcase since I got home from con in September. She unpacked it, put away my clothes, and helped me process my emotions. Now she's vacuuming.

My right side from just above my butt cheek all the way to my toes hurts like hell. The pain meds helped with my back pain and migraine but it doesn't help with my right hip. We're starting to worry cuz it's been really bad for about 3 weeks. I remember my hips popped out of joint a few weeks ago. Like really loud POP. It's been hurting since.

I have bilateral acetabular impingement, bursitis, osteoarthritis and rheumatoid arthritis in both hips. I've also got bone spurs in my hip joints. So I've got pretty intense pain.

#Caregiving #Relationships #hippain #BackPain #bilateralacetabularimpingement #Bursitis #Osteoarthritis #ChronicPain

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*inhuman screeching*

Tramadol hasn't done anything to make my pain go away. I am going to get myself a Norco. Pain spiked to 8. My hips are really bad today. I attempted to stretch... and both hips popped quite loud. My body sure makes a lot of weird sounds.

#ChronicPain #BackPain #neckpain #hippain #Migraine

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Meds aren't helping

I took a 50mg tramadol and a 7.5mg Norco at 8am and it didn't help. My caregiver just gooped my neck and shoulders and gave me half of a Norco. I've got a migraine again. But we just realized yesterday I haven't had an emgality shot since September 23rd. So we ordered another dose and I got it today. We also got my humalog today.

After 4 doses of miralax and 3 doses of docusate... Still nothing. I'm gonna drink 2 more doses of miralax today. I'm really annoyed.

#BackPain #Migraine #hippain #Migraine

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Dinner tonight

The plan for dinner tonight is cheesy scrambled eggs and toast. I've got tortillas so I'll turn mine into a burrito. I need to find good quality GF tortillas for my caregiver. The last time I ordered GF tortillas, they were crumbly. They tasted good but they weren't suitable for rolling up. I'm gonna browse around Amazon for some.

My right hip really hurts. I got almost 2 hours of pain relief. It's time for Norco.

I'm gonna make lunch in about an hour. I'll probably make a turkey and cheese roll-up with honey mustard for dipping. I love honey mustard. Almost as much as I love ranch dressing.

#foodieadventures #BackPain #hippain #ChronicPain

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OMG pain

I was already hurting from standing in the kitchen for 20 minutes. Then Amazon showed up with a delivery. I had to go down 17 steps to get the package and then back up 17 steps. By the time I sat down my hips were feeling like I got kicked. I had taken 2 tramadol right before Amazon got here. Id say pain is at 7 right now. I'm gonna lay down and listen to some music and try to meditate for a bit.

#ChronicPain #hippain

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Good morning, the week has begun

I've got cooking class today at noon. It's my last session. We're making chicken with mango. I'm just excited to get a mango to take home. I'm gonna shower at 10am. Transportation will probably call me around 11am. Right now my back and hips don't hurt. I'm sure after standing in the shower I'm gonna be hurting. I'll take 2 tramadol after I get done.

At 3pm I've got therapy. I didn't do any homework so we're just gonna talk about cooking class being over. I'm gonna also talk about how I have plans with my QPP for after 5pm. I'm supposed to be going to my favorite cider mill. They have the best cider donuts. It's our autumn tradition every year. I really enjoy his company.

My neck just started hurting. It's very crunchy.

#BackPain #neckpain #hippain #ChronicPain #adventuresofakitchenwitch

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Pain is high

It just spiked to 8. I think I might be able to take 2 tramadol now. I didn't remember what time I last took them. Usually I have to ask my caregiver for pain meds but she let me have the bottle of tramadol in my room. So I don't have a point of reference to see when I had it. I'm gonna have to get a notebook or something.

My tummy hurts. I've got gas pains. And I have a migraine. I had a little panic attack today after dinner. I had a plate of food on my bed and some of the goo got on my hand. I ripped off the tips of my nails again but I used nail clippers to fix them. Mostly.

#ChronicPain #BackPain #hippain #Migraine #PanicAttacks #Anxiety #MentalHealth

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