Metastatic Breast Cancer

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Metastatic Breast Cancer
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    I’m new here!

    Hi, my name is shannobi1. I've been diagnosed with metastatic breast cancer and I’m looking to connect with other young people dealing with a terminal diagnosis.

    #MightyTogether #Cancer

    Post

    I’m new here!

    Hi, my name is Stacy. I'm here because I’ve been living with metastatic breast cancer for 2 years now and would love to connect with others with same diagnosis

    #MightyTogether

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    Respond to Post Now!

    I’ve had several notifications over the last week or so from group leaders to respond to various posts. The notifications end with “Now” followed by an exclamation point. I don’t think it is intentional, but rather has something to do with the programming code of the site. That being said, I think someone should look into changing the tone of the notifications to something less demanding.

    I spent the last few weeks dealing with the two big C’s. The first part of the month I spent taking my daughter-in-law to her daily radiation treatments for her cancer that came back after only 8 months as Stage 4 metastatic breast cancer. Although they gave her three to five years, she is failing fast.

    After that I was supposed to go to my youngest daughter’s house to help with her two little boys while she set up her new chicken coop. Instead, I ended up taking care of her and her two little boys because they were exposed to Covid while spending one night at her sister’s house. Both little boys had fevers and coughs. My daughter is vaccinated, but had a severe break-through case. Her husband was recuperating from elective surgery and only had a slight cough. I have been vaccinated and fortunately had no symptoms. I was very concerned for my daughter that first week as she got weaker and weaker, and all the while I kept getting notifications that I must answer The Mighty posts NOW.

    I suppose I should have just turned the notifications off, but they were my only link to the outside world. My daughter lives in the middle of nowhere, and the only chance I had to look at my phone was after the boys were in bed, and so was I. Then, up at 5 the next morning to do it all again, clean, cook, play Transformers, Baby Shark, Blippi, Ryan, Baby Signing Time, etc., etc.

    It would be nice to have had notifications saying something like, “There’s been a new post to our group. It would be great to hear what you think if you have the time.”

    Thanks.

    Post

    WHAT is insomnia?Im in a stage IV cancer.I rarely sleep more than three hours , in the quiet if the night that’s when my memories of when I used to hike the trails around Lake Tahoe, or when I could
    Work, meeting children that needed help and guidance, I wake up missing my old life. Usually it’s the pain at night in my bones that does nothing to allow for me sleep.
    My Doctor has my Insomnia listed as A Mental Disorder. Is it? Or is it a side effect of chronic pain from metestatic breast cancer? #painwarrior #MetastaticBreastCancer # #Insomniac #I need sleep 😴

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    What’s your saying for today?

    All the adages, proverbs and sayings aren’t going to help some days..I can’t paint rainbows around it or sugar coat it, or simply say like my Dad use to: “this too shall pass.” My daughter has Stage 4 metastatic breast cancer. Today, she told me it’s in her cerebellum, at 3mm..She may have a laser knife treatment done.? So, I’m concerned, not only about all the crappy political climate stuff, and the how to deal with the extra of the pandemic -because it’s really us as individuals, how are we dealing with it and how do we shield ourselves from it.? Now, I’ve another extra thing to think about..to worry about. My thought, my present saying: “We’re all in the same storm, but we’re in different boats.” It’s all relative to our circumstances. Sometimes, maybe we’re in a different storm on a vast ocean, all out there by ourselves, maybe the boat’s taking in water, and we wonder if we or our boat will survive the storm.?
    #BreastCancer #COVID19 #self #alone

    Post

    Biopsy

    I got the test results from the biopsy they took on Thursday. The procedure where they also took out my IUD, did a pap smear, and gave me my next Lupron shot. It's not good news. They found the cancer has spread to that spot. The weird thing is that area has been oddly itchy for roughly a year, and I mentioned that and another itchy area on a breast, at the time I really noticed it, to my primary care doc. She told me not to worry about it, and it was probably nothing. I'm wondering if I've been dealing with the cancer since then? Much earlier than I thought. Maybe it spread to that area before the bones. Would that area be considered skin or part of my reproductive tract? It was found throughout all the layers of the samples. Either way, it seems to be in another organ system now. They might have to take out even more when they do the hysterectomy, which means longer recovery time and more drastic looking. I thought it would just come back fine. #Biopsy #Hysterectomy #Health #Cancer #MetastaticBreastCancer #metastaticcancer #BreastCancer #tests