Dementia

Hi, my name is Fluffer59. I'm here because my husband is an alcoholic with dementia. Need to learn to navigate this diagnoses while keeping myself healthy & from derailing. I have had fibromyalgia for past 30 years.

#MightyTogether #Fibromyalgia

I did this many years ago. Because my mom is a Narc, and she instilled this in me from a baby growing up that I would basically always need her to make decisions for me. But a few people outside of my family educated me on what they saw, and I corrected this over a 10-year span... but now my mom respects me as an adult and doesn't try to control me... but the connect that a child has with their mom I had to break those ties permanently. Because my mom abused that at an early age... So most of the time I treat her like she is a stranger even though she's my mom... my mom now has a mild case of dementia so she doesn't remember half of what she did to me when I was younger #BPD #BorderlinePersonalityDisorder #MentalHealth #PTSD #Bipolar #NarcissisticPersonalityDisorder

Hi, my name is parcel. I'm here because Been a Christian since 1990. Never had any real health problems. Happily married, then about 4 years my wife started to develop Dementia so now I look after her (She's 74, Im 74).
But since having a severe vertigo attack in Aug 13th (was bed ridden for 24 hrs). Was fine the next day. With some good an bad days. Was ok. Then on Dec 27 in 23. Woke up not feeling well. Haven't been the same since. I have a feeling in my mind, things are not rite. It's continous. Affects my cognitive an neurological functions. Now I feel like "I'm drowning" due to various health probs.Constant feeling something's not rite. Had various blood tests, CT scan, endoscopy front an back. Nuthin found. Have anemia an B12 deficiency, Now on various tabs. Have had some anxiety an depression. Really struggling to look after my wife at times, I have a hernia, some globus which gives me wind, burping, difficult to get to sleep at nite.
Don't wanna get up in the morning but I have to look after my wife. Very lill support, altho Alzheimers society helps a lot. Wife has various health issues. She used to be active, now she can't go out without me. So can't go out an leave her for long. Just feel like I'm in a living nightmare, I'm unable to wake up from. Slowly drowning.
Tried praying asking God to take it away. Feels like a curse or something has been put on me. She gets Attendance Allowance. We are both on pensions. Both with saving accs an a joint acc. Recently applied for Power of Attorney. Can't attend meetings unless I bring my wife (who has severe short term memory) Help me someone.
I always had a strong faith since getting saved. God has blessed us both beyond measure. Now it feels like life is a struggle. How long does this last, until there's a breakthro.
Every day I wake up, thinking it's gonna be different, but it's not. Time goes slowly, listen to a lotta praise music during day. Wife can look afterself quite well, she has a routine. Except for meals an meds, which I prepare.
No problem with driving, just gotta keep the car going so we can get the shopping in.
Just feels like I'm "losing it" sometimes, with no way to get on top of things. no time to recover, before something else occurs.Having to rely on support an advice by more authorities an organisations than ever before.Always tended to be self reliant, not now tho.
Since Dec 09 24 I now wake up feeling slightly out of it, with some residual affects of Vertigo. Which remains throughout the day. Limiting my everyday tasks even more. I have more burdens recently inc mistake by DWP. Applied for Carers allowance then got clobbered by a reduction in Pension Credit.They miscalculated total money in accs.Meaning I now have to pay full rent an council tax. When will it all end!Have been told Carers element will remove rent an council tax costs. (Thats now sorted.)

TBC

I will be turning 60 years old in a few weeks. Since the beginning of the year, I have been feeling more like 80 or 90. I am more tired, sore and mental struggles. It is effecting my everyday life. I haven't been able to work an 8 hour shift for many months. I get physically and mentally exhausted after just after a couple of hours. Luckily, I have been able to work split shifts doing food delivers that I am able to make ends meet but it is difficult.

One issue that has been getting worse is focus and attention. I have a very active, logical mind. My mind is always analyzing, planning, thinking and replaying and is constantly running in the background. It's been happening as long as I can remember. I believe I have #ADHD but have never been diagnosed with it, even though I have always told my doctors this. Because my subconscious mind is so active and automatic, my focus shifts from conscious to subconscious. It doesn't matter what I am doing, driving, in a conversation, writing this article, etc. most of the time I am not aware that the focus has changed. I go into auto pilot. This makes things like multitasking almost impossible for me because with all the things going on in the background already, my mind is full and I become distracted or confused. I have tried meditation and yoga to discipline my mind and body but when it is quiet and without distractions my mind gets even more active and I can't refocus it.

