I went and got bloodwork drawn this morning, then went out for lunch with my sister who drove me. Now I'm back in bed for a nap, worn out. So much for a normal day. #Fibro #ChronicFatigue #CIDP #ChronicIlless
Hi all, Hope you had a good Thanksgiving. Today as I was preparing food to take to my neighbors, I started a huge CIDP flare, as well as asthma flare. I had my latest Covid vaccine a few weeks ago, and this has happened within a few weeks after the 3 boosters. It gets me down that I'M GETTING SICK FROM SOMETHING THAT IS SUPPOSED TO HELP ME.! I'll get through it, but it gets me down now to add prednisone, on top of being on Cellcept, IVIG every 10 days, and 15 other meds.
Thanks for the vent. I know you all understand the frustration. Best wishes to all of you and any caregivers you have as we go into the holiday season. Take care!
I went to Ocean City Maryland and while there visited the aquarium. I’m in love with dolphins, so when I saw them I cried. All of my emotions from stress came out as happiness. I couldn’t stop shedding tears. They’re even more beautiful in person. I haven’t felt that at peace in a long time.
Has anyone ever heard of CIPD? If so, I could use some help
I wear a smile and put on a brave face. Schizophrenia is hard to ignore but still I face it. I look normal, I pretend to be normal but it’s hard to fake it. I hear things and see things that aren’t there, puts me in fear, but I act like there’s nothing there. I don’t confide in people anymore because, they don’t understand, I can’t even understand, I’m confused; lost and constantly in my head. #MentalHealth #AutonomicDysfunction #ChronicDepression #Anxiety #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy
People look at you and assume you are healthy because, you don’t look sick. It’s like saying you can spot a serial killer, pedophile, or am good/bad parent; just by looking at people. My point is never judge a book by its cover because, the person’s story may surprise you.
I had painted a picture, symbolizing what I describe myself. A woman whose eyes captures people’s attention, but words are always ignored. A woman who has been silenced for years because, her words were purposely ignored. Even in my dreams, I don’t have a voice. I’m just going to go through life being the unheard and invisible woman. I’m always here to be an listening ear for others, but when I get into deep conversations about how I’m feeling, or what’s going on with me, everyone puts in their earplugs. We can talk about petty things but serious things are off limits.
One small thing would be admitting that I’m a pessimist, I’ve coped with the fact that I have many illnesses, and there’s nothing I can do about it. Once you accept the things you cannot change, it really makes a difference. #PosturalOrthostaticTachycardiaSyndrome #ChronicInflammatoryDemyelinatingPolyneuropathy #Endometriosis #Osteopenia #ChronicDepression #Anxiety