There is not too much I can say and I doubt I can put it into words properly.
This month I lost a fellow friend with Kallmann syndrome.
He took his own life. He was only 22 years old. He was younger than the age was when I was diagnosed. I spoke to him on line only a few days before and I noticed nothing untoward in the conversation.
I know he suffered from depression. I tried to help the best I could but we lived in different countries. He had family and friends around him who loved and cared for him deeply.
The psychological side of Kallmann syndrome, missing out on puberty, is often overlooked in patients I think. Sometimes it seems to be a case of once the hormone levels are restored to normal, then everything will be back to normal.
I try to raise awareness of our rare condition, but like other rare conditions it can be an uphill battle