The other thing that has been happening with my mind is it has been giving me false information. I'll give an example. I am driving to a location. I have the GPS directions on with it announcing turns along with a visual map. The voice tells me to turn when I get a certain point but my mind tells me to turn now. So, I turn and now I am on the wrong street and have to backtrack. Another example, I get 2 orders from the same restaurant for 2 different people. I keep them separate and note which one goes where. I get to the first location and my mind tells me to grab this order. So, I grab it and deliver it. It turns out to be the wrong one and I don't realize it until I get to the 2nd location and causes a big problem. Normally you would just look at the order and verify you have the right one. My mind was so sure I had the right one but it was wrong. I have been delivering food a long time. I know to double check these orders and maps but yet my mind is telling it is sure it is right, but it is wrong. Is this just my brain aging? Am I getting #AlzheimersDisease or #Dementia ? Is it some sort of degenerative brain disorder? I don't know but I am greatly concerned. I want to go to the doctor and get checked out but I have really crappy insurance that has a huge deductible I have to meet before it will pay for anything. So, I can't afford to see the doctor.

This is really getting the depression and anxiety worked up. I am really afraid that I am losing my mind. I don't want to end up homeless and in treatment again. The experience was horrible. I have been having suicidal thoughts again. No plans or wanting to act on them but I am really struggling financially and health wise. My quality of life is low and I am feeling like I have gotten everything out of life that I am going to get. Why continue? Again, these are the thoughts. No plans or want to act on them. But, that could change if I start feeling I have nothing left to live for. It sucks to be me right now.
#Depression #Anxiety #Aging #Dementia #ADHD #AlzheimersDisease #SuicidalThoughts

Hi, my name is RsDs1998. I'm here because for several years I helped take care of my mom with dementia.

#MightyTogether

Hi, my name is MyDruthers. I'm here because my wonderful therapist said it’s time to “widen my circle” in order to get the support I need right now; even twice-weekly therapy isn’t doing it, I’m reluctant to overburden my friendships, and I feel indescribably alone.

I’m dealing with so, so much, and although I’ve survived really tough stuff in my life — most recently, caring for my mom with Dementia for 8 years, surviving the breast cancer I was diagnosed with when she died 5 years ago, raising my daughter (now 15) in the midst of an abusive marriage (20 years long), leaving my psychopathic/narc ex — the current custody battle (2 years long so far, the second one in 5 years) has me nearly bottoming out in despair every week or so. I will eventually resume EMDR, since that was derailed when the current crisis hit.

My ex is also a therapist/psychologist, currently practicing , and licensed in 4 states — he is a demon, especially in the courtroom, and although I managed to get 100% custody of my child the first go-round, I’m in a different (more conservative) state now and the philosophy here is that it’s always better for kids to have relationships with both mom and dad, even when there’s been family violence, even when there’s been SA.

Current challenges: I’ve had to switch attorneys, these master manipulators continue their abuse by using the court system, and the family law system seems blind to it. Just yesterday, I received a form letter from CPS telling me they’ve closed the investigation into him, which means my child has once again been let down by someone that was supposed to watch out for her.

I’m tired of weighing my friendships down with my deep and ongoing need for support and understanding, so I’m turning to this community, which I’ve heard such great things about. I don’t know my way around, but if anything I’ve said resonates with you, please reach out. Maybe we can lift each other up. Thanks for reading. 💕

#MightyTogether #PTSD #narcdivorce #narccustody #Anxiety #Depression #ADHD

Hi, my name is aw1961. I'm here because
I recently had to stop working to that care of my husband who has dementia.#MightyTogether

I bought a couple of different sleep tracking abilities. My Insomnia has gotten so critical that I am completely detached from everything and everyone - including myself. I have to do something. Supplements, OTC sleeping tablets, prescription sleeping pills, hot milk, herbal tea, bath,reading…white noise … you get the picture.

