Hello there. My name is Matthias, but please call me Matt. My pronouns are It/He/They, and I am our primary caretaker and gatekeeper. The image is one Adrian, our host, created in a Picrew as a visual representation of myself. I love tea and sweets and I'm what you might call the "Mom Friend" of our system. It's nice to meet everyone :)
-Matt
#DID #DissociativeIdentityDisorder #osdd #DIDSystem #osddsystem #Intro #gettoknowme
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I created this group in hopes to help others mange there life with EDS and other chronic illnesses. My main goal is to help spread awareness around rare disease/chronic illness. as well as break the stigma around disabled/chronically ill people.
My name is Alyssa Kelly and i had Hyper mobile type EDS and 6 of its comorbidity. I used to work as a nurse full time but i cannot do that anymore. I have been on a journey to try and figure out what my identity is besides being chronically ill or a nurse. My favorite color is yellow. And i happen to very good at painting and i love it. If you join please feel free to introduce yourself.
4 reactions Thought I’d introduce myself. I’ve had many different health conditions, but the most limiting and scary right now has been metastatic breast cancer. I was dianosed in April after finding it through biopsies of my breasts. A while before that tests showed it had already spread to my bones. (It’s in my skull, shoulder blades, sternum, spine, pelvis, all over my ribs, etc.) It may have caused my fall in the shower back in March, too. If it’s in the bones, it can weaken them and make it easier to break them. I did end up breaking my right shoulder. I had surgery, and am still recovering from that. That’s been a pain on top of the treatments. My mom had stage 4 breast cancer as well, but it wasn’t as agressive. What got her in the end was really abdominal tumors. (She passed away 8 years ago.) Anyways, I’m overwhelmed with the treatments lately. My condition has gotten bad enough, I actually am using palliative home care. Without that I wouldn’t be able to function at all. They even come in to help me showers. The idea that people tend to not live long with this disease is difficult, too. I’ve been trying to improve my life through fun things every day. That’s turned into highlights and has kind of felt uplifting. A lot of the time it’s small things like a walk on boardwalk, trying a cheese tasting plate, afternoon tea, etc. I’ve also subscribed to monthly boxes. One being snacks featured from a different country each time, and the other with horror/mystery books. Something to look forward to. Haven’t gotten either yet, but they sound fun. #Life #Cancer #MetastaticBreastCancer #metastaticcancer #introduction #Intro #Health #Fun
Having a painsomnia night, so I decided to finally set up my account over here. I'm looking forward to finally posting over here! I'm a graphic design student based in California. I have many physical and mental health issues, and I tend to use humor to cope with them. I think I would like to use this profile as a kind of journal, but let's see how it goes!
#Intro #thewinterhearted #fibrofunnies
New here-joined to be part of a community. Haven’t been to therapy in awhile. My insurance has been nonexistent lately. Therapy, well talking has always been helpful to me so I thought I’d try this.
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