hopeful

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Community Voices

I'm new here!

Hi, my name is _07_Grit_N_Grace_26_. I'm here because after many MANY years of invisible, treacherous ANGUISH and no one believing me or brushing me off simply because I could put myself together enough to appear as though I was a normally functioning human, yesterday 6/17/22 I was diagnosed with #EhlersDanlosSyndrome . About an hour ago I happened to stumble across a link for themighty.com and all I can say is, I have NEVER felt so #hopeful in my life. I'M NOT LOSING MY MARBLES!!! #InvisibleChronicIllness is SO REAL! I am just so #thankful for FINALLY ....KNOWING...just WHAT it is that's causing all of this pain and uncomfortability. #feelingblessed

#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #PTSD #ADHD #OCD #Grief

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Community Voices

Woke up crying

Wasn't even sure why I did but my cat was next to me and put her tiny paws on my face and rubbed her nose on mine. Instantly the crying stopped because I thought to myself no matter how hard things are I'm loved and thankful that we (my cat and I) found each other because we were both barely surviving and she gives me hope and I in return spoil her with love. #Crying #Cats #sad #hopeful #positive #

Community Voices
Community Voices
Community Voices

FOR WHEN YOU REACH ROCK BOTTOM

<p>FOR WHEN YOU REACH ROCK BOTTOM</p>
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Community Voices
Community Voices

True life - It isn't all roses, all the time🌹

The #struggle is real... 💜

When I first joined #themighty I wanted to try and remain as #positive as possible, creating #conversations and asking questions and getting advice from you guys that would in turn help me navigate the life of #fibromyalgiasyndrome 🙏🏻

I am in the first year of suffering with widespread #ChronicPain every day that I wake up, it even keeps me from sleeping at this point #painsomnia

As well as only being #diagnosed for around five months, it's like a rollercoaster ride that I can't seem to keep up with but... With many more lows than highs 🎢

I am alternating between #insomnia and I seemed to have developed some kind of #tinnitus that rages away in my head 24 hours a day! And being so #fatigued that I cannot physically keep my eyes open; when this happens I do not eat, I do not get dressed, I do not look after myself, in fact the most I can do on these days is go to the bathroom and back to #bed

I feel so #upset and occasionally #angry that I'm doing the bare minimum... Sometimes not even that! And I'm still #struggling 😢

My doctor checks in about once a month to extend to my sick note, reorder my medications ALL of which are #anxiety and #Depression related with no strong course of #Pain relief or any pain relief at all I am told to just stick with over the counter and to take them "as and when"

I am supposed to have appointments with the pain clinic but I'm still waiting...
I have reached out to an ME/Fibromyalgia support group local to me; but I'm still waiting...
I just feel like I'm getting #worse and all I can do is #wait for the #help to come and find me. I barely have the #energy to #fight and I don't have the #knowledge to know where to go from here

I know its still early days and many other people with #Fibromyalgia have had better and worse days and that it is a journey BUT my goodness this is hard! I just want to sleep and to not wake up because it all seems so overwhelming right now 😴

I don't even know where I'm going with this #post but I just felt as though I needed to let it out on a platform that is #caring and #understanding and has helped me feel like I #belong for the first time in a long time so thank you to anyone who has interacted with me and giving me #advice it really is appreciated!

Now I know why many of you go by "Fibromyalgia Warriors"... It's so true; every day is a battle with your own body... Except you're losing 😣

Hoping for better days to come! Today is not one of them and I need to remind myself that it's OK. But more often than not when you're deep in the thick of it, it becomes hard to see the light

Trying to be positive but some days it's much harder to reach. And even if no one reads this I'm just glad to get it off my chest 💜

#Fatigue #tired #Lowmood #MentalHealth #OnedayAtaTime #paingry #rant #paragraph #dayinthelife #honest #hopeful

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Community Voices

Winter Blues

Is it just me or has this year just flown by? I find when we change over to daylight savings time it has an affect on me, mentally and physically. My husband has always had SAD (Seasonal Affective Disorder), but I never have experienced it until last year.

I find that as the weather changes and all of the ups and downs with temperatures, it affects my MS therefore I think that’s why I have now have developed SAD. As I progress with my disease, the weather bothers me more physically, which takes a toll mentally.

I’m dreading Thanksgiving and Christmas and having to tell family members and friends that I don’t want to be around large crowds, especially those that are not vaccinated for Covid and Flu. I don’t want to host any gatherings or have anyone outside of my bubble stay overnight in our home. This leads me to my last paragraph.

I read a post on Instagram that really hit home for me. I’m not depressed, I’m not sad, I’m optimistic and have so much hope, but despite this, I’m not happy. All of this is so true. I don’t quite understand it but undoubtedly it definitely has a lot to do with the ongoing pandemic and state of affairs we’re in.

I wish everyone a Happy Thanksgiving and I hope all of you stay healthy. 🧡

#SeasonalAffectiveDisorder #sad #msprogression #optimistic #hopeful #unhappydespitebeingoptimisticandhopeful #momswithms #HolidaysAreHard

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Community Voices

All day off and on I am exhausted and frustrated with my health.
How did I get here. I was diagnosed with Rheumatoid arthritis and OA on my neck, wear and tear exposed nerve , over 7 years ago and it’s like an alien took
Over my body. And slowly I don’t remember the healthier version of me.

My symptoms consist of joint pain all over, fatigue,stiffness, I experience tingling, heat practically all over. If I do too much or lay down for too long, if I wear a certain type of sweater, too heavy, if the sun hits me for too long, I start to feel this extreme heat and tingling on my face, neck, arms , head, feet it’s horrible.
I literally need to take a deep breath and sit up or go outside, sometimes the heat monster 👹 wakes me up and I cry!! Its so
Exhausting to wake up not feeling rested and like there is always something gnawing at your body, some reminder that you aren’t well.
Sometimes , well often I cry as I’m getting ready to make my one cup of coffee as that is one thing , of my normal routine I enjoy and I try not to let my discomforts get in the way of my yummy coffee.

I cannot be in enclosed rooms, places, without a window open or fan. Forget about trying to travel in an airplane or sitting in the back of a car. My beautiful sister invites me to travel all the time and Im like how can I go somewhere in a plane where it’s enclosed and the heat monster 👹 will follow ! I will probably want to run out from the plane.
I start to also feel that anxiety, heat feeling.
When I’m asleep at night, I experience the heat, tingling sensation off and on and need to remove the covers. But being too cold will bring on the pins and needles, prickly sensation.

I hurt when I lay too long, the water in the shower hitting my back!

Thank you anyone reading my post I just really needed to post about my discomforts, Im out of breath just doing regular chores or activities, if I walk too long my feet are on fire , my overactive nerves and muscle, joint pain are just usually screaming,

I don’t know what to do about my symptoms. I feel sad, depressed, not very hopeful and super frustrated. Currently on methotrexate, Lyrica recently again, Enbrel and prednisone.

Does anyone feel like this , the extreme heat, tingling especially?

I am a positive person and have a beautiful family, thank God he totally keeps me going. Praying for healing and for God to shine his face on us all for better healthier days full of new memories even now!

Community Voices

I've had a good couple of days, feeling a little calmer in myself. Not sure if it's the new meds or something else I'm trying BUT I'm always #Worried that the worst is round the corner and it's going to smack me in the face harder than before. Instead I want to be able to live in the now while the now is good. DOES ANYONE ELSE UNDERSTAND THIS? #Anxiety #Fibromyalgia #Depression #GAD #UK #Fear #Conversation #ChronicPain #Pain #ChronicFatigue #Fatigue #Spoonie #DistractMe #thankful #hopeful 💜

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