Ulcerative Colitis

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Ulcerative Colitis
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Autism and Borderline Personality Disorder….. the misery experienced by loved ones is immense.

Living with my chronically ill, autistic, BPD, young adult daughter is like living with an abusive spouse ( I would know cause I lived with one for 16 years before divorcing him). I can’t kick her out cause she isn’t totally capable of living on her own and doesn’t have much income and I don’t have any family that she could go live with. She doesn’t drive either so is totally dependent on me to get her to her part time job and frequent doctor appointments. However I am chronically ill too with several difficult conditions and work full time and care for my youngest daughter that is totally disabled from her chronic illnesses and it is just too much to always deal with the continual cycle of ups and downs she goes through due to her mental and developmental diagnoses. She is on medication that is helping some to stabilize her moods and help her severe anxiety, but she still goes into really awful episodes where her thinking is all over the place and she lashes out verbally and accuses me of things that don’t even make sense. She yells and cussed at me, calls me names and says I’m stupid and don’t really love her. She does the same to her sister but on a lesser scale than with me. In those episodes I can’t reason with her and she is determined that I’m causing her problems. When she is clear headed she can be kind and loving, but she always has another episode before long that is horrible for me to deal with. I feel I’m being verbally and emotionally abused just like I was from my ex- husband. I want a peaceful life and I just can’t seem to ever achieve it due to the whole situation. Has anyone else had experience with this kind of thing? I would really appreciate input. #Fibromyalgia #AutismSpectrumDisorder #BorderlinePersonalityDisorder #chronicmigraine #ADHD #Anxiety #Depression #ChronicFatigueSyndrome #Dysautonomia #UlcerativeColitis #EoE #OCD #DisorderedEating #InterstitialCystitis #Endometriosis #IBS #FoodAllergies

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Hitting a wall.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
# Migraine
#c -PTSD

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Hi, my name is Elyzium13. I'm worried about A meeting tomorrow I have with my brother and my therapist to try to get him to understand an invisible illnesses . Despite the fact I have been disabled for around 17 years, he thinks I should be able to hold down a part time job.#MightyTogether #Anxiety #Depression #Migraine #Fibromyalgia #Lupus #UlcerativeColitis #RaynaudsPhenomenon

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UK Easter Break Blues

So, here in the UK the kids have been off school for a 2 week break…. About 3 weeks AFTER they’d already had the half term break as Easter came early this year.

Just wondering if there are any other parents on here who reach the point of screaming internally when your day is literally “wake up, clean up, food for kids, make beds, put wash on, take wash out, make more bloody food, wash up again, put dry washing away… Aaaaand keep repeating” 😱😱

I’m bloody exhausted mentally & physically and currently trying to deal with a c-spine that doesn’t want to play ball, crazy muscle pains from scar tissue build up alongside menopause (thank god for HRT!), fibro, thyroid issues, pots, you name it, each year the list gets longer!! I suppose I’m ranting here but it pees me off when it only seems to be me who is capable of seeing that bins are overflowing, or making food, or wiping the bathroom around after use. Child 1 works from home, child 2 is 10 & starting high school in September. DH works from home and is currently in a UC flare up.

I’d started a diploma in diet & nutrition with biochemistry before the break as I need something just for me. I’ve asked numerous times for help with the house - specifically, you mess it up, you clean it up & ask the 10yr old to just keep her room tidy and clean it once a week. Same with the eldest & asked hubby to help with the heavy lifting…… Today I just get back from visiting my mum who has Lewy Body Dementia and is in a care home, to find that washing is still wet in the machine, 10yr old hasn’t actually moved anything to clean her room and the bathroom and kitchen bins are full. Literally screaming inside as I make the beds (had to do those as our elderly cat likes to sleep on them and isn’t always the cleanest bless her), wash up, empty bins and start prepping for dinner.

When I ask 10yr old if she can wash up and then finish her bedroom, I get the grumps and tears reaction!! Go to tumble drier only to find the lint trap is full and so is the condenser unit. I’m the unreasonable one for complaining that I’m the only person to check and clean between washes.

I am soooo bored and so painfully aware that my life is existing and I don’t want to reach my 70s and end up in a care home like my mum. I’m aware that as I reach my very late 40s my life is getting harder pain wise but also it’s slipping away from me. I miss my career, my social life and my health…. I want to scream “STOP I want to get off!” but I know I’m blessed to be a stay at home mum, even if it was the curve ball of ill health that made it possible. If you’ve made it this far in my rant, I apologise, I can’t say anything at home as I feel ungrateful as when I am off my legs Hubby does step up but it’s never the same and as soon as I’m up again, it’s going over everything that’s missed. Anyone else feel this mixture of anger, frustration, guilt & loss???? #EDS #Fibro #mental health #Guilt

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Hi, my name is Sai24. I'm here because
I was diagnosed with ulcerative colitis & it’s been hard to deal with my symptoms. I wish I was normal & id never been diagnosed. It’s hard being a mom & having flare ups #MightyTogether #Depression #UlcerativeColitis

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