Lewy Body Dementia

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Lewy Body Dementia
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    I hope your all well today!! #LivingWithAlzheimers #alzheimers #AlzheimersDisease #Dementia #DementiaWithLewyBodies #LewyBodyDementia

    If you have dementia, please join me at Living With Alzheimer’s. A group to support one another!

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    I’m new here!

    Hi, my name is maggie0801. I’m new to The Mighty and look forward to sharing my story. I am caregiver for my husband who has lewy body dementia

    #MightyTogether #Dementia

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    My Earth Angel is holding on!#ServiceDog #PTSD #LewyBodyDementia #SystemicLupusErythematosus

    Blessed to still have her with me a week after the vet told me to put her to sleep. She is holding on and kept comfortable with pain medication and plenty of the best food and so much luvins❤️🐾❤️

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    Taking a break ? Maybe? Not sure how to.

    I'm all alone sitting in my brother's condo in Chicago. No kids no kritters around. Instead of relaxing, my mind is a buzz with things that I should do since I'm feeling good. I really struggle with allowing myself to relax and do nothing when I'm not stuck in bed with a Fibromyalga flare. Years before I was diagnosed, I knew that something was wrong. The fatigue, pain and brain fog was taking a toll on me. Raising 3 boys and taking care of an alcoholic husband and then adding a mother with Lewy Body Dementia while working full time sucked the life out of me. It was like I was on the Titanic and had to choose who to save. The husband had to fend for himself. My brother eventually took over our mother's care and I left the job that I loved. The husband and mom have passed way. The boys are now young men, but I still am struggling with allowing myself to be a person with a chronic condition. I still have those voices in my head saying I am just a weener or lazy. Get up and do something, like clean or laundry. Even here where I have no laundry or chores to do. I feel anxious like I will be called out for not doing something. " Just Being" is hard for me. I keep reminding myself I am a spiritual being having a human experience. Right?!

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    Blind with *Alzheimers

    I am blind and I’m 63 years old with no family and I also have early onset Alzheimer’s diagnosed at 55 years of age with Lewy body dementia. Does anybody understand how it feels to know you have a timestamp on your life?

    Post

    Lewy Body Dementia

    I’m losing my grandmother to #LewyBodyDementia . She’s at the point where the best route to take is to join into her reality she she is not in ours. It’s so devastating sad. She does not deserve this.

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