inflammation

Medical trauma, medical letdowns, medical anxiety—whatever you want to call it—it’s been weighing on me lately, and I’m exhausted. I trust my doctor as a person, but I don’t trust the medical or insurance system. That disconnect has really started messing with my thoughts.

Last year, I spent six months in mind-numbing pain. Six. Why? Because it took that long for doctors to figure out what might actually help. So when the pain came back recently, I didn’t want to face it. I hoped maybe it would just go away (even though I know it usually doesn’t).

After two weeks of denial and worsening symptoms, I finally made an appointment…only to find out the next available one was three weeks out. So I spent five full weeks in pain, trying to limit how much I walked, and dealing with the growing tingling and pins-and-needles sensations that started in my foot and eventually crept halfway up my calf. From the moment I got out of bed to the moment I fell asleep, it never stopped.

Today was finally the appointment…and after all that waiting, I saw my doctor for a combined time of five minutes. I do appreciate them: they’re direct, solution-focused, and I believe they care. But after waiting 30,240 minutes, I just wanted five more minutes to feel like I wasn’t being rushed out of the room. And maybe learn something about this now recurrent issue.

That said, there was a small win today. I was treated with a lidocaine injection for suspected tarsal tunnel syndrome, and the relief was immediate. The pain and tingling actually stopped, which was a huge moment for me.
It doesn’t erase the frustration or the emotional toll this whole process has taken, but for the first time in weeks, I felt a little bit of hope. #Spoonie #TarsalTunnelSyndrome #Anxiety #Inflammation #hlab27

I was wondering if anyone else has flare-up…cycles? If so, do you know why?
For me, I have GI symptoms, muscle and joint symptoms, and neurological symptoms associated with my condition. When I begin a flare up, the GI symptoms flare at once, then once that flare ends, it triggers a joint flare, then when that one ends, it triggers the neuro flare up. Like, each category has to flare before the whole thing is over. Is there a reason? #autoimmune #chronic #Seizure #GastrointestinalDiscomfort #Jointpain #Inflammation

It's off to university today for me. I'm studying for a part time masters while also working almost full time in the NHS. Uni days are always really enjoyable but tiring. Before my diagnosis I wouldn't have appreciated how much something as simple as being somewhere different would affect my condition. This is my third day at Uni and the biggest problem is my back. I don't have my specialist desk chair or my sit stand desk at Uni. 4 days in a normal chair and my back is feeling horrible. I also notice over the 3 days that my inflammation markers go up resulting in swelling to my hands and feet. Today we have a presentation assessment. I'm just hoping that my ILO is OK and I don't start coughing during it.
It's not all bad though, I get to spend 3 days with some lovely people and I've discovered even at 51 there's still lots to learn. This evening and tomorrow it will be important to be kind to myself. I'll need time to rest my mind and my body.
#angelamarielifecoaching
#psorioticarthritis
#induciablelarygealobstruction
#livelifetothefull
#unidays
#ChronicPain
#backpack
#Inflammation
#Bekindtoyourself

Chills, sweating, feel like I should be in the hospital! Ahh! All over aching and inflammation. Any suggestions that help you feel better? Hydrating, resting, doing all that. Thanks#RareDisease #ChronicPain #Arthritis #Depression #Disability #Inflammation #PeripheralNeuropathy #Virus #sick #Migraine #CheckInWithMe #Fatigue #Undiagnosed #MentalHealth

At the end of the month I see a Neurologist, for many reasons. To name a few recent symptoms.. optical neuritis, tingling/numbness/loss of sensation, and bladder incontinence at times. I'm really scared, I mean I knew this was coming but I'm worried. Not scared of actual visit...just any bad results.

Any advice when visiting this doctor? Thanks in advance. #ChronicPain #Undiagnosed #RareDisease #Arthritis #Migraines #AutoimmuneDisease #Anxiety #OpticNeuritis #Neuropathy #PeripheralNeuropathy #raynauds #ChronicIllness #Inflammation #BrainFog #droppingeverything #donatingmybodytoscience