All day off and on I am exhausted and frustrated with my health.
How did I get here. I was diagnosed with Rheumatoid arthritis and OA on my neck, wear and tear exposed nerve , over 7 years ago and it’s like an alien took
Over my body. And slowly I don’t remember the healthier version of me.
My symptoms consist of joint pain all over, fatigue,stiffness, I experience tingling, heat practically all over. If I do too much or lay down for too long, if I wear a certain type of sweater, too heavy, if the sun hits me for too long, I start to feel this extreme heat and tingling on my face, neck, arms , head, feet it’s horrible.
I literally need to take a deep breath and sit up or go outside, sometimes the heat monster 👹 wakes me up and I cry!! Its so
Exhausting to wake up not feeling rested and like there is always something gnawing at your body, some reminder that you aren’t well.
Sometimes , well often I cry as I’m getting ready to make my one cup of coffee as that is one thing , of my normal routine I enjoy and I try not to let my discomforts get in the way of my yummy coffee.
I cannot be in enclosed rooms, places, without a window open or fan. Forget about trying to travel in an airplane or sitting in the back of a car. My beautiful sister invites me to travel all the time and Im like how can I go somewhere in a plane where it’s enclosed and the heat monster 👹 will follow ! I will probably want to run out from the plane.
I start to also feel that anxiety, heat feeling.
When I’m asleep at night, I experience the heat, tingling sensation off and on and need to remove the covers. But being too cold will bring on the pins and needles, prickly sensation.
I hurt when I lay too long, the water in the shower hitting my back!
Thank you anyone reading my post I just really needed to post about my discomforts, Im out of breath just doing regular chores or activities, if I walk too long my feet are on fire , my overactive nerves and muscle, joint pain are just usually screaming,
I don’t know what to do about my symptoms. I feel sad, depressed, not very hopeful and super frustrated. Currently on methotrexate, Lyrica recently again, Enbrel and prednisone.
Does anyone feel like this , the extreme heat, tingling especially?
I am a positive person and have a beautiful family, thank God he totally keeps me going. Praying for healing and for God to shine his face on us all for better healthier days full of new memories even now!