So now we track what is going on. I am averaging 1 hrs 36 min of sleep per 24 hour period….with at least 3 wakes in each night.
Ok I have been recording this over a week now. What am I supposed to do with this info? My PCP is at a loss. She feels like she has tried everything.

Meanwhile I am losing my mind quite literally. I live in an Assisted Living Facility and they have to screen us every 3 months. My scores now show mild to moderate dementia alert. What specialist is there for insomnia besi.des a Psychiatrist? All they can really do is fling pills at you. Mine has already tried and says he has no more tricks up his sleev. Someone anyone … post your ideas …all of you …all of them … PLEASE!

I think I am being emotionally abused by my adult son and the way,as my legal guardian, he has been treating me. It’s a complicated situation and I have Bpd so I am going to try to get the situation across without over explaining- a character flaw I am guilty of.

Just before Christmas I was the target of a sophisticated identity theft scam on a social media platform. I took all the appropriate measures necessary as soon as I realized what was happening. I was not careful and released my personal information. I didn’t lose anything material - at least not yet.

Back to my son. He became my guardian two years ago when I was in a mental health hell. I am now in a much better space but still struggling. That was until I told him what happened and his actions and inactions are why I am questioning emotional abuse currently. I can’t get into most of what is going on but I can say that I believe he is abusing me in every way except he doesn’t hit me and there is no SA.

Two days before Christmas, after I informed him about the scam, he came to my place and stole my phone, tablet and laptop. He wiped them clean of everything including my contacts. My browser. Deleted my email account. All programs even those that I paid for. The few programs that he left were useless.

He also hijacked my Apple ID account and fraudulently put himself as my parent. He changed my birth year to 2020 so now apple thinks I am a 4 year old child with no privileges or choices over my own account. He put a pin # on every possible decision or change that could possibly help me restore my devices.

I need to back up and let you know why the internet and devices are so important to me. I have a mountain of physical and mental health issues that necessitate me living in an assisted living facility. I am the only one in my pod without dementia’s. There is literally no one to socialize with. The facility is grossly understaffed and the staff doesn’t have time to humor me. I have zero concentration so reading is difficult. I’m hearing impaired so music isn’t much to me. I have stories from childhood that could curl your toe nails. A whopper of a case of CPTSD. The only adult coping skill I have had success with is distraction…… through my devices and internet. My sons criminal action of theft and his fraudulently restructuring my data have resulting in collapsing into the abyss of not being able to distinguish between physical and mental health issues. You don’t have any other background that contributes to my current situation and I would be here for the rest of the night explaining. In an entirely unrelated situation he is inflicting medical neglect. This past summer he all of a sudden put restrictions on me through my facility. One of those is that I am not allowed to leave the building.

He did give my phone and tablet back Christmas afternoon. They are useless! The few programs left are not programs that provide support. And they don’t function without a browser. If that wasn’t enough he changed passwords. My brand new iPhone could dial out but he put a tracker software on it and he deleted my contacts file so I had no info to contact anyone. He also let me text but only him. I’m paying a lot of money for a smart phone to be basically useless. The iPad does nothing. He hasn’t given the laptop back.

I access both therapy and my psychiatrist through telehealth on my missing laptop. I am in crisis without help within reach. I have no distraction from this awful experience. I feel violated from the scam. Violated from the theft. Violated from the fraud. I sleep with a tracker and since this started the most sleep I have gotten in one night is 1 hour and 13 minutes. Can’t eat. I lost 6 pounds last week. Racing thoughts. Brain fog. Can’t track conversations. Feel like a major disaster is right around the corner. This is causing emotional upheaval as well as significant physical issues. I feel devalued and worthless. I feel betrayed and hurt. But I have other tumultuous feelings that I can’t put a name to because I was never taught. Physical symptoms are all encompassing from head to toe. I literately don’t know physical from emotional at this point. All I know for sure is that I have no other coping skills and no tools to help myself. Is this emotional abuse or am I a freak who just can’t cope?

Thank you for going on this wild ride and letting me vent. Also thank you to one of my staff who started loaning me her tablet when she works. I trying to reconnect with my programs online but he changed all my passwords. He says he is protecting me. From what?