hlab27

Medical trauma, medical letdowns, medical anxiety—whatever you want to call it—it’s been weighing on me lately, and I’m exhausted. I trust my doctor as a person, but I don’t trust the medical or insurance system. That disconnect has really started messing with my thoughts.

Last year, I spent six months in mind-numbing pain. Six. Why? Because it took that long for doctors to figure out what might actually help. So when the pain came back recently, I didn’t want to face it. I hoped maybe it would just go away (even though I know it usually doesn’t).

After two weeks of denial and worsening symptoms, I finally made an appointment…only to find out the next available one was three weeks out. So I spent five full weeks in pain, trying to limit how much I walked, and dealing with the growing tingling and pins-and-needles sensations that started in my foot and eventually crept halfway up my calf. From the moment I got out of bed to the moment I fell asleep, it never stopped.

Today was finally the appointment…and after all that waiting, I saw my doctor for a combined time of five minutes. I do appreciate them: they’re direct, solution-focused, and I believe they care. But after waiting 30,240 minutes, I just wanted five more minutes to feel like I wasn’t being rushed out of the room. And maybe learn something about this now recurrent issue.

That said, there was a small win today. I was treated with a lidocaine injection for suspected tarsal tunnel syndrome, and the relief was immediate. The pain and tingling actually stopped, which was a huge moment for me.
It doesn’t erase the frustration or the emotional toll this whole process has taken, but for the first time in weeks, I felt a little bit of hope. #Spoonie #TarsalTunnelSyndrome #Anxiety #Inflammation #hlab27

I’m nervous I’m going to be told to give up a fairly new, but very enjoyable and empowering hobby, jogging. Yes, I’m chronically ill with joint inflammation, but I focus on physical therapy regularly, never jog more than once a week, and no more than 2 miles at a time.

Long story short, last year after a 1-mile jog, my foot went tingly and stayed that way for months. It eventually landed me in a boot for 4 months, and it took doctors over 6 months to figure out a treatment plan.

Fast forward to today, I’ve been jogging routinely since January, and things have been going well. But after my most recent jog, the tingling came back. It’s now across the entire bottom of my foot, constant, and even wakes me up at night. I’m scared that if I go to the doctor, I’ll either be put in a boot again all summer or be told (again) to quit something I’ve finally found joy in.

To make things even more complicated, my mom was recently diagnosed with Parkinson’s, so a small part of me wonders if this could be an early sign of something neurological.

I want to trust the healthcare system, but the truth is, I’m struggling to.
#anapositive #Infammation #ParkinsonsDisease #ChronicPain #hlab27

Hi, my name is BendyGrandma. I'm here because I am pending diagnosis of hEDS. I was recently diagnosed with Ankylosing Spondylitis due to being HLA-B27 positive, but I don't have the horrible back pain they speak of. I am extremely hypermobile and have dislocated my knee 7 times as well as my jaw and occasionally sublex both shoulders. #hlab27 #HEDS #MightyTogether #Anxiety

The moment you think you have friends they prove you wrong.

Finals at my school start today and go on all next week. Hence everyone is stressed and getting sick. On an average day I go to bed at 9 pm and my roommates know that. Until now they've always respected that. They all started screaming conversations laughing and blasting music at 10:30 pm. To me, that was super disrespectful and the walls in our apartment are paper-thin so they definitely know I could hear them. I have a fan on ( to block noise and two pillows over my head. None of that helped. On top of that, they all laugh at me and make fun of me when I try to eat healthy and go to the gym. The reason I need to eat healthy is so that my stomach is cramping and my joints aren't aching as much. Will I ever find a friend who understands me I feel so alone #MightyTogether #alone  #HashimotosThyroiditis  #hlab27 #SpoonieProblems

I've had stomach issues for a year. I have always associated it to gluten sensitivity but never tested positive for celiacs disease. Any advice for this appointment #newdoctor #Spoonies #ChronicIllness #hlab27

Hoping this appointment will help... let's add another doctor to my list.

I went on a cruise and in the different countries I drank alcohol and got very sick even with small amounts of alcohol. #AutoimmuneImmunodeficiency . #HashimotosThyroiditis #hlab27 #help