Depression and Kallmann syndrome #KallmannSyndrome
There is not too much I can say and I doubt I can put it into words properly.
This month I lost a fellow friend with Kallmann syndrome.
He took his own life. He was only 22 years old. He was younger than the age was when I was diagnosed. I spoke to him on line only a few days before and I noticed nothing untoward in the conversation.
I know he suffered from depression. I tried to help the best I could but we lived in different countries. He had family and friends around him who loved and cared for him deeply.
Having Kallmann syndrome, not going through a normal puberty and adolescence was not the whole reason for his depression perhaps but it was a significant contributing factor I think.
The psychological side of Kallmann syndrome, missing out on puberty, is often overlooked in patients I think. Sometimes it seems to be a case of once the hormone levels are restored to normal, then everything will be back to normal.
I try to raise awareness of our rare condition, but like other rare conditions it can be an uphill